Hi all .... just thought I would add my tuppenceworth and share my experience of CLL treatment. Diagnosed in Oct 2009 at age 47 with 'Watch & Wait' (lymphocyte count 16) ..... however by Jan 2011 my lymphocyte count was around 130 so was offered treatment on a Clinical Trial at Southampton General Hospital and I was randomly selected for the 'Gold Star' FCR which I started in March 2011 - and finished in July 2011. I had to move to an apartment in Southampton from my home in Guernsey - on my own - and I was very fortunate/lucky to never suffer ANY side effects from the treatment - apart from two mornings where I felt a little sick for a couple of hours. I have always been a fit chap and after the chemo treatments I used to go out and about - as I hated being on my own with no one to talk to! Yes - I was aware of infection risks, but I always felt as I always did before!
THough it sounds odd, I have always had a good immune system and hardly ever had colds or was rarely ill .... just as well as my job is an airline pilot.
It took me a year to get my Medical back and I am enjoying a normal life and in good health and good remission ...... though my lymphocyte count a few weeks ago was just above the upper normal level at 4.7 .......... so I hope that this rise will either be a 'blip' or a long slow increase!
Lessons learned ..... be as fit as possible for your age (within reason!) ..... don't get stressed up ..... eat healthily ... and take everything in your stride in a calm manner.