Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for January 2024

Living Water

Awe I love the sound of crystal clear mountain streams as they make their way down in a beautiful forest. It’s especially magical in winter with snow on the...

Awe I love the sound of crystal clear mountain streams as they make their way d...

skipro

•4 months ago

20 Replies

Pain in body

I am on W&W for last 2.5 Yeats. I am 76 years old. I am having body pain for last three years. Can it be related to CLL. My WBC went over 10000 in 2018 but I...

I am on W&W for last 2.5 Yeats. I am 76 years old. I am having body pain for las...

Wimco

•4 months ago

9 Replies

probiotics

hello! I want to ask the community a question. What do you know about consuming probiotics while having CLL? I am taking 1 capsule per day of Ibrutinib....

hello! I want to ask the community a question. What do you know about consumin...

Bixilon

•4 months ago

14 Replies

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Fed up

Wouldn’t ramp up dose today because doctor yesterday prescribed antibiotics for inner ear infection.

Wouldn’t ramp up dose today because doctor yesterday prescribed antibiotics for ...

Stacky66

•4 months ago

4 Replies

Will a COVID (or flu) vaccination affect my blood results?

If I have a blood test 3 or 7 days after a COVID (or flu) vaccination - will it affect my blood results? Should I perhaps make the vaccination after the blood...

If I have a blood test 3 or 7 days after a COVID (or flu) vaccination - will it ...

mantana

•4 months ago

5 Replies

transfer from Ibrutinib over to V/R

What’s the normal procedure in uk for transferring over from Ibrutinib to V/R,my Ibrutinib was stopped 4 weeks before new treatment started resulting in...

What’s the normal procedure in uk for transferring over from Ibrutinib to V/R,my...

Stacky66

•4 months ago

2 Replies

2mm scabs on legs

They go away after a few days and do not itch. Then a couple of days later the same thing again somewhere else on the legs. Anybody got a clue?

They go away after a few days and do not itch. Then a couple of days later the ...

Shepherd777

•4 months ago

1 Reply

Current SUPERNOVA Clinical Trial for Reformulated EVUSHELD for preventing COVID-19 infection for immune-impaired individuals

A Phase II sub-study of SUPERNOVA clinical trial (2023) is currently operating to test the efficacy and safety of AZD3152 as a component of a reformulated...

A Phase II sub-study of SUPERNOVA clinical trial (2023) is currently operating t...

Classicaljazz

•4 months ago

5 Replies

WBC and Neutrophils count dropped

Hello, I was diagnosed with CLL back in Nov 2022 and was on the O&V treatment plan. I finished the O in May 2023 but continued with the V, levofloxacin and...

Hello, I was diagnosed with CLL back in Nov 2022 and was on the O&V treatment p...

tenniselbowz

•4 months ago

14 Replies

GOODAY

I have been taking Ibrutinib for over five years and my bloods are fine. Recently I have started coughing up phlegm in the morning yet no coughing or...

I have been taking Ibrutinib for over five years and my bloods are fine. Rec...

fossicker

•4 months ago

3 Replies

To Trial or not to Trial?

I have decided not to trial. Going to just do the Venetaclax & Obin protocol. I’m just not in the mood for the extra appointments and brain damage that...

I have decided not to trial. Going to just do the Venetaclax & Obin protocol. ...

SunnyCA

•4 months ago

1 Reply

anyone having CLL and UC treatments? I have just been diagnosed with having ulcerative colitis.

Anyone having CLL and Ulcerative Colitis(UC) treatments? I have just been diagnosed with having ulcerative colitis. Steroids I am recieving for the UC seem...

Anyone having CLL and Ulcerative Colitis(UC) treatments? I have just been diag...

larrcow

•4 months ago

Be the first to reply

Good News and not so good news

Good morning everyone! Good news: My husband, who has Richter's and is in a trial at MD Anderson in Houston had his 3 month testing this past week. His...

Good morning everyone! Good news: My husband, who has Richter's and is in a tri...

laurieq

•4 months ago

4 Replies

Interesting article about the effects of Covid19 on your blood

Having caught Covid19 a short time after my allo SCT and with my anaemia ongoing, I was interested to see this article. This is not CLL specific but worth a...

Having caught Covid19 a short time after my allo SCT and with my anaemia ongoing...

Jm954

Administrator•4 months ago

2 Replies

End of Watch and Wait

I’ve not posted before, even though I’ve been a member of this exclusive club (that nobody wanted to join) since Nov 2020, ok not that long on W&W really, but...

I’ve not posted before, even though I’ve been a member of this exclusive club (t...

RedWyvern

•4 months ago

31 Replies

New Here- Bagelstreet225

Hello I was diagnosed with CLL/SLL in May 2023. I've been reading a number of posts. This is an excellent site. Thank you, Pat

Hello I was diagnosed with CLL/SLL in May 2023. I've been reading a number of...

bagelstreet225

•4 months ago

10 Replies

CLL and Allergies to Paint Fumes?

Hello Everyone. It's been a long time since I posted! I just had my kitchen cabinets refaced and repainted and now have red itchy eyes & skin, feet and hands...

Hello Everyone. It's been a long time since I posted! I just had my kitchen cabi...

Naisy

•4 months ago

7 Replies

sleeping longer than ever before

Hey, in W&W. Just thought I'd touch base about something that is starting to get regular. I normally would get 6-7.5 hrs sleep, and have never in my life...

Hey, in W&W. Just thought I'd touch base about something that is starting to ge...

Vlaminck

•4 months ago

22 Replies

Hearing loss

Just started low dosage of Ventoclax last week, previously on Ibrutinib.Problem I’m having is lymph nodes around neck seem to be affecting my hearing, I would...

Just started low dosage of Ventoclax last week, previously on Ibrutinib.Problem ...

Stacky66

•4 months ago

13 Replies

Immune system changes during BTKi treatment

Hi, as a relative newbie here, please forgive me if this is a really naive question. I am soon to begin treatment with a BTKi drug. I know that having (a...

Hi, as a relative newbie here, please forgive me if this is a really naive quest...

Fogey

•4 months ago

27 Replies

peripheral neuropathy

Hello, I am on R and V as a second line treatment having relapsed after a short number of months following two years of I and V on the FLAIR trial. I am...

Hello, I am on R and V as a second line treatment having relapsed after a short ...

hector66

•4 months ago

3 Replies

Measles risk

Hi all, Just watched the news and they said they were worried about a measles outbreak. Thanks to low vaccination rates. As a commuter, what should I...

Hi all, Just watched the news and they said they were worried about a measles o...

BellaBee10

•4 months ago

36 Replies

Favorable prognosis

When I was first diagnosed, (2020 summer) I was told that my tests indicated that I have a 'favorable prognosis). Can someone please explain what's the...

When I was first diagnosed, (2020 summer) I was told that my tests indicated tha...

Jessielab

•4 months ago

12 Replies

Acalabrutinib and Skin Cancers

I began taking Acalabrutinib three years ago as a participant in a clinical trial. I have enjoyed excellent success. However, recently I began breaking out in...

I began taking Acalabrutinib three years ago as a participant in a clinical tria...

spanish36

•4 months ago

18 Replies

Brukinsa

Just started taking, First 3 days were very rough. Not so bad now. Anyone else taking it?

Just started taking, First 3 days were very rough. Not so bad now. Anyone else t...

xv750

•4 months ago

6 Replies

itchy, itchy skin?

hi everyone, I know skin can get dry and itchy in winter - but my husband seems exceptionally itchy (mainly arms and legs, a bit on his back too) to the point...

hi everyone, I know skin can get dry and itchy in winter - but my husband seems...

OaktownA

•4 months ago

9 Replies

BRUKINSA UPDATE

This post is to update our online family about my progress since starting Brukinsa. My history is in my profile, but I will be six years diagnosed in March...

This post is to update our online family about my progress since starting Brukin...

wizzard166

•4 months ago

18 Replies

Under the weather

Hey all,Been feeling a bit under the weather the last three days..drainage, sinus, no fever, irritated throat. Woke up.this morning and found a small what I...

Hey all,Been feeling a bit under the weather the last three days..drainage, sinu...

ANewMe2024

•4 months ago

9 Replies

Vitamin D

I have it prescribed once a week D3 ( CLL & Multiple Sclerosis

Marco54

•4 months ago

5 Replies

remission 37th month

Yesterday at Christie’s - or there abouts - weirdly only 2yrs left on the flair trial. Next week I see Wythenshawe about my heart!

Yesterday at Christie’s - or there abouts - weirdly only 2yrs left on the flair ...

Sepsur

•4 months ago

12 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2024

Living Water

Pain in body

probiotics

Fed up

Will a COVID (or flu) vaccination affect my blood results?

transfer from Ibrutinib over to V/R

2mm scabs on legs

Current SUPERNOVA Clinical Trial for Reformulated EVUSHELD for preventing COVID-19 infection for immune-impaired individuals

WBC and Neutrophils count dropped

GOODAY

To Trial or not to Trial?

anyone having CLL and UC treatments? I have just been diagnosed with having ulcerative colitis.

Good News and not so good news

Interesting article about the effects of Covid19 on your blood

End of Watch and Wait

New Here- Bagelstreet225

CLL and Allergies to Paint Fumes?

sleeping longer than ever before

Hearing loss

Immune system changes during BTKi treatment

peripheral neuropathy

Measles risk

Favorable prognosis

Acalabrutinib and Skin Cancers

Brukinsa

itchy, itchy skin?

BRUKINSA UPDATE

Under the weather

Vitamin D

remission 37th month

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