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CLL Support

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All posts for August 2020

VA DISABILITY QUESTION

There have been a few questions lately regarding VA disability, Here's mine. I was first diagnosed in 2019 with CLL and started treatment in February of 2020...

There have been a few questions lately regarding VA disability, Here's mine. I w...

laldoroty

•4 years ago

7 Replies

g-csf

hi all finished cycle 1 dont feel to bad apart from taking all the different tablets after ,my question his is it normal to take g-csf injections on day 7 and...

hi all finished cycle 1 dont feel to bad apart from taking all the different tab...

kel555

•4 years ago

2 Replies

Coming to terms with CLL

I was diagnosed in May and still feel new to the CLL scene. Symptom wise other than lumps that get a little bigger from time to time I am managing other than...

I was diagnosed in May and still feel new to the CLL scene. Symptom wise other t...

Happygarden

•4 years ago

3 Replies

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"MRD: What Should It Mean to Me?" This Friday, August 14th, the CLL Society presents Drs. Brian Koffman & Anthony Mato.

Will MRD status soon become a big player in determining when it is appropriate for you to stop certain treatments for CLL? Don't miss this! Find out! MRD...

Will MRD status soon become a big player in determining when it is appropriate f...

bkoffman

CLL CURE Hero•4 years ago

21 Replies

Why, with Chronic Lymphocytic Leukaemia, CLL, White Cell percentages can be dangerously misleading. You may not be neutropenic!

Frightened by falling neutrophils? Worried about being at a greater risk of infection? This is a common and often totally unnecessary fear, simply because...

Frightened by falling neutrophils? Worried about being at a greater risk of inf...

AussieNeil

Administrator•4 years ago

12 Replies

Six weeks of Ibutinib no improvement?

I know I’ve asked before, but at six weeks of Ibutinib, the lab numbers have changed very little. Now I’m worried that it’s not working? Am I looking for too...

I know I’ve asked before, but at six weeks of Ibutinib, the lab numbers have cha...

Tapps

•4 years ago

15 Replies

Face up to the truth about masks

This is a follow-on from yesterday's post: Research on effectiveness of different face coverings. I'm making a new post because it's long and a bit involved,...

This is a follow-on from yesterday's post: Research on effectiveness of differen...

bennevisplace

•4 years ago

17 Replies

VA and disability for CLL

I was on 100% disability for 2 years for agent orange exposure in Vietnam. I have been on watch and wait for over 6 years with CLL. The VA recently reduced my...

I was on 100% disability for 2 years for agent orange exposure in Vietnam. I hav...

bluered0506

•4 years ago

14 Replies

Exercise and Neutrophils

Hi Everyone, I have a question about neutrophil percentages. My recent bloodwork had my neutrophil percentage at 7.0%. In December 2019 it was 14%. In...

Hi Everyone, I have a question about neutrophil percentages. My recent bloodw...

Rhythmauthor1

•4 years ago

7 Replies

Trying to Interpret FISH results

Last year, when I met my hematologist for the first time, he told me my CLL was indolent. W/W is where things stand. Looking at the information below, one...

Last year, when I met my hematologist for the first time, he told me my CLL was ...

The-Man-with-a-Plan

•4 years ago

13 Replies

Delay in completing risk assessment

I have CLL and are on watch and wait. I am due to return to work in a secondary school on 1/9. As yet have not recived my risk assessment. Draft was done on...

I have CLL and are on watch and wait. I am due to return to work in a secondary...

Fiona1122

•4 years ago

9 Replies

Cyst on Palm

I noticed a small painful cyst on my palm in the last two days. I understand CLL can cause bacterial infections on the hand. Could this be a manifestation...

I noticed a small painful cyst on my palm in the last two days. I understand C...

Rhythmauthor1

•4 years ago

6 Replies

day 1 fcr ,,but un-mutated

hi thankyou for all your replys,well it was day 1 today on fcr everything went smooth day 2 tommorow hope it goes the same ,today i asked the nurse what my...

hi thankyou for all your replys,well it was day 1 today on fcr everything went ...

kel555

•4 years ago

11 Replies

Immunophenotyping

Hi, just got my result from immunophenotying said it show classic 5 of 5 for CLL do not know what that means diagnosed with SLL in December 2016. have had...

Hi, just got my result from immunophenotying said it show classic 5 of 5 for CLL...

jaybrjod

•4 years ago

5 Replies

Dramatic weight loss on imbruvica

I am finishing up week 4 on imbruvica. Since starting I have dropped 20 pounds. Is this normal? No other side effects.

I am finishing up week 4 on imbruvica. Since starting I have dropped 20 pounds....

Cali69

•4 years ago

10 Replies

#CLL Society/ Lymphoma Australia Virtual Conference: Our own Dr. Brian Koffman joins Dr. Matt Davids, Dr. Jason Butler & Patient Deb Sims

#CLL Society announces Lymphoma Australia Virtual Conference: Our own Dr. Brian Koffman joins Dr. Matt Davids from Dana Farber, Dr. Jason Butler from Brisbane,...

#CLL Society announces Lymphoma Australia Virtual Conference: Our own Dr. Brian ...

bkoffman

CLL CURE Hero•4 years ago

6 Replies

Window of Opportunity! Funds Available for Out-of-Pocket Medication Costs for CLL Patients.

