Just been for my 6 month check-up post Chemo. I have completely normal blood counts other than low CD4 which is to be expected and its slowly coming up. Scan shows no evidence of any mass and BMB showed what the consultant said as "only evidence of Staining" which he said is the best thing you could hope for. Im reacting badly to Co-Trim so I have a monthly inhaler of pentamadine to warn off pneumonia should I get a bad chest. Great news and better than a lot of people get given, so why do I STILL feel like im sat waiting for this thing to return?
You cant get much better results than this, its a 100% remission yet it seems weird that you get fixed but never cured?