What to expect after finishing course of rituximab

[Jsceltic67]

Hi There,

Finnish 4th course of Rituximab over a week ago,would like to know what to expect after it,ha sore throat,mouthfuls of ulcers,getting pain down in my private parts,has anyone had that.

Thanks John.

Changed title to protect privacy - Admin

[LeoPa]

If you lock your post you could get more answers.

[napa]

Very sorry to hear about your reactions to Rituximab, I had six rounds of Rituximab and Bendamustine a four years ago and had very little reactions and none like this, so maybe it isn't usual.

[humaniquarian]

HU asked for my feedback on rituximab I did not have much difficulty with it at all over six treatments

[humaniquarian]

but remission was short lived. only around18 months , Hang In There

[bettyba]

Hello - really sorry to read the above. I always either email or callmy specialist nurse if I experience any pain or changes. I have had 2 rounds of Ritiximab over the last 5 years. Each time 6 treatments over 6 months. I only experienced an extremely itchy head during the infusion which was rectified by intravenus antihistamean. Make a note of the pain and anything else and get intouch with your health professionals. All the best x

[Jsceltic67 in reply to bettyba]

Thanks very much for the information, much appreciate it,so glad I joined the site,Thanks again.John.

[LenfromSoCal]

hola Jsceltic67,

I was receiving a maintenance infusion of Rituximab for every 3 months for 5 years with no other medications. Aside from feeling a little tired for a couple of days after each infusion, I seem to have tolerated this drug very well. I am very happy to now report that following a flow cytometry blood test and a bone marrow biopsy, I have no detectable disease and in complete remission😄. I am a 78 year old male and was first diagnosed with CLL over 14 years ago. I hope you will have a similar outcome.

Muchas saludos

Len

[Jsceltic67 in reply to LenfromSoCal]

Thanks Len,Great news for you,and appreciate the information you gave me,really helps this site with the information. Muchas Gracias John.