I was diagnosed 6 months ago and have seen the haematologist once. I've previously had cancer that required massive and life changing surgery, have suspected "pre-malignant" liver lesions that are "inoperable" despite resection being the usual treatment (I'm told by the relevant specialist) and now CLL. I'm 53 with a 15 yo son and a hubby who is struggling more than I am to come to terms with what this means. And I'm now in the public health system for ongoing W&W (due to rising costs of my treatments and fatigue stopping me working), and feel like I've lost control over what happens and when. My question is, when should I get more prognostic tests done (eg: FISH)? I see my specialists next week and no one seems to be rushing those tests... But I feel that I need to know more and prepare for the most likely future. Any ideas? Comments? My appreciation in advance, thanks folks.
Last edited by Susanjc
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