Posts - CLL Support | HealthUnlocked

CLL Support

23,137 members • 39,744 posts

All posts for August 2024

When to Get Next Booster!!

https://www.nytimes.com/2024/08/12/well/coronavirus-vaccine-booster.html?smid=nytcore-ios-share&referringSource=articleShare&sgrp=c-cb

https://www.nytimes.com/2024/08/12/well/coronavirus-vaccine-booster.html?smid=ny...

PennyLane2024

•2 months ago

2 Replies

Promising trial

This sounds promising but must admit much of it is over my head. Happy reading!...

This sounds promising but must admit much of it is over my head. Happy reading!....

Bornagain514

•2 months ago

7 Replies

Study on diet and CLL

Has anybody seen this study before? It suggests that a "whole food, plant‐based (WFPB) diet intervention" can stabilise or reduce lymphocyte count...

Has anybody seen this study before? It suggests that a "whole food, plant‐base...

Fred_Green

•2 months ago

52 Replies

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Calquence Olympics

I was very surprised to see a commercial for Calquence on NBC during the Olympic Marathon yesterday. I had no idea that there were commercials for CLL....

I was very surprised to see a commercial for Calquence on NBC during the Olympic...

PennyLane2024

•2 months ago

3 Replies

Real-world incidence and prevention of tumor lysis syndrome (TLS) in chronic lymphocytic leukemia (CLL) treated with venetoclax. From MSK

A few members who have been recommended ventoclax/Venclexta treatment, have posted about their concerns of developing Tumor Lysis Syndrome (TLS). So hopefully...

A few members who have been recommended ventoclax/Venclexta treatment, have post...

AussieNeil

Administrator•2 months ago

11 Replies

Calquence

I just was diagnosed with sll after getting an mri on my back for back pain showed a swollen lymph node on my spine. Ct and biopsy showed sll. I am supposed to...

I just was diagnosed with sll after getting an mri on my back for back pain show...

1reb

•2 months ago

19 Replies

Chronic kidney disease

I just heard that there was a study of folks with chronic kidney disease and the use of semaglutide. It revealed that semaglutide helped so much that the...

I just heard that there was a study of folks with chronic kidney disease and the...

spi3

•2 months ago

7 Replies

waiting and watching but worrying

Hello everyone I'm in Australia, and I've read a lot of CLL posts from people in this Community and it's been comforting. I am 60 years old and I was...

Hello everyone I'm in Australia, and I've read a lot of CLL posts from people i...

Blue-Eyed-Baby

•2 months ago

26 Replies

RSV vaccination

UK. Talking to our GP nurse yesterday she told me that they have just begun training for a programme of vaccination against RSV. Respiratory Syncytial Virus....

UK. Talking to our GP nurse yesterday she told me that they have just begun trai...

EmilyLondon

•2 months ago

12 Replies

Re: CAR T and CAR E (Enhancer)

FYI I just came across this amazing article. Research is moving at the speed of light. What are your thoughts?...

FYI I just came across this amazing article. Research is moving at the speed ...

bagelstreet225

•2 months ago

4 Replies

Finding Mental Health Therapists ASAP?

A friend of mine was just diagnosed with cancer (not CLL) and she doesn't already have a therapist. I offered to help her find one who can start seeing her as...

A friend of mine was just diagnosed with cancer (not CLL) and she doesn't alread...

CBSN

•2 months ago

14 Replies

First post

I joined the community over a year ago when i got a routine blood test back that was a bit high but below the threshold for further tests. Continued that way...

I joined the community over a year ago when i got a routine blood test back that...

Mokoia

•2 months ago

9 Replies

What to expect after finishing course of rituximab

Hi There, Finnish 4th course of Rituximab over a week ago,would like to know what to expect after it,ha sore throat,mouthfuls of ulcers,getting pain down in my...

Hi There, Finnish 4th course of Rituximab over a week ago,would like to know wha...

Jsceltic67

•2 months ago

8 Replies

Continued Journey

Day +43 from my BMT. Day 35 is a bench mark day as is day 100. Cellcept had run its course on day 35. It is an effective medication with controlling GVHD...

Day +43 from my BMT. Day 35 is a bench mark day as is day 100. Cellcept had run ...

FiArt12X

•2 months ago

4 Replies

Update.

I had my fourth and last infusion of Rituxin on Wednesday. Feeling quite tired but otherwise ok. Time to recover now. Love and strength to all.

I had my fourth and last infusion of Rituxin on Wednesday. Feeling quite tired b...

Jacksc06

•2 months ago

7 Replies

30 days of Zanu

Hey y’all, Just completed first 30 days of Zanu! Feeling good. Lymphnode pain minimal, more energy! Lots of bruises, a few rashes, nausea, all manageable!...

Hey y’all, Just completed first 30 days of Zanu! Feeling good. Lymphnode pain m...

