Nightsweats

[Vindicatrix]

Hi All, was diagnosed 2018, and on watch and wait, I had my four monthly monitoring, 4 weeks ago, and all was ok.

I had my first proper night sweat last night, and wondered if this was the start of them, leading to treatment. Any idea's anyone. Thanks Ron

[JigFettler Volunteer]

Hey! Night sweats are common... and this cold be the start for you. They vary - from scalp face and neck with a damp pillow to the full drench and replace night clothes and sheets affair. Could be intermittent at the start - becoming more persistent. I had light and intermittent night sweats pre chemo. - After chemo nil in remission.

I would say treatment is not started on the basis of night sweats alone! Given CLL is a progressive condition - may just indicate your are on the way. Your Haem Consultant will always ask you about B symptoms on your regular reviews.

As this is your first - how are you? How do you feel? Check your temperature - just in case you may have an infection of some sort - for they too cause night sweats. Other non CLL causes exist - and so it would always be worth your family Dr check you out.

Jig

[Vindicatrix in reply to JigFettler]

Thanks for the info, Jig, very helpful, I will keep a watching brief on it.

[Vindicatrix in reply to JigFettler]

Thanks for that JigFettler, it was very helpful. Regards Ron

[ScruffyDuck]

I am never sure what constitutes a night sweat in respect of a CLL B-symptom. I have had single or small groups of waking up with damp night clothes front and/or back for as long as I can remember. I have had two occasions I can recall where I needed to change my night clothes but generally it is limited. So far I have talked to my GP about them but never mentioned them to my consultant. If I started to get regular heavy sweats then I would certainly to report it. I have been in W&W since 2012 with a steady progression of lymphocyte count double every two years or so.

Jon (In Wales)

[Vindicatrix in reply to ScruffyDuck]

Thanks Scruffy Duck, very helpful, I won't push the panic button yet, and I will mention it to my Haemo, when next we meet. All the best

[Neblinosa]

I hope for you that it is an isolated event for a long time. I've had night sweats for years long before diagnosis so I can't even imagine how much worse it may get now as my CLL progresses.

[Vindicatrix in reply to Neblinosa]

Thanks Neblinose, I will mention it to my Haemo when next we meet. It is good that we can sound each other out on matters like this, which is what I like about this site. All the best

[shoshanaz]

Perhaps a re-do on labs would be in order. Also be aware that night sweats are a potential symptom of the Omicron variant. Might be worth a test, if you have any other symptoms develop. I hope it is just a one-off incident.

[Vindicatrix]

Thanks shoshanaz, that was helpful, I will keep a watching brief on it. Regards Ron