Important Privacy Improvements coming to Healt... - CLL Support

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Important Privacy Improvements coming to HealthUnlocked - a Must Read!!

AussieNeil profile image
AussieNeilAdministrator
2 Replies

Below is HealthUnlocked's release about planned changes that will enable you to restrict the audience of what you consider to be personal information, which I received via email on 20th March 2014. This change will replace the current temporary fix in which it is difficult to determine if a question or post is restricted to our community.

The important points to keep in mind are that:

If you restrict your question/post to your community -

* your username will NOT be visible in search engine responses or RSS feeds.

* your profile picture/avatar will also be hidden

* only the first 247 characters of your question/post will be visible; thereafter it will be blurred out then truncated

(so make sure you keep the early part of your question/post free of any sensitive, identifying information)

Whether or not you restrict your question or post -

* all of your question or post title can be found via search engines and be will visible via RSS feeds.

* a question mark icon will be included near the question “Who can view this post?” that anyone can click on to see an explanation of who can view that post or question.

As HU's email states: "Our recent member survey revealed that new members typically join because they found that they could see the answers to their questions on HealthUnlocked." and the proposed changes "helps individuals who are not yet members also find answers to their questions and join your community."

Please note that this post is deliberately not set to private so I could reference it in a post to the HU Admin Community - recommending that bring it to their member's attention. If you wish to reply and want your comment restricted to this community, please reply to the linked pinned post "On Line Security Starts with You!" below

healthunlocked.com/cllsuppo...

Here's how the above post appears to search engines and anyone not logged into HU:

CLLSA HU Community Posting Guidelines & Online Security Starts with YOU!

Hidden 3 years ago 78 Replies

CLLSA HU Community Posting Guidelines

The CLL Support Association (CLLSA) HealthUnlocked (HU) community Supports those affected by a diagnosis of CLL, their friends, families, loved ones and carers.

Membership is for the above group and...

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You will also find other tips on how to protect your privacy when using this site along with background information regarding this change in the above post.

Health Unlocked's email on proposed privacy changes in full (excluding graphics)

We’re releasing an improvement so that your community reaches more individuals and has more members.

Over the last couple of months, many asked us how to increase the visibility of their community to reach more individuals. Our recent member survey revealed that new members typically join because they found that they could see the answers to their questions on HealthUnlocked. With that in mind, over the next few days we're releasing an improvement to how questions and posts in your community can be seen. It's important to note though that as protecting members is a priority, we strictly regulate access to content and are doing this very carefully.

Before publishing a post or question we ask members whether they would like for it to be viewable by Everyone or by Members of this community only. << example graphic provided >>

* Everyone means that the post/question along with the replies can be seen by both members of that community as well as visitors (whether they are HealthUnlocked members or not).

* Members of this community only means that the visibility of the post/question is strictly limited to just the title and the first 247 characters for anyone who is just a visitor (whether they are HealthUnlocked members or not) while only members of the community can see the full post/question and replies.

In both instances the post/question can be found through RSS feeds, on for example the websites of your charity and the NHS, as well as through search engines like Google. In the case of the latter though, its visibility is strictly limited so that visitors can understand the gist of that conversation without compromising the author’s privacy. This helps individuals who are not yet members also find answers to their questions and join your community.

<< Pictorial example provided of a hidden question, showing how the question body text is blurred out on the second line and how viewers are encouraged to join to read the full question text and responses >>

While bringing you more visitors and members by increasing your community’s visibility is a priority, we also take the privacy of members very seriously, which is why we limit what can be seen when someone labels their post/question as for Members of this community only.

As part of this improvement we’re blurring out anything beyond the first 247 characters and hiding the author’s username and avatar (per email communication - Neil). Additionally we’re adding a question mark icon near the question “Who can view this post?” that anyone can click on to see an explanation of who can view their post or question. (Confirmed with Amedeo that this question mark icon only appears on the post/question submission page. The padlock for private questions/posts remains - Neil)

If you have any questions, please get in touch with me directly by replying to this email. Additionally, if you would like to have a chat on the phone, please reply to this email with some times that would work best for you.

I wish you a great week and as always, thank you very much for being a partner of HealthUnlocked.

Best regards,

Amedeo d’Amore

Marketing Executive

HealthUnlocked

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AussieNeil profile image
AussieNeil
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AussieNeil profile image
AussieNeilAdministrator

I've slightly updated the above post on HU's privacy improvements following email correspondence with Amedeo. The major change is that your profile picture will also be hidden on closed to community posts/questions.

There was also a typo in one of Amedeo's email sentences. It should have read:

“It’s important to note though that as protecting members is a priority, we strictly regulate access to content and are doing this very carefully.”

Neil

AussieNeil profile image
AussieNeilAdministrator

This change has now been implemented. You should observe the question mark icon next to the question asking you whether you want to have your submission private to our community or open for anyone browsing the internet.

Here's the link to the article you'll read if you click on the question mark icon:

support.healthunlocked.com/...

If you have any questions about this change, please take up HealthUnlocked's invitation to get in touch with them via the Contact Us section of their their Help page (on the right of the page):

support.healthunlocked.com/

Neil

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