rower49: I want to wish everyone the best... - CLL Support

CLL Support

22,532 members38,709 posts

rower49

rower49 profile image
2 Replies

I want to wish everyone the best Christmas they can handle. Since starting treatment 3 months ago my WBC has gone from 140 to 82 same with my lymphocyte count. Everything is in normal range. Finally going in right direction and no side-effects from treatment except increased fatigue. I also have a rare condition associated with the CLL-C1 deficiency (1 in a million have it) and take injection once every 2 weeks-I inject myself and the treatment is funded by the rare disease pharmaceutical company which is good as it is $12,000. a month. Soon the injection will be extended to every 3 weeks. Before the New Year I wanted to wish everyone the best-especially joy in their life and thank-you for sharing.

Written by
rower49 profile image
rower49
To view profiles and participate in discussions please or .
2 Replies
Gradyboy profile image
Gradyboy

Merry Christmas 🎄

LeoPa profile image
LeoPa

Merry Christmas 🎄!

You may also like...

Going down hill fast.

wondering when I start treatment doctor. said soon. Just hope for remission . Best wishes to...

Post FCR treatment 3 months blood test just taken results lower then expected

Hi everyone! I am new to this site. I completed a 6 month cycle of FCR and I am now 3 months post...

Peripheral neuropathy

Hi to the CLL community , on cycle 8 of my V and O treatment and now on Venetoclax for the last 4...

MRD Negative in the Bone Marrow - clinical trial update

relapsed and refractory patients. Still commuting every 3 months from Australja for my one day...

Finished my second opinion today

because it’s not in your blood. He wants to check on me every 6 months to see how things are going....