Dry skin while on calquence: Can anyone suggest... - CLL Support

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Dry skin while on calquence

200185 profile image
22 Replies

Can anyone suggest a good emollient for dry skin. I have been on calquence for 2 weeks now and have to apply Vaseline nightly. Even with that my skin is still dry. I drink lots of water so it’s not dehydration. Ideas??

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22 Replies
lankisterguy profile image
lankisterguyVolunteer

Some of the best moisturizers for me included hyaluronic acid ingredients

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CeraVe and Cetaphil are typical - and recommended by my dermatologist at Weill Cornell NY Presbyterian Hospital.

CeraVe Moisturizing Cream,

CeraVe Daily Moisturizing Lotion for Dry Skin | Body Lotion & Facial Moisturizer with Hyaluronic Acid and Ceramides | Fragrance Free

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Len

mk2045 profile image
mk2045 in reply tolankisterguy

I would agree with Len. Those are good. I am on Calquence but not experiencing dry skin. Good luck.

200185 profile image
200185 in reply tomk2045

Thanks

Annie1920 profile image
Annie1920

I'm in UK on venetoclax and my skin is v dry and itchy.. Gp prescribed emollient with menthol which helped the itching but not the dryness to any extent I find baby oil more effective

BluMts profile image
BluMts in reply toAnnie1920

CeraVe from the US, now available in the UK from Boots and elsewhere is VERY good as a moisturiser.

200185 profile image
200185 in reply toBluMts

Thank you. Appreciate it

200185 profile image
200185 in reply toAnnie1920

Thanks appreciate you

guzzifan profile image
guzzifan

Vaseline sounds revolting! I had very dry skin even before my CLL diagnosis. My GP prescribed Sorbolene cream, which I have now been using for 7 years. I am very happy with the moisturising effect - my skin used to all flake off, now it's good. I rub it on (sparingly) all over my body after I dry myself from the shower each morning. It dries very quickly, is not oily, and has no colour or fragrance added. It comes in a 1 litre pump bottle which costs me $5 as it's subsidised in NZ. That would last me at least 6 months. Vastly cheaper than the fancy cosmetic-type moisturisers.

The ingredients as listed on the bottle are water, glycerine, paraffin, petrolatum, cetostearyl alcohol, propylene glycol, ceteth-20, chlorocresol. (Concentrations not stated.)

200185 profile image
200185 in reply toguzzifan

Thanks. Appreciate it

LeoPa profile image
LeoPa

Extra virgin coconut oil. I'd be surprised if it didn't help.

200185 profile image
200185 in reply toLeoPa

Thank you

G1llHa1n profile image
G1llHa1n

I've dry skin and find the Aveeno range very good - comes in various 'strengths'.

200185 profile image
200185 in reply toG1llHa1n

Thanks Much appreciated

200185 profile image
200185 in reply toG1llHa1n

Thanks so much

SofiaDeo profile image
SofiaDeo

When I was having skin problems on ibrutinib, I liked nilotica shea butter/oil. It wasn't as greasy as coconut oil, and I like to use both. I also found 4oz bottles of organic rosehip seed oil, and have been using that. Organic, expeller pressed safflower or sunflower oils are also good for our skin.

My issue with extensive vaseline or baby oil use, is that those are petroleum products which will contain trace amounts of toxic chemicals.

The CeraVe and Cetaphil products aren't bad, for mass produced products that need chemical stabilizers and preservatives. And a lot of these also contain fragrance (hello baby oil).

I have glass blender jars and mix a number of topicals myself. You can purchase hyaluronic acid, ester vitamin c, and other ingredients if you find that commercial products irritate your skin. If you want something that smells nice, a tiny bit of essential oil can be mixed in. I learned this from working in a busy University pharmacy. The derms there had a certain number of patients they prescribed mixes that we made. These mixes were essentially the same as commercial Eucerin and other lotions/cremes, but without stabilizers, preservatives, perfumes. There are a small number of people who are very very sensitive to tiny amounts of things in skin products. I was one of them, when on ibrutinib.

essentialwholesale.com is a West Coast company where I get bulk ingredients, and they supply recipes. I purchase my hand sanitizer from them too. They also sell mixes of creams & lotions, with a number of organic options. The nilotica shea and rosehip seed oils I get on Amazon. Safflower & sunflower oils are organic, food grade from grocery store. I buy my coconut oil (5gal tubs) from healthytraditions.com, they sell 1 gal & smaller also. Way way less expensive than the jars at Whole Foods, Trader Joes or Natural Grocers.

200185 profile image
200185 in reply toSofiaDeo

Thanks so much. Appreciate it

Eucalyptus22 profile image
Eucalyptus22

I had the same problem on Calquence. I then increased my intake of very good quality olive oil. Made sure every day I used it liberally on sliced tomatoes and basil. Apart from being delicious I have lost all the dryness which was particularly bad on my legs.

200185 profile image
200185 in reply toEucalyptus22

Thanks. Appreciate it.

country76 profile image
country76

I have used Lubriderm for years.

Zia2 profile image
Zia2 in reply tocountry76

Me too.

200185 profile image
200185 in reply toZia2

Thanks guys

200185 profile image
200185 in reply tocountry76

Appreciate it. Thanks 🙏

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