CAR-T trials: I am looking for CAR-T trials in... - CLL Support

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CAR-T trials

UniversallyPersonal profile image

I am looking for CAR-T trials in Europe to cover CLL / Richter’s. Is anyone here aware of any such trials? Or where I can search for them?

I assume that most trials in US would be locked to people with US health insurance?

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UniversallyPersonal profile image
UniversallyPersonal
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9 Replies
AussieNeil profile image
AussieNeilPartnerAdministrator

You can search the clinicaltrials.gov site for trials outside of the USA. You'll need to contact the closest trial centre to you to ask about what costs are and aren't covered.

Here are two searches which you can modify for your particular requirements:

CAR-T (None specific to CLL/SLL in Europe at the moment, but some B-cell specific trials that may be of interest)

clinicaltrials.gov/ct2/resu...

Richter's Syndrome (France and Germany)

clinicaltrials.gov/ct2/resu...

I presume you are aware of Priss69 's interest in Richters members?

I hope the Venetoclax and Ibrutinib helps you towards your goal.

Neil

UniversallyPersonal profile image
UniversallyPersonal in reply to AussieNeil

Thank you! I will reach out to Priss69 as well.

Priss69 profile image
Priss69 in reply to UniversallyPersonal

facebook.com/groups/1002255...

Priss69 profile image
Priss69 in reply to UniversallyPersonal

Enter here. We are all RTs and there are doctors who work on clinical trials with Cart. Where are you from?

UniversallyPersonal profile image
UniversallyPersonal in reply to Priss69

Ok I joined, although I am no fan of facebook.

Priss69 profile image
Priss69 in reply to UniversallyPersonal

It is a serious group with patients and doctors. Tell me where you're from. There is a hematologist in the group who is testing new treatments.

UniversallyPersonal profile image
UniversallyPersonal in reply to Priss69

Hello,

I sent a request to join the group. I am treated in Norway now.

UniversallyPersonal profile image
UniversallyPersonal in reply to Priss69

Hi,

I added a post in the Facebook group yesterday but did not get any response. How long should I expect that people take to look at new posts? Are members fairly active?

Thanks!

Priss69 profile image
Priss69 in reply to UniversallyPersonal

Hi.

It is an active group and people usually update cases.

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