Nana1961

•2 months ago

21 Replies

Question about V & O

I am close to finishing 1 year treatment with V&O. Does my year of treatment end 1 year from the first dose of O or 1 year from the first dose of V? Also, I...

I am close to finishing 1 year treatment with V&O. Does my year of treatment en...

bonbeat

•2 months ago

13 Replies

Path to precision: Targeted cancer drugs go from table to trials to bedside

https://arstechnica.com/science/2024/08/precision-cancer-treatments/

zaax

•2 months ago

2 Replies

Hight lymphocytes and platelets

Hello everybody, I live in United States. I don’t have a CLL diagnostic. My lymphocytes have been above the normal range (1.1-2.7) from last year (2.92, 3,2,...

Hello everybody, I live in United States. I don’t have a CLL diagnostic. My lymp...

Cusube1967

•2 months ago

6 Replies

Extremely tired blood white cell low

Hello everyone since 2 month i feel extremly tired even when i am sleeping 12 or 13h. It's really hard. My doctor give me a blood analys last month. Everything...

Hello everyone since 2 month i feel extremly tired even when i am sleeping 12 or...

Lexdes

•2 months ago

17 Replies

CLL & Osteoporosis Treatment

Has anyone here had success in building bone density with strengthening and nutrition rather than drugs? I'm 56 yo female - on W&W since May 2014, newly...

Has anyone here had success in building bone density with strengthening and nutr...

peas50

•2 months ago

40 Replies

starting O+V today. Wish me luck

on watch and wait goi g on seven years. Starting treatment

elm1

•2 months ago

27 Replies

Brave young kiwi woman

A Young Mom Confronts “Skyrocketing White Blood Cell Counts”...

Kiwidi

•2 months ago

3 Replies

NO CD20? How concerned to be?

Hi all! Went in with a recently diagnosed loved one to an oncology appointment recently. I don’t have FISH back yet, but I found out (at least preliminary)...

Hi all! Went in with a recently diagnosed loved one to an oncology appointment r...

anongirll1927

•2 months ago

2 Replies

pleural effusions

I’ve had three pleural effusions requiring thoracentesis during the last three months. Any recommendations on how to treat them? I just started O+V treatment...

I’ve had three pleural effusions requiring thoracentesis during the last three m...

Auburn67

•2 months ago

10 Replies

V and R Treatment Update

After your helpful responses to my scared post I wanted to give you all an update. My husband ramped upto the full 400mg of Venetoclax and his 3rd Rituximab...

After your helpful responses to my scared post I wanted to give you all an updat...

Sanders9

•2 months ago

13 Replies

Following LeoPa's “On CLL, diet and possible connections.”

I am also curious about the preferred energy source of CLL cells. Particularly the cholesterol role. If the CLL cells use cholesterol do they use whatever is...

I am also curious about the preferred energy source of CLL cells. Particularly ...

Lavinia-Blue

•2 months ago

13 Replies

I was diagnosed with Squamous Cell Carcinoma on my chin today.

Presumably this is a secondary tumor from my CLL. The problem that I am experiencing is that the tumor has been left to grow for quite some time. The last...

Presumably this is a secondary tumor from my CLL. The problem that I am experie...

Jonquiljo

•2 months ago

71 Replies

Still struggling...how can it be getting worse?

It has only been a month since I'd been diagnosed with CLL. I shouldn't be feeling this crappy this fast? My GP admitted that I've most likely had this cancer...

It has only been a month since I'd been diagnosed with CLL. I shouldn't be feeli...

MamaToFive1971

•2 months ago

14 Replies

Steriods

Because of an injury to my lower back, foolish launch attempt of a Seadoo for grandkids to ride, I received a steroid shot and and orals. Because near the end...

Because of an injury to my lower back, foolish launch attempt of a Seadoo for gr...

Fant1924

•2 months ago

3 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2024

When to Get Next Booster!!

Promising trial

Study on diet and CLL

Calquence Olympics

Real-world incidence and prevention of tumor lysis syndrome (TLS) in chronic lymphocytic leukemia (CLL) treated with venetoclax. From MSK

Calquence

Chronic kidney disease

waiting and watching but worrying

RSV vaccination

Re: CAR T and CAR E (Enhancer)

Finding Mental Health Therapists ASAP?

First post

What to expect after finishing course of rituximab

Continued Journey

Update.

30 days of Zanu

Question about V & O

Path to precision: Targeted cancer drugs go from table to trials to bedside

Hight lymphocytes and platelets

Extremely tired blood white cell low

CLL & Osteoporosis Treatment

starting O+V today. Wish me luck

Brave young kiwi woman

NO CD20? How concerned to be?

pleural effusions

V and R Treatment Update

Following LeoPa's “On CLL, diet and possible connections.”

I was diagnosed with Squamous Cell Carcinoma on my chin today.

Still struggling...how can it be getting worse?

Steriods

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