CAR-T trials: I am looking for CAR-T trials in... - CLL Support

CLL Support

23,337 members40,045 posts

CAR-T trials

UniversallyPersonal profile image

I am looking for CAR-T trials in Europe to cover CLL / Richter’s. Is anyone here aware of any such trials? Or where I can search for them?

I assume that most trials in US would be locked to people with US health insurance?

Written by
UniversallyPersonal profile image
UniversallyPersonal
To view profiles and participate in discussions please or .
9 Replies
AussieNeil profile image
AussieNeilPartnerAdministrator

You can search the clinicaltrials.gov site for trials outside of the USA. You'll need to contact the closest trial centre to you to ask about what costs are and aren't covered.

Here are two searches which you can modify for your particular requirements:

CAR-T (None specific to CLL/SLL in Europe at the moment, but some B-cell specific trials that may be of interest)

clinicaltrials.gov/ct2/resu...

Richter's Syndrome (France and Germany)

clinicaltrials.gov/ct2/resu...

I presume you are aware of Priss69 's interest in Richters members?

I hope the Venetoclax and Ibrutinib helps you towards your goal.

Neil

UniversallyPersonal profile image
UniversallyPersonal in reply toAussieNeil

Thank you! I will reach out to Priss69 as well.

Priss69 profile image
Priss69 in reply toUniversallyPersonal

facebook.com/groups/1002255...

Priss69 profile image
Priss69 in reply toUniversallyPersonal

Enter here. We are all RTs and there are doctors who work on clinical trials with Cart. Where are you from?

UniversallyPersonal profile image
UniversallyPersonal in reply toPriss69

Ok I joined, although I am no fan of facebook.

Priss69 profile image
Priss69 in reply toUniversallyPersonal

It is a serious group with patients and doctors. Tell me where you're from. There is a hematologist in the group who is testing new treatments.

UniversallyPersonal profile image
UniversallyPersonal in reply toPriss69

Hello,

I sent a request to join the group. I am treated in Norway now.

UniversallyPersonal profile image
UniversallyPersonal in reply toPriss69

Hi,

I added a post in the Facebook group yesterday but did not get any response. How long should I expect that people take to look at new posts? Are members fairly active?

Thanks!

Priss69 profile image
Priss69 in reply toUniversallyPersonal

Hi.

It is an active group and people usually update cases.

Not what you're looking for?

You may also like...

CLL Society Webinar Nov. 17th Dr. Joe Fraietta "The Future of CAR-T Therapy: Can CAR-T CURE CLL?" Some CAR-T patients are 10 years CLL-free!

CLL Society CAR-T Webinar Nov. 17th featuring CAR-T researcher Dr. Joe Fraietta: "The Future of...
bkoffman profile image
CLL CURE Hero

CAR T PROGRESS

Many of us have interest in and hopes for a new treatment that can be a breakthrough with our...
wizzard166 profile image

CAR-T next week

Hi all I know it’s been way too long between updates but, after 4 wonderful years on venetoclax, I...

10 Years With CLL: Two Trials & Lifesaving CAR T-Cell Therapy

I rarely cross post to Patient Power but today there is a story by a fellow CLL patient I have...
lankisterguy profile image
Volunteer

CAR-T coming to OSU Medical Center

Hi All, Having just returned from my 12 week Clinical Trial monitoring I got the first tangible...
ThreeWs profile image

Moderation team

See all
AussieNeil profile image
AussieNeilAdministrator
Newdawn profile image
NewdawnAdministrator
CLLerinOz profile image
CLLerinOzAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.