Good News and not so good news: Good morning... - CLL Support

CLL Support

23,257 members39,957 posts

Good News and not so good news

laurieq profile image
4 Replies

Good morning everyone!

Good news: My husband, who has Richter's and is in a trial at MD Anderson in Houston had his 3 month testing this past week. His PET scan shows no disease and he is MRD in the blood and bone marrow. We feel so blessed and fortunate to have the care we are receiving.

Not so good news - when we got home from MDA on Wednesday, he felt poorly. (He felt fine the entire time we were there). Was chilling and coughing and his fever spiked to 101.4 F. Lo and behold - COVID positive. I contacted his team at MDA the next day and he has been on Paxlovid and is over the worst of it. (I am also positive - yippee!!) He had to stop his Venetoclax, Pirtobrutnib and Flecanide for the duration of Pax therapy. He continues to have a cough but no fever.

Thank you for this wonderful community which continues to supply great information and support to us all.

Praying God's blessings for all of us in 2024.

Laurie

Written by
laurieq profile image
laurieq
To view profiles and participate in discussions please or .
Read more about...
4 Replies
ANewMe2024 profile image
ANewMe2024

Hi Laurie. I'm so.glad to hear the news! I'm sorry to hear that Covid has been a factor. Sending healing prayers to your hubby.

Junebug20 profile image
Junebug20

I’m sorry to hear you both picked up COVID. Hopefully you both will be on the mend soon.

Quick question. What symptoms did your husband have that led to his diagnosis of Richter’s?

thompsonellen2 profile image
thompsonellen2

Glad to hear the good news. COVID on top of that is just unreal. I had a cough for 6-8 weeks after COVID.

Nurseq profile image
Nurseq in reply tothompsonellen2

I have recovered but he’s still coughing a lot and feeling like a truck ran over him.

Not what you're looking for?

You may also like...

Isn't it time for some Good NEWS??

My husband started Ibrutinib in April after his BR chemo failed. He is 11q deleted. We were just at...
kathymac52 profile image

Good News

I had my monthly appointment with my haematologist this week and received the good news that I am...
jaypax profile image

Hip Replacement while on treatment??

My husband, who is in a Clinical Trial at MDA for Richter's, needs a hip replacement badly - such...
laurieq profile image

CLL, Trisomy12, unmutated, NOTCH1 - NOT SURE WHERE TO GO - WHAT TO DO

I was diagnosed with CLL 12 years ago. WBC' s have been rising year after year, I am finally to the...
misterbee profile image

COVID and CLL -- A little good news

I was diagnosed with CLL 2 years ago and ever since then the world has been engulfed with the COVID...
DylanPxxx profile image

Moderation team

See all
Newdawn profile image
NewdawnAdministrator
AussieNeil profile image
AussieNeilAdministrator
CLLerinOz profile image
CLLerinOzAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.