New Here- Bagelstreet225

[bagelstreet225]

Hello

I was diagnosed with CLL/SLL in May 2023. I've been reading a number of posts. This is an excellent site.

Thank you,

Pat

[Newdawn Administrator]

Welcome Pat and pleased you’re finding the site helpful 😊

Best wishes,

Newdawn

[bagelstreet225 in reply to Newdawn]

I recently learned about the site. Thank you for accepting me.

[lankisterguy Volunteer]

Hi Pat / bagelstreet225,

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Welcome to our club, we are glad you find this site and the postings useful. You may have noticed a posting from a few hours ago, and an excellent answer by AussieNeil here:

healthunlocked.com/cllsuppo...

I highly recommend using the pinned post: healthunlocked.com/cllsuppo...

as a syllabus for several weeks / months of learning to climb the steep curve and become savvy with our shared health complications.

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Len

[bagelstreet225 in reply to lankisterguy]

Thank you. This is an excellent site. Informative, and up to date.

[bagelstreet225 in reply to lankisterguy]

Thank for accepting me, lankisterguy

[bagelstreet225 in reply to lankisterguy]

I mean, thank you for accepting me, lankisterguy. I was diagnosed in May 2023. I'm in the watch and wait world. According to NYU, I've probably had CLL/SLL, I have SLL, ten years.

[lankisterguy Volunteer in reply to bagelstreet225]

Hi again bagelstreet225,

Since you mention NYU- you may be interested in our CLL Society NYC support group,

We will meet by Zoom on Sunday Feb 11 at 3:00 and have a guest speaker at 4:00- Meghan Thompson MD from Memorial Sloan.

If you or anyone else wants to join click this link to sign up with the CLL Society: cllsociety.wpengine.com/ven...

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And BTW- there is a long list of CLL expert doctors in New York, cllsociety.org/newly-diagno...

but to my knowledge none are at NYU.

There appear to be numerous NH Lymphoma specialists at NYU Langone, but not CLL specialists that I can see on their site.

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Len

[neurodervish]

Welcome Pat!

[bagelstreet225]

I will visit and often. There is much to learn. By the way, I get some of my information from the CLL Society site and Leukemia and Lymphoma Foundation

[bagelstreet225]

What are your thoughts about CAR T liso cel? It received priority review for relapse and refractory CLL. Approval is set for March 2024.