Posts - CLL Support | HealthUnlocked

CLL Support

22,865 members • 39,227 posts

All posts for August 2022

anyone here had wright loss for no apparent reason ? I’ve lost 25 pds over the last 3 years . I’m on imbruvica for many years n feel fine

weight loss

Dmdtennis

•2 years ago

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Still Testing Positive for COVID

Hello Everyone. I have CLL. I tested positive for Covid a week ago Sunday. Started Paxlovid the day after. I've improved tremendously. Hubby tested...

Hello Everyone. I have CLL. I tested positive for Covid a week ago Sunday. Sta...

Naisy

•2 years ago

6 Replies

For those of you in W & W -- strong olive oil?

Came across this article. Don't know if someone has already posted but if not, think might be of interest to those in W&W. It is a trial study from this...

Came across this article. Don't know if someone has already posted but if not, ...

Vlaminck

•2 years ago

39 Replies

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venclexta side affects

Has anyone taking venclexta had problems with their teeth chipping? My teeth seem to be disintegrating.

Has anyone taking venclexta had problems with their teeth chipping? My teeth se...

gardenman68

•2 years ago

24 Replies

FISH ATM what does it mean?

I received my latest FISH back. I have had 4 over the years. My first FISH came back 13q deleted, 53%. Second one was 13q deleted 87%. Third FISH was 13q...

I received my latest FISH back. I have had 4 over the years. My first FISH came ...

Big_Dee

•2 years ago

25 Replies

The Dragon is Rearing It's Ugly Head

Here is a link to my blog: https://drlaverne.blogspot.com/2022/07/the-dragon-is-rearing-its-ugly-head.html Please let me know if you are able to subscribe. I...

Here is a link to my blog: https://drlaverne.blogspot.com/2022/07/the-dragon-is...

DrLV

•2 years ago

10 Replies

Clinical Trial - NVG 111-101

I start this Monday 15th at Royal Free Hospital. Does anyone have any experience of this? Seems to offer significant benefits, although I have some minor,...

I start this Monday 15th at Royal Free Hospital. Does anyone have any experience...

thelutondodger

•2 years ago

9 Replies

Stopping Imbruvica or reducing dosage after ClonoSeq?

ClonoSEQ blood test shows only a trace<1 of cll cells. Yay! My doc was ready to stop Imbruvica, which I have been taking the last 5 years. Currently at 280 mg...

ClonoSEQ blood test shows only a trace<1 of cll cells. Yay! My doc was ready to ...

clladytime

•2 years ago

27 Replies

Email to MP

I emailed my MP this evening regarding the Evushekd situation, this is the repsonse I got: Thanks Alas, clinical decisions are not made by politicians. The...

I emailed my MP this evening regarding the Evushekd situation, this is the repso...

Lady_Lymington

•2 years ago

71 Replies

Tics and Calquence

Good morning everyone .. its a beautiful Sabbath morning here in southern oregon USA ,,,, i have been reading the posts about the tic bites .. so i thought i...

Good morning everyone .. its a beautiful Sabbath morning here in southern orego...

craterlake

•2 years ago

4 Replies

Attention proud owners of 13q deletion-Which prognostic marker is responsible for the clinical heterogeneity in CLL with 13q deletion?

In a study, comparing the efficiency of MLPA with cytogenetic and FISH, it was shown that patients with del(13)(q14.3q14.3) > 70% had an unfavorable prognosis...

In a study, comparing the efficiency of MLPA with cytogenetic and FISH, it was s...

Yalokin

•2 years ago

5 Replies

Thank you

I just wanted to say thank you to everyone who has posted and lifted my spirits. You are all correct, and I am feeling determined to not give in to my...

I just wanted to say thank you to everyone who has posted and lifted my spirits....

Horatio2

•2 years ago

15 Replies

A PRACTICAL GUIDE TO UNDERSTANDING KAPLAN-MEIER CURVES

If you don't want to get a headache or confused (like me) don't read this post. I read it because I'm a masochist. And the reason I put it here is because...

If you don't want to get a headache or confused (like me) don't read this post. ...

Yalokin

•2 years ago

1 Reply

Antibodies and vaccines

I was interested in the post from Aussie Neil regarding Antibodies and Vaccines. Since Covid started I have had two Covid jabs prior to starting...

I was interested in the post from Aussie Neil regarding Antibodies and Vaccines...

kitchengardener2

•2 years ago

29 Replies

Starting O

hello all So finally moving to V+O+A. Hb is low and some subcutaneous injections of EPO keeps it stable. Rest tests are in range including...

hello all So finally moving to V+O+A. Hb is low and some subcutaneous injectio...

Soultouch

•2 years ago

6 Replies

non live vaccine for shingles

hi everyone, just wondering if anyone else has suffered these side effects, l have felt very poorly 😢 banging headache, fatigue, and shivering in this...

hi everyone, just wondering if anyone else has suffered these side effects, l ...

sun_flower

•2 years ago

49 Replies

smudge cells? What does it mean? High potassium from white blood cells?

does anyone else have high potassium? I was told to drink 100 oz of water daily isn’t that too much water? Also what are smudge cells?

does anyone else have high potassium? I was told to drink 100 oz of water daily...

Createdpath

•2 years ago

17 Replies

UK Department of Health: Evusheld's in the long grass

This morning BBC Radio 4 reported that the DOH announced that Evusheld will not be available in the UK this year (it has regulatory approval). The DOH has...

This morning BBC Radio 4 reported that the DOH announced that Evusheld will n...

bennevisplace

•2 years ago

51 Replies

Recalls, Market Withdrawals, and Safety Alerts

I was searching for something else entirely when I found a recall for Magnesium Citrate I had bought last week and never used THANK GOODNESS ! The thing is,...

I was searching for something else entirely when I found a recall for Magnesiu...

cllady01

Former Volunteer•2 years ago

6 Replies

Erythema Migrans

I have CLL/SLL , diagnosed in 2010. Have been taking BTK inhibitors since 2017. First Imbruvica and the last two and a half years Calquence. A small reddish...

I have CLL/SLL , diagnosed in 2010. Have been taking BTK inhibitors since 2017....

zsuzsiB

•2 years ago

13 Replies

Immune Response - how to interpret values? (Evusheld)

Hello, My oncologist insists that per current measurement result for SARS-CoV-2 Abs semi-Quant of > 2500.00 U/mL (High), “you have a strong protection”...

Hello, My oncologist insists that per current measurement result for SARS-CoV...

Mumu1

•2 years ago

17 Replies

recent immunotherapy trial results

In reading the recent immunotherapy trial reports it has me worried and it makes me wonder if my husband will go into remission...He is doing very well (with...

In reading the recent immunotherapy trial reports it has me worried and it makes...

spi3

•2 years ago

11 Replies

Platelets and starting treatment

Hi All, Hope everyone is doing well today. I recently had blood work at my GP for my yearly routine check up. Looks like my platelets dropped to 131 from...

Hi All, Hope everyone is doing well today. I recently had blood work at my GP ...

Carrievc

•2 years ago

17 Replies

CLL & AS

Hello I was wondering if there is anyone else with both CLL (I am watch and wait) and Ankylosing Spondylitis? I see my rheumatologist next week and she...

Hello I was wondering if there is anyone else with both CLL (I am watch and ...

Rosiehiker

•2 years ago

5 Replies

Travel Insurance - Insurancewith.com

Hi All Any of you guys in the UK used a travel insurance company called Insurancewith.com? I have ran a quote through but was uncertain how to answer some...

Hi All Any of you guys in the UK used a travel insurance company called Insuran...

Summer5

•2 years ago

9 Replies

sweating

recently dx with CLL/SLL on umbruvica for almost 2 months Having profuse sweating 24/7 Can’t sleep due to sweats occurring every 30-60 minutes for last...

recently dx with CLL/SLL on umbruvica for almost 2 months Having profuse swe...

Islandvibes

•2 years ago

9 Replies

Yet another disconcerting investigation into [b]Dietary Supplement Products [/b]

I've stated many times that we shouldn't take supplements to boost our immune system, because where there is any evidence that they might work, it's by...

I've stated many times that we shouldn't take supplements to boost our immune s...

AussieNeil

Administrator•2 years ago

11 Replies

Zanubrutinib Bests Bendamustine-Rituximab in Previously Untreated CLL/SLL

The overall response rate was 94.6% in the zanubrutinib arm and 85.3% in the bendamustine-rituximab arm. The median duration of response was not reached and...

The overall response rate was 94.6% in the zanubrutinib arm and 85.3% in the ben...

Yalokin

•2 years ago

23 Replies

Antibiotics I can take with Calquence and Venetoclax

Good morning! Does anyone know the antibiotics I can take for sinus Imfection while also on the combo treatment of Calquence and Venetoclax?

Good morning! Does anyone know the antibiotics I can take for sinus Imfection w...

DGG1931

•2 years ago

3 Replies

still covid positive day 20

wondering if anyone has any experience with this. Tested covid positive July 21, had bebtelovimab July 22, still rapid test positive. Starting to get pretty...

wondering if anyone has any experience with this. Tested covid positive July 21,...

Davidcara

•2 years ago

3 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2022

anyone here had wright loss for no apparent reason ? I’ve lost 25 pds over the last 3 years . I’m on imbruvica for many years n feel fine

Still Testing Positive for COVID

For those of you in W & W -- strong olive oil?

venclexta side affects

FISH ATM what does it mean?

The Dragon is Rearing It's Ugly Head

Clinical Trial - NVG 111-101

Stopping Imbruvica or reducing dosage after ClonoSeq?

Email to MP

Tics and Calquence

Attention proud owners of 13q deletion-Which prognostic marker is responsible for the clinical heterogeneity in CLL with 13q deletion?

Thank you

A PRACTICAL GUIDE TO UNDERSTANDING KAPLAN-MEIER CURVES

Antibodies and vaccines

Starting O

non live vaccine for shingles

smudge cells? What does it mean? High potassium from white blood cells?

UK Department of Health: Evusheld's in the long grass

Recalls, Market Withdrawals, and Safety Alerts

Erythema Migrans

Immune Response - how to interpret values? (Evusheld)

recent immunotherapy trial results

Platelets and starting treatment

CLL & AS

Travel Insurance - Insurancewith.com

sweating

Yet another disconcerting investigation into [b]Dietary Supplement Products [/b]

Zanubrutinib Bests Bendamustine-Rituximab in Previously Untreated CLL/SLL

Antibiotics I can take with Calquence and Venetoclax

still covid positive day 20

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Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2022

anyone here had wright loss for no apparent reason ? I’ve lost 25 pds over the last 3 years . I’m on imbruvica for many years n feel fine

﻿Still Testing Positive for COVID

For those of you in W & W -- strong olive oil?

venclexta side affects

FISH ATM what does it mean?

The Dragon is Rearing It's Ugly Head

Clinical Trial - NVG 111-101

Stopping Imbruvica or reducing dosage after ClonoSeq?

Email to MP

Tics and Calquence

Attention proud owners of 13q deletion-Which prognostic marker is responsible for the clinical heterogeneity in CLL with 13q deletion?

Thank you

A PRACTICAL GUIDE TO UNDERSTANDING KAPLAN-MEIER CURVES

﻿Antibodies and vaccines

Starting O

﻿non live vaccine for shingles

smudge cells? What does it mean? High potassium from white blood cells?

﻿UK Department of Health: Evusheld's in the long grass

Recalls, Market Withdrawals, and Safety Alerts

Erythema Migrans

Immune Response - how to interpret values? (Evusheld)

﻿recent immunotherapy trial results

Platelets and starting treatment

﻿CLL & AS

Travel Insurance - Insurancewith.com

sweating

﻿Yet another disconcerting investigation into [b]Dietary Supplement Products [/b]

Zanubrutinib Bests Bendamustine-Rituximab in Previously Untreated CLL/SLL

Antibiotics I can take with Calquence and Venetoclax

still covid positive day 20

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive

Still Testing Positive for COVID

Antibodies and vaccines

non live vaccine for shingles

UK Department of Health: Evusheld's in the long grass

recent immunotherapy trial results

CLL & AS

Yet another disconcerting investigation into [b]Dietary Supplement Products [/b]