CLL Society bringing you news of a Window of Opportunity! Funds Available for Out-of-Pocket Medication Costs for CLL Patients. The PAN Foundation helps...

CLL Society bringing you news of a Window of Opportunity! Funds Available for Ou...

bkoffman

CLL CURE Hero•4 years ago

4 Replies

Carotid Sarcoidosis

Hello, I have followed this site for many years, since dx in 2012 at age 55. My CLL is 13q, mutated. On WW. However, this year I began to have major heart...

Hello, I have followed this site for many years, since dx in 2012 at age 55. My ...

Klg328

•4 years ago

4 Replies

Apricot Kernels....what?

Can anybody give me a personal experience with apricot kernels and their effectiveness on CLL?

Can anybody give me a personal experience with apricot kernels and their effecti...

steve_canada

•4 years ago

12 Replies

CLL

Hi, I've just found this forum so very new to it. My mum has CLL and has had it for a while but recently she has been picking up lots of infections and is...

Hi, I've just found this forum so very new to it. My mum has CLL and has had it ...

Gibbers65

•4 years ago

4 Replies

IVIG Infusions Suspended - Covid

My IVIG Infusions were suspended as a result of COVID and the risk of attending hospital at the hight of the pandemic. I have just received my latest blood...

My IVIG Infusions were suspended as a result of COVID and the risk of attending ...

RobertCLL

•4 years ago

21 Replies

Infusions

hello everyone! Iam new, so would really appreciate your help. After I have an infusion, I feel quite Ill for about a week. Is this normal? Does anyone else...

hello everyone! Iam new, so would really appreciate your help. After I have an i...

Vintagemama

•4 years ago

9 Replies

cll and the VA

I have had CLL for 15 years, still at stage1 have never had any treatment other then lab work. MY WBC has ranged form 30, to 80 over the years. If anyone is a...

I have had CLL for 15 years, still at stage1 have never had any treatment other ...

Stevevolo

•4 years ago

23 Replies

The immune system and COVID 19 - it's very complicated!

An easy read about a complex subject. Immunity is a matter of degrees, not absolutes and that lies at the heart of many of the COVID-19 pandemic’s biggest...

An easy read about a complex subject. Immunity is a matter of degrees, not absol...

Jm954

Administrator•4 years ago

21 Replies

Treatment with Rituximab

What are the common side effects of this treatment. I will be starting with Rituximab treatment this week

What are the common side effects of this treatment. I will be starting with Rit...

Tac118

•4 years ago

38 Replies

Bruises & Rash

I have been taking 140mg of Imbruvica for 3 months and I have been breaking out with lots of Bruises which have been manageable. Any suggestions to keep them...

I have been taking 140mg of Imbruvica for 3 months and I have been breaking out ...

brooklyn7672

•4 years ago

9 Replies

CAR-T trials

I am looking for CAR-T trials in Europe to cover CLL / Richter’s. Is anyone here aware of any such trials? Or where I can search for them? I assume that most...

I am looking for CAR-T trials in Europe to cover CLL / Richter’s. Is anyone here...

UniversallyPersonal

•4 years ago

9 Replies

resveratrol

This is interesting. Been taking resveratrol for the last year as saw it as a general health thing but might be good on a small scale for combatting leukemia...

This is interesting. Been taking resveratrol for the last year as saw it as a ge...

Research123

•4 years ago

7 Replies

Excision biopsy

The nodes under my armpit are up to 5cm I'm on Venetoclax and just started the 200mg dose. There is no great improvement on my enlarged nodes in neck and...

The nodes under my armpit are up to 5cm I'm on Venetoclax and just started the 2...

aloneifly

•4 years ago

12 Replies

WBC and lymphocyte count

I went to my primary care doc for my yearly exam. My hematologist is next week so I’ll have another blood test. This CBC showed my wbc at 17.7 and my...

I went to my primary care doc for my yearly exam. My hematologist is next week ...

elm1

•4 years ago

17 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2020

VA DISABILITY QUESTION

g-csf

Coming to terms with CLL

"MRD: What Should It Mean to Me?" This Friday, August 14th, the CLL Society presents Drs. Brian Koffman & Anthony Mato.

Why, with Chronic Lymphocytic Leukaemia, CLL, White Cell percentages can be dangerously misleading. You may not be neutropenic!

Six weeks of Ibutinib no improvement?

Face up to the truth about masks

VA and disability for CLL

Exercise and Neutrophils

Trying to Interpret FISH results

Delay in completing risk assessment

Cyst on Palm

day 1 fcr ,,but un-mutated

Immunophenotyping

Dramatic weight loss on imbruvica

#CLL Society/ Lymphoma Australia Virtual Conference: Our own Dr. Brian Koffman joins Dr. Matt Davids, Dr. Jason Butler & Patient Deb Sims

Window of Opportunity! Funds Available for Out-of-Pocket Medication Costs for CLL Patients.

Carotid Sarcoidosis

Apricot Kernels....what?

CLL

IVIG Infusions Suspended - Covid

Infusions

cll and the VA

The immune system and COVID 19 - it's very complicated!

Treatment with Rituximab

Bruises & Rash

CAR-T trials

resveratrol

Excision biopsy

WBC and lymphocyte count

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