Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for January 2022

Chemo Pill

2 mo on chemo pill,I have all kind symptoms almost word for word on the package list of symptoms.

2 mo on chemo pill,I have all kind symptoms almost word for word on the package ...

davyc49

•2 years ago

2 Replies

Is it ever too soon to start treatment?

I am approaching the time when I am going to start treatment. My numbers continue to get worse and an thinking it might be better to start treatment sooner...

I am approaching the time when I am going to start treatment. My numbers contin...

Dexterdoggg

•2 years ago

10 Replies

Lymph node removal

Recently had hernia repair and surgeon removed lymph node. Does removal cause lymphedema

Recently had hernia repair and surgeon removed lymph node. Does removal cause ly...

Mackiec1108

•2 years ago

10 Replies

Want to take advantage of all our features? Just log in!

CLL and Eustachian tube blockage

CLL causing Eustachian tube blockage? Does anyone suffer from this condition? Is it possible for the lymph nodes in the head to swell making drainage from the...

CLL causing Eustachian tube blockage? Does anyone suffer from this condition? I...

nigeldodd

•2 years ago

27 Replies

CLL and fertility

My husband left a sperm sample for IVF after using Imbruvica. Does anybody know if there are any risks for the baby?

My husband left a sperm sample for IVF after using Imbruvica. Does anybody know ...

Ehvt

•2 years ago

2 Replies

Anyone here in Toronto ?

Hi, I'm new to the site - just diagnosed. Was wondering if there is anyone here that's local to me - Toronto, Canada.

Hi, I'm new to the site - just diagnosed. Was wondering if there is anyone her...

Cave123

•2 years ago

69 Replies

No antibodies against Covid and evushield

No COVID antibodies and evushield I will be meeting with my hematologist soon for a regularly scheduled appointment. I would like some feedback from the group...

No COVID antibodies and evushield I will be meeting with my hematologist soon fo...

Health50

•2 years ago

9 Replies

Is there anyone with M.E. and CLL ?

is there anyone especially in the UK , with Myalgic Encephalomyelitis. (M E ) and. CLL ? As you can see on my profile I was diagnosed with ME a long time...

is there anyone especially in the UK , with Myalgic Encephalomyelitis. (M E ) ...

Greencyclist

•2 years ago

5 Replies

Antivirals monoclonal antibodies

Someone posted a list of hospitals and units that administer the antibodies and antivirals in the UK. I've searched for list but cannot find it. Could any of...

Someone posted a list of hospitals and units that administer the antibodies and ...

KrisBren01

•2 years ago

5 Replies

Building antibodies post remission

Forgive me if this has previously been addressed. Have any findings been published regarding CLL patients’ ability to more adequately develop antibodies when...

Forgive me if this has previously been addressed. Have any findings been publish...

Survivor1951

•2 years ago

14 Replies

Covid community or CLL

Is it just me or does there need to be a community dedicated to Covid support so that this community can be about CLL support?

Is it just me or does there need to be a community dedicated to Covid support so...

Hidden

•2 years ago

52 Replies

Acalabrutinib side effects

I am starting Acalabrutinib tomorrow, 100mg twice a day, I am a bit worried, when will the side effects start and finish. This is for anyone who have used it...

I am starting Acalabrutinib tomorrow, 100mg twice a day, I am a bit worried, whe...

19930B

•2 years ago

32 Replies

Saved posts

How can I access saved posts please .

Notmuchenergy

•2 years ago

8 Replies

Monoclonal antibody infusion

My partner who has CLL and on venetoclax ramp up(currently on 200mg) tested positive for covid six days ago, he received the monoclonal antibody infusion on...

My partner who has CLL and on venetoclax ramp up(currently on 200mg) tested posi...

Alfiebhoy

•2 years ago

25 Replies

3rd Covid Infection

My luck continues with my CLL journey, 13 months since diagnosis and start of treatment, I now on my 3rd Covid Infection. Alpha half way through my...

My luck continues with my CLL journey, 13 months since diagnosis and start of t...

stevesmith1964

•2 years ago

13 Replies

Just had my 4th Vaccination. This time Moderna

After three doses of Pfizer my 4th was Moderna. Incredibly well organised volunteers in the indoor tennis courts of a hotel. Actual centre felt cavernous and...

After three doses of Pfizer my 4th was Moderna. Incredibly well organised volunt...

Harvist

•2 years ago

6 Replies

Nightsweats

Hi All, was diagnosed 2018, and on watch and wait, I had my four monthly monitoring, 4 weeks ago, and all was ok. I had my first proper night sweat last...

Hi All, was diagnosed 2018, and on watch and wait, I had my four monthly monit...

Vindicatrix

•2 years ago

9 Replies

Pain in thought and arms

Hi I’m on watch and wait atm diagnosed 2 years ago with a count of 7 at the moment Can any one tell me if this is related to CLL I started getting throbbing...

Hi I’m on watch and wait atm diagnosed 2 years ago with a count of 7 at the mom...

Kullie1974

•2 years ago

8 Replies

41yr old, new to this

Hi all. Cll patient here, lymph nodes in neck increase in size then go back a few weeks later. It pushes my throat and can make it difficult to swallow. Do we...

Hi all. Cll patient here, lymph nodes in neck increase in size then go back a fe...

FoxAngelus

•2 years ago

3 Replies

Back to back ivig and Evusheld?

I was presented the opportunity to get Evusheld today because I receive ivig and qualify for emergency use. I set up an appointment for Tuesday but I have my 6...

I was presented the opportunity to get Evusheld today because I receive ivig and...

CoCoLuna11

•2 years ago

7 Replies

Chlorinated water protective for CLL?

Wow, surprising. Just found out my water filter hadn't been working and I've been drinking different levels of chlorinated for ? years. So just quickly...

Wow, surprising. Just found out my water filter hadn't been working and I've be...

Vlaminck

•2 years ago

33 Replies

Lymphocyte count and Covid vaccine

Anyone’s lymphocytes count tick up after a dose of the Moderna Covid vaccine?

SunnyCA

•2 years ago

12 Replies

Is inositol, hexaphosphate form, bad for CLL?

Hi, all. IP6 (a form of inositol called inositol hexaphosphate readily available as a supplement) has been shown to be very anti-cancer, including at least...

Hi, all. IP6 (a form of inositol called inositol hexaphosphate readily availabl...

Vlaminck

•2 years ago

8 Replies

New Dana Farber Research

I get the newsletter online from Dana Farber, and today in the email was a report on a new finding that can impact our future treatment. Dr Jennifer Brown...

I get the newsletter online from Dana Farber, and today in the email was a repor...

wizzard166

•2 years ago

12 Replies

You, yes you - have a direct window on the beach and the fauna lazing in the sand !

You have a direct window, all day and all night on the beach, or the downtown plaza by webcams on the internet. Example: WEBCAM PLAZA COLON SANTO DOMINGO shows...

You have a direct window, all day and all night on the beach, or the downtown pl...

janvog

•2 years ago

10 Replies

Low platelets 54 down from 72

Hi I have a low platelet count and have to reduce venetoclax from 400 to 300 daily. Has anyone else had this experience Alos on monthly obinutuzumab. Thanks...

Hi I have a low platelet count and have to reduce venetoclax from 400 to 300 da...

Cazma

•2 years ago

13 Replies

Virtual Town Hall Meeting Northwester University

Wednesday, January 12, 2022 Covid-19’s Omicron variant impact

Edalv

•2 years ago

2 Replies

LDH

Hi all. Has everyone experienced about LDH? My numbers goes up. Wbc is 126000 and Rbc 3.32 Hgb 10.9 plt 135000 but LDH iz 920. According to lab the LDH must...

Hi all. Has everyone experienced about LDH? My numbers goes up. Wbc is 126000 an...

Hidden

•2 years ago

5 Replies

W&W avoided second infection of Covid

In Oct 20, my Dad 77 and on w&w for 7 + years unfortunately got Covid pre vaccines. He was moderately ill, but thankfully fully recovered (my Mum got Covid...

In Oct 20, my Dad 77 and on w&w for 7 + years unfortunately got Covid pre vaccin...

bethcarla

•2 years ago

22 Replies

w

Hello and happy new year I am caregiver to my wife who was diagnosed with psp 3 years ago She has also some dementia We are both 77 and I have cll Does...

Hello and happy new year I am caregiver to my wife who was diagnosed with psp 3...

pughn

•2 years ago

1 Reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2022

Chemo Pill

Is it ever too soon to start treatment?

Lymph node removal

CLL and Eustachian tube blockage

CLL and fertility

Anyone here in Toronto ?

No antibodies against Covid and evushield

Is there anyone with M.E. and CLL ?

Antivirals monoclonal antibodies

Building antibodies post remission

Covid community or CLL

Acalabrutinib side effects

Saved posts

Monoclonal antibody infusion

3rd Covid Infection

Just had my 4th Vaccination. This time Moderna

Nightsweats

Pain in thought and arms

41yr old, new to this

Back to back ivig and Evusheld?

Chlorinated water protective for CLL?

Lymphocyte count and Covid vaccine

Is inositol, hexaphosphate form, bad for CLL?

New Dana Farber Research

You, yes you - have a direct window on the beach and the fauna lazing in the sand !

Low platelets 54 down from 72

Virtual Town Hall Meeting Northwester University

LDH

W&W avoided second infection of Covid

w

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive