Starting O: hello all So finally moving to V+O... - CLL Support

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Starting O

Soultouch profile image
6 Replies

hello all

So finally moving to V+O+A.

Hb is low and some subcutaneous injections of EPO keeps it stable. Rest tests are in range including spleen/liver/kidney.

Starting O today in critical care as my doc wants to be extra careful. Already on A past one week. Will be starting V after 15 days. This is some new protocol received from MD Anderson Texas.

Any tips???

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Soultouch profile image
Soultouch
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6 Replies
Poodle2 profile image
Poodle2

You can read my posts if you would like to see my O+V journey.

All the best.

Petra

CycleWonder profile image
CycleWonder

I don’t have any tips but am very interested in your assessment of your treatment protocol.

I hope it all goes smoothly.

schmitthj007 profile image
schmitthj007

I think this is one of the most powerful combinations available attacking CLL from different and complimentary pathways. In general well tolerated but not necessarily without hiccups. You are in great hands and they are very able to deal with whatever may come your way. You can read my profile . Finished this combination 2.5 years ago and still uMRD with blood tests every 3 months.

All the best

Heiko

Soultouch profile image
Soultouch in reply toschmitthj007

Hello HeikoAm not at MDA but under a CLL specialist who is connected with best trials going on at MDA. The good part is that we have one of the best team overlooking the case & the observation is amazing.

Trial of O went smoothly & now we will finish the main course by tomorrow morning. Hopefully that goes well too!!

Your case looks motivating & so does Aussieneil’s. Am positive 🤞

Soultouch profile image
Soultouch

Ok my doc just came. Blood reports look ok. No neutropenia yet. Getting discharged as no side effects experienced in 24 hours. Now next admission will be in 2 weeks for V ramp up. Hopefully all good happens till then. Neutrophils 3.2, platelets 195000, hb is still low (wonder why?).

Hiker13 profile image
Hiker13 in reply toSoultouch

Glad all is going well so far. In June I finished a one year treatment plan with obinutuzumab and venetoclax. It was smooth journey; hope yours is the same. I am now in remission. I was hospitalized for first V dose and also the first ramp up. No problems eith time. These are great drugs; we are blessed to have them.

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