Simon: Hi there, This month is my three year... - CLL Support

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Simon

Proty profile image
4 Replies

Hi there,

This month is my three year anniversary. After a number of blood tests l was told that l have Low Grade non Hodgkin's Lymphoma. (LGNH) well you know where the mind takes you from this point.

In the three year period my WBC has been in the normal range for the most, and the lymphocytes count has been,7.3- 4.8- 4.5-6.1- 5.7- 5.0. I believe I feel well and do every thing as I did.

My Hematologist has me on W and W and says traveling good, my pathologist say I have LGNH.

Looking at my markers it seems to be somewhere between MBL and CLL, has any one got any thing similar or had similar and where and how did you progress with it.

Thanks,

Simon.

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Proty
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Cllady25 profile image
Cllady25

Welcome, Simon!

While you are waiting for replies, you can find others who have asked about MBL which I would think may be the same as LGNH, though MBL may be diagnosed with high lymphocytes???

Here are previous posts regarding MBL.

healthunlocked.com/search/p...

Also, the latest inquiry before yours:

healthunlocked.com/cllsuppo...

cajunjeff profile image
cajunjeff

Hello Simon. You might want to get clarification from your doctor exactly what low grade non Hodgkins lymphoma (NHL) that you have. There are over 60 sub types of NHL and a handful of them, like cll, follicular lymphoma, mantle zone lymphoma and marginal zone lymphoma.

Tests like flow cytometry can identify the sub groups, but some are hard to distinguish. It’s usually not hard to tell if someone has cll or mbl. If your doctor said you have the mbl version of nhl’s, thats very good. There’s a great chance you will never need treatment.

Since you described your cancer as low grade non Hodgkin lymphoma, I just wanted to make sure you knew that NHL comprises many b-cell cancers, including cll. Even if it’s not cll, low grade is another way of saying slow growing or indolent, so low grade is a favorable diagnosis no matter what NHL it is. Some b-cell lymphomas can be aggressive, so it’s good you have low grade, be it mbl or something else.

Low grade lymphoma: Types and treatment

Overview

Summary

Low grade lymphomas are non-Hodgkin lymphoma (NHL) that grow slowly and are often asymptomatic compared with other types of NHL. However, they may still require ongoing monitoring and treatment.

There are two main categories of lymphoma: Hodgkin and NHL. Among NHL, doctors group the subtypes into aggressive NHL vs. low grade NHL.

Types of low grade NHL

The different types of low grade NHL include:

Follicular lymphoma

This type of B-cell NHL starts in the follicles of the lymphatic tissue and is the second most common form of NHL, making up almost 30%Trusted Source of all lymphomas. It typically affects older adults and can grow slowly or remain dormant for a long time without causing symptoms.

Learn more about follicular lymphoma.

Marginal zone lymphoma

This type of NHL affects the marginal zone of the lymph node, a part of the immune system that helps fight infections.

It is more common in older adults, with the average age of diagnosis being 60 years.

Mantle cell lymphoma

This type of B-cell NHL starts in the mantle zone of the lymphatic tissue, which helps produce B cells. It is a low to intermediate-grade NHL and tends to affect older adults, with a median diagnosis age of 68 yearsTrusted Source.

Learn more about mantle cell lymphoma.

Small lymphocytic lymphoma

This is a type of B-cell NHL that affects mature B cells. It is more commonTrusted Source in older adults and often causes no symptoms in its early stages except for potentially enlarged lymph nodes. However, it can progress over time and cause blood and bone marrow issues.

Lymphoplasmacytic lymphoma

This type of NHL affects plasma cells, a type of immune cell that produces antibodies. It can causeTrusted Source symptoms such as an enlarged spleen, anemia, and increased risk of infections.

Learn more about lymphoplasmacytic lymphoma.

Skin lymphoma

Cutaneous T-cell lymphoma is a type of T-cell NHL that affects the skin and can cause red or discolored, scaly patches or plaques, itching, and thickening of the skin. It is a slow-growing lymphoma that oftenTrusted Source requires long-term treatment.

medicalnewstoday.com/articl...

AussieNeil profile image
AussieNeilPartnerAdministrator

Simon, you might find the discussion on this recent post about CLL MBL of interest.healthunlocked.com/cllsuppo...

Neil

LeoPa profile image
LeoPa

I like that trend. You are treading water, may it stay like that for long.

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