Bumpy ride

[Meic13]

My CLL journey of a&e admission, neutropenic sepsis, failed chemo, many blood transfusions, IVIG and Ibrutinib. Now, Squamous Cell Carcinoma and Oropharyngeal Cancer! (Breathe) so, radiotherapy awaits.

[JigFettler Volunteer]

That is a rocky path you are treading. I trust Covid is not impeding your progress to treatment!

Breath! Indeed.

I am wondering how we may best support you.

Very best wishes, and please do keep in touch.

Jig

[Meic13 in reply to JigFettler]

Thanks for your kind comments. Apart from increased frequency of attend the covid hotspot hospitals there are less people about and I've been seen by many professionals rather swiftly. For now just nattering.

[GMa27]

💕🙏🙏💕

[jaypax]

It's difficult to know what to say Meic. That is so much to contend with. I wish you well with your treatment. Keep in touch. Best wishes JeffPS I notice you're Meic.....from Wales???

[Meic13 in reply to jaypax]

Yes, Pembrokeshire

[jaypax in reply to Meic13]

So, treatment in Withybush? I'm next door Sir Gaerfyrddin! Clinic in Llanelli.

[Meic13 in reply to jaypax]

CLL Withybush, Radiotherapy Singleton, restorative dentistry Morriston. MRI, Biospy, ultrasound, CT scan Glangwilli!

[Psmithuk in reply to jaypax]

I’m in Caerfyrddin too. Attend Glangwili (or did, before the plague). Hello both!Cx

[Meic13 in reply to Psmithuk]

Hello bakatya! Goodnews is Glangwili is starting back routine opps from Monday.

[Psmithuk in reply to Meic13]

That sounds good. Thank you!

[jaypax in reply to Psmithuk]

Well, hello. Another one of us from God's country! We should all get together after this plague!? Best wishes Jeff

[jaypax]

Blimey Meic! That is a lot of travelling. Good luck with it all and stay safe and well. Jeff

[LeoPa]

That's certainly unfair for one person to get so many serious conditions. What do they say your treatment options are apart from radio therapy? Are you in pain and can it be managed if so?

[Meic13 in reply to LeoPa]

Radiotherapy is the treatment option. 75% recovery rate. Thanks for your kind words.

[LeoPa in reply to Meic13]

Thank you. Best wishes for the treatment and good luck. You deserve it.

[Accordion]

Oh Meic, I do wish you all the best for the coming! It seems a lot to handle. Hard to imagine. Your note made my own bumps seem a little less this morning. 🙏❤️❄️

[aloneifly]

Have they removed the SCC.My position is not quite so complicated as yours. I had a neck dissection 6 weeks ago where my parotid gland and lymph nodes in my neck had SCC . Nodes and parotid gland removed as well as damage to facial nerve and loss of accessory nerve.

My 6 weeks of RT starts Wednesday after a delay waiting for my mouth to heal after teeth extraction.

Feel free to message me if I can answer any questions from my own experience so far.

[Psmithuk in reply to aloneifly]

Sorry to hear this, and hope you are soon on the mend - and the RT is effective and uneventful.Cx

[Floxxy]

I'm so sorry to hear of your very tough CLL journey. Sending you love and hugs and hope for successful treatment. 💖💖

[Psmithuk]

What a lot you have on your plate, Meic. I want to send you all good wishes and hope the treatment is short, sweet and effective.Please keep in touch, we are all in this together.

Chrisx

[Tovtovtov]

🙏🙏🙏

[Faitheachday]

Thank you for telling your story. you are a strong man some would have folded in your situation. keep up the fight. a praise song I find very positive and uplifting by Matt Maher"Alive and Breathing". i hope it helps you as much as it helps me. take care

[Beattiem-UK]

Bumpy ride is the understatement of the century! Hang on and hope that, one by one, you can get all this dealt with successfully. You're in my thoughts.

B