up coming treatment with rituximab for pure red blood cell aplasia and CLL

[Jimmy_9]

Hi All

I was diagnosed with CLL in 2019 and never had much issues with bloods only being slightly elevated and some under arm lymph nodes. The start of this year I was diagnosed with pure red blood cell aplasia, after taking Cyclosporine it bounced back a bit but after stopping the meds the red blood has dropped and now I am starting Rituximab next Thursday.

at 46 I’m supper stressed and just looking for anyone that has any experience with Rituximab.

Thanks ( I’m a little all I’ve the place in my head at the moment)

[lankisterguy Volunteer]

Hi Jimmy_9

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Here is a link to the 14 past postings that mention aplasia:

healthunlocked.com/cllsuppo...

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And the 430 times Rituxan was mentioned in a post:

healthunlocked.com/cllsuppo...

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You can also see some info in the box on this page labeled "Related Posts" - it will be in the upper right column on computer screens and way below on mobile devices like tablets or cell phones.

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Len

[Tangolover]

Hi, Jimmy, I took treatments of Rituximab once a month for six months. The day of the infusion, I had nausea (the staff will give you things to combat that--what helped me most was Ativan). Sometimes they have to try different anti nausea meds to see which works best for you. After sleeping off the Ativan, I was fine the next day and had good energy. I'm wishing all the best for you!

[StBon]

Hi. I get your stress. I was diagnosed 11+ years ago and was on Watch and Wait for about 1.5 years. Then I started on IV Rituximab once a month for about 12 months. It worked wonderfully and gave me another 1.5 years without treatment. The only side effects I had was feeling like I had a mild case of the flu for 2-4 days: mild nausea, some aches, fatigue. Tried to schedule it Thursday mornings so I was usually good to go by Sunday. If it matters, I am now 80 and still doing volunteer work 25 hours a week, just came back from a week of vacation during which I drove close to 1,000 miles. So be of good cheer, live long, and prosper!