Venetoclax

[Racing1961]

I’ve been on Venetoclax for 14 months now and would just like to say that this drug has done wonders for me. My bloods have not been this good in 6 years. I have suffered very few side effects and would recommend it to anyone due to start treatment. As you can see my bloods are virtually all at normal levels now.

[narl]

Excellent! I am supposed to start it soon, glad to see you're doing so well.

[Hidden]

Racing1961

Crying reading this, tears of joy for you!!!

Yay! Thank you so much for sharing this!!

Cookie~

[roszika]

Good one. I also was on V for 2 years and my blood tests have been normal now for 18 months

[Edalv in reply to roszika]

How much longer do you anticipate you need to be on V…? Thanks 🙏

[Racing1961 in reply to Edalv]

Another 10 months.

[Schubert1870]

I love reading about your positive Venetoclax experience! So elated for you. I find it has been much better for me than Imbruvica was, side effects wise.

[thb4747]

I’ve been taking Venetoclax (half dose since November 2018) for 4.5 years now and never felt better!

All the best to you.

[Pearlpink]

as a newbie to venetoclax that’s so fabulous to hear! Thank you!

[Dawson21]

Me too - 16 months in - mostly OK but a struggle to keep Neutrophils above 1.0 let alone 2-8. Which reminds me - G-CSF jab due this morning (weekly self- administered)

[EJM52545]

Such great and encouraging news! I totally agree with your post; my bloods are also in great shape after 16 months on this very same medication. So happy for you and can’t wait for the 2 year mark to see what’s next for us. All the best!!

[Mumu1 in reply to EJM52545]

this is wonderful news! Hope it’ll last! - I’m currently on Calquence but the side effects are too bad. My doc wants me to goon Venetoclax plus Obituzuman, but said I would only need to take it for 6 month. But all the posts here mention much longer durations.

[Racing1961 in reply to Mumu1]

Hi Mumu1, I am on Venetoclax for 2 years. I think that is the protocol here in the UK. Not sure why they only want you to take it for only 6 months 🤔

[Mumu1 in reply to Racing1961]

I was under the impression that - unlike Ibrutinib and Alcalibrutinib - Venetoclax is only needed for a limited time (typically 1 year as far as I know). I never heard of just 6 months either.

Thank you very much for your reply!

[Wendy328 in reply to Mumu1]

My Dr (in USA) just gave me info about Venetoclax. He indicated on it for one year, once daily and ramp up after 5 weeks plus 6 months of IV treatment. Wishing you great results!

[Mumu1 in reply to Wendy328]

Hello Wendy, my apologies, I didn’t see your reply until today. So, thank you for taking the time to share your version!

[Tangolover]

On my second month now with Venetoclax and my bloodwork is all going in the right direction! Can keep side effects at bay by eating high fat meal (which I love!) with it! Glad you are doing well, too!

[Edalv]

I am glad to hear you are doing well on V… excellent… 👍

[CLLCalifornia-USA]

Congratulations on such good news. Thanks for sharing. Sally