Hope this helps!

[MiaRiley21]

Hi everyone, I do not have CLL but I do have the itchy, pins and needles prickly feeling on my upper arms at night when I cover up. Once it starts it's relentless. I spoke to my Dermatologist about it and she said it sounded like a nerve problem. She prescribed me Fluocinonide cream 0.05 percent. I rub a bit on the affected area and I will say it takes a minute, but will ease up or stop all together. This cream has been a life saver for me. I know how it is to try and get to sleep with the intense itching and prickly feeling. It's frustrating. I hope this information will give someone relief.

[GMa27]

Do u know someone with CLL? Curious how you would come onto this forum & give this information if you knew nothing about CLL.I had that stinging pain on my upper arms 25 years before I had CLL. No doctors could diagnose it. It was extremely debilitating all those years. My father had it too. We both ended up having CLL later in our lives. I hear many complaints about similar itching from CLLers, so I have to believe it is connected to it.

Ice, Aleve, acupuncture and Arnicare gel have helped me thru the years. I started to treat it like a pain years later & not an itch. Only relief I had for 6 months was taking Aleve everyday. Not recommending that but for me it was the only way. After years of acupuncture, it disappeared. So far it hasn't come back. In the early years it was 24/7...later it was only at nite & usually started in Sept and stopped a few months in the summer. It was weird. Will look into ur suggestion if it ever happens to me again. I hope not cuz it was actually worse than chemo to have that burning, itching, stabbing, painful experience. I read its a strong steroid & can suppress immune system. It may be ok to use temporarily for us but not long term. It treats psoriasis. Definitely need to speak to hematologist before trying.