Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for January 2020

Venetoclax and bone density

Has anyone found that venetoclax affects bone density or muscle mass?

Atds

•4 years ago

7 Replies

Richter’s Transformation

Group - Cases Hello friends. Yesterday I made Ricther's group and people who have the same disease do not stop entering. I am keeping all cases in archives so...

Group - Cases Hello friends. Yesterday I made Ricther's group and people who hav...

Priss69

•4 years ago

22 Replies

MRD Testing after treatment. Help!

Is this good? Have to wait until tomorrow to actually speak to someone. Peripheral blood, flow cytometric immunophenotyping: Normal immunophenotyping results....

Is this good? Have to wait until tomorrow to actually speak to someone. Periphe...

AuntHelen

•4 years ago

8 Replies

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Targeting cell death: helping push cancer cells over the edge

The BCL-2 family regulate one of the body’s apoptotic pathways. As scientists understand more about these proteins, they are able to push the boundaries of...

The BCL-2 family regulate one of the body’s apoptotic pathways. As scientists un...

Jm954

Administrator•4 years ago

8 Replies

Advice please

Advice.hi all newly diagnosed with cll i just seen a post from somedody about the cd 79B marker flow cytometry the person had cd79B+.... well i have just...

Advice.hi all newly diagnosed with cll i just seen a post from somedody about th...

Day123

•4 years ago

4 Replies

CLL new Nocardia dx

Anyone with CLL and Norcardia?

Christinalyn

•4 years ago

3 Replies

New group for Richter’s Syndrome

Hello friends. I made a Facebook group about the Ricther Transformation. The idea is that only patients with this serious complication and hematologists enter....

Hello friends. I made a Facebook group about the Ricther Transformation. The ide...

Priss69

•4 years ago

12 Replies

Increase of White Blood Count

Hi All, I'am in Owe about the knowledge and presenting all experiences in Regard to CLL. I'am IB now since 4th of December. Had expected WBC to be decreased,...

Hi All, I'am in Owe about the knowledge and presenting all experiences in Regard...

Traudel

•4 years ago

1 Reply

Cll suport

Hi i have cll. Treated 7x fcr 15 month ago. I have advised ibrutinib. Any one tll me his experince about ibrutinib. Any one tell me about avilibility.

Hi i have cll. Treated 7x fcr 15 month ago. I have advised ibrutinib. Any one t...

Dpt517

•4 years ago

2 Replies

Hair transplant and CLL

Has anyone here with CLL had a hair transplant (after early stage diagnosis?) Is that safe or crazy? I'm relatively young to have it and I guess a bit vain but...

Has anyone here with CLL had a hair transplant (after early stage diagnosis?) Is...

Research123

•4 years ago

2 Replies

Parthenolide as a treatment from Garden Plant

I recently read researchers at the University of Birmingham found Feverfew, a common garden plant also called bachelor buttons contains a compound called...

I recently read researchers at the University of Birmingham found Feverfew, a c...

joebag55

•4 years ago

1 Reply

1 week update into Imbruvica

My first 7 days of Imbruvica 420 mg haven't been as bad as expected. No fatigue to speak of. The only side effects are temporary stomachs which I can remedy...

My first 7 days of Imbruvica 420 mg haven't been as bad as expected. No fatigue ...

12Caine12

•4 years ago

6 Replies

New to CLL

I was recently diagnosed with CLL. Was sent to oncology for confirmation and treatment. I elected to go for a second opinion To a specialist in hematology and...

I was recently diagnosed with CLL. Was sent to oncology for confirmation and tre...

Dakota10

•4 years ago

35 Replies

Richter's transformation

To all who have this terrible transformation, I would like to ask you how you are.

To all who have this terrible transformation, I would like to ask you how you ar...

Priss69

•4 years ago

8 Replies

Long-Term Ibrutinib Therapy Reverses CD8+ T Cell Exhaustion in B Cell CLL

Chronic Lymphocytic Leukaemia (CLL) is associated with immune suppression and susceptibility to infection. CD8+ T cell numbers are increased and demonstrate...

Chronic Lymphocytic Leukaemia (CLL) is associated with immune suppression and su...

gardening-girl

•4 years ago

18 Replies

I’d like to know a link to a group that deals specifically with Hodgkin’s Lymphoma? Very important to find out ASAP! Thanks

Daughter’s boyfriends Hodgkin’s lymphoma in chest nearly doubling after 6 mos chemo. I need to get him on site with others.

Daughter’s boyfriends Hodgkin’s lymphoma in chest nearly doubling after 6 mos ch...

JerrysGirl3

•4 years ago

5 Replies

Time for treatment decision

Hello everyone! Weekly I have read post after post and learned alot from you all. I was diagnosed June 2017 and have been in W&W up until now. I am a patient...

Hello everyone! Weekly I have read post after post and learned alot from you all...

harley2018

•4 years ago

22 Replies

Travel advice

Hello- I have been reading questions and responses this past year since my husband was diagnosed with CLL (stage 0 in January and in August). I can’t tell you...

Hello- I have been reading questions and responses this past year since my husb...

Alepai

•4 years ago

7 Replies

Ibrutinib & venetoclax

Only another 5yrs 363 days to go 😀

Sepsur

•4 years ago

21 Replies

‘The ‘Killer’ cells treatment by Welsh scientist ... ’

Hello I can see there are a few post this morning about this however I found this article that has a few pics of the researchers and diagram to accompany it....

Hello I can see there are a few post this morning about this however I found thi...

Juliette02

•4 years ago

2 Replies

Heart Attack

I forgot to mention I had a heart attack Sept 26/19. Hospitalized 10 days and had 4 stents installed. 3 kidney stones passed and 9 intestinal polyps removed on...

I forgot to mention I had a heart attack Sept 26/19. Hospitalized 10 days and ha...

Estate1

•4 years ago

6 Replies

Me again.

I am so glad I have found this community. I was getting quite depressed about maybe having to start treatments.Now I am learning more from you wonderful people...

I am so glad I have found this community. I was getting quite depressed about ma...

JanEyre

•4 years ago

14 Replies

6 month check up

Pleased to report that I passed my 6 month checkup with flying colors. Remission intact. Passing along something I read today. A cure for all cancer?...

Pleased to report that I passed my 6 month checkup with flying colors. Remissio...

Estate1

•4 years ago

2 Replies

Ibuprofen and Imbruvica

I read you shouldn't take ibuprofen when on treatment with imbruvica. I assume it's due to bleeding. Now is the concern that it could cause internal bleeding...

I read you shouldn't take ibuprofen when on treatment with imbruvica. I assume i...

12Caine12

•4 years ago

21 Replies

A Patient’s Guide to Shingles - Prompt treatment is crucial to avoid severe neurological complications.

Shingles isn't contagious like chickenpox; you can't directly catch shingles from somebody else who has it. Instead, shingles occurs when VZV in your body...

Shingles isn't contagious like chickenpox; you can't directly catch shingles fro...

Jm954

Administrator•4 years ago

14 Replies

CLL Updates From the 2019 ASH Annual Meeting

Dr Anthony Mato, from New York - his take on a few pertinent questions relating to CLL such as What data in chronic lymphocytic leukemia (CLL) that...

Dr Anthony Mato, from New York - his take on a few pertinent questions relating ...

Jm954

Administrator•4 years ago

3 Replies

Ibrutinib

Diagnosed 2017 with higher WBC and lower platelet counts just outside of the normal range; had a bone marrow biopsy before Christmas 2019; started Ibrutinib...

Diagnosed 2017 with higher WBC and lower platelet counts just outside of the nor...

jcbindy

•4 years ago

6 Replies

Imbruvica

Update bloodwork I have to say besides the side effects with these targeted therapy pills it’s really shown a miracle my white blood count was 230,000 then it...

Update bloodwork I have to say besides the side effects with these targeted ther...

littledab

•4 years ago

22 Replies

Anyone on Gazyva and Venetaklax combo?

My husband got off Imbruvica to switch to Gazyva and Venetaklax combo as Imbruv stopped working and he got anemia as hemoglobin was very low 7.1. Then he had...

My husband got off Imbruvica to switch to Gazyva and Venetaklax combo as Imbruv ...

Anavadya

•4 years ago

2 Replies

Need some info please.

Hi there, I am a 75 year old female. From Adelaide in South Australia. I have still managed to manage all my everyday life,drive and I volunteer 20 hours a...

Hi there, I am a 75 year old female. From Adelaide in South Australia. I have st...

JanEyre

•4 years ago

18 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2020

Venetoclax and bone density

Richter’s Transformation

MRD Testing after treatment. Help!

Targeting cell death: helping push cancer cells over the edge

Advice please

CLL new Nocardia dx

New group for Richter’s Syndrome

Increase of White Blood Count

Cll suport

Hair transplant and CLL

Parthenolide as a treatment from Garden Plant

1 week update into Imbruvica

New to CLL

Richter's transformation

Long-Term Ibrutinib Therapy Reverses CD8+ T Cell Exhaustion in B Cell CLL

I’d like to know a link to a group that deals specifically with Hodgkin’s Lymphoma? Very important to find out ASAP! Thanks

Time for treatment decision

Travel