Update after uMRD/completed antiobiotic - CLL Support

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Update after uMRD/completed antiobiotic

McBuster profile image
5 Replies

I am not feeling very good at all. I was hoping that after I completed the round of antibiotics on Monday, that I would be seeing some improvement. Every day this week seems to be getting worse. My ankles are swollen, and my knees are also swollen. I have joint pain in the ankles, knees, wrist and shoulder. Today I can barely walk it is so painful. I have been having this issue off and on for the past 2 months. I was hoping that after I completed the Venetaclax things would get better (still extremely happy to be uMRD). I am so tired all the time and nauseous. I am not sure what to do. The only medication I am still taking is Acyclovir and Chlorthalidone. Anyone else having these issues? I have reached out to my doctor this morning.

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McBuster
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CycleWonder profile image
CycleWonder

No experience with the medications. Just hoping you and your medical team find a way for you to enjoy your uMRD!

Mystic75 profile image
Mystic75 in reply toCycleWonder

Same here, McBuster - hope you are feeling better soon!

cllady01 profile image
cllady01Former Volunteer

Buster, the following link is information about Chlorthalidone which MAY be your problem???

Please read the list of side effects I have copied from the link.

I am not medically trained so I am only suggesting you rule out this medicine by talking to your Dr who prescribed the medicine today to get a medical view on your symptoms and ask for a blood test of electrolytes.

Chlorlorthalidone may cause serious side effects. Call your Dr. if you have:

a light-headed feeling, like you might pass out;

low sodium--headache, confusion, slurred speech, severe weakness, vomiting, loss of coordination, feeling unsteady;

low potassium--leg cramps, constipation, irregular heartbeats, fluttering in your chest, increased thirst or urination, numbness or tingling, muscle weakness or limp feeling;

low magnesium--dizziness, irregular heartbeats, feeling jittery, muscle cramps, muscle spasms, cough or choking feeling; or

kidney problems--little or no urination, swelling in your feet or ankles, feeling tired or short of breath.

Common side effects of chlorthalidone may include:

low blood pressure (feeling light-headed);

kidney problems;

dizziness; or

an electrolyte imbalance (such as low levels of potassium, sodium, or magnesium in your blood).

Please let us know how things go

McBuster profile image
McBuster in reply tocllady01

Thank you. I will bring this to their attention.

Poodle2 profile image
Poodle2

Sorry to hear you are still feeling so unwell. I think it's very likely if you did have an infection that it still has not cleared. I have had an ongoing infection since mid March.

I have had a 5 day course of Amoxicillin, another 7 day course a week after that, 2 weeks of Co-Amoxiclav a week later, prophylactic antibiotics two weeks after that (still on those), IV antibiotics and another week of Co-Amoxiclav orally and two weeks later IV pipetacillin+taxobactam for 3 days and another course of Co-Amoxiclav orally...it's been nearly 5 months, unbelievable...if your immune system is beaten, maybe you just can't shake it off either?

I'm glad you got in touch with your doctor. I had terrible fatigue even when I wasn't sick but every time the infection flared up, it was unbearable. Nausea can be a result of antibiotics too, at least I get it sometimes.

I really hope you can get to the bottom of it soon as I hate to hear you cannot fully enjoy the fact you have done so well with your treatment. Please let us know how things are going for you.

Petra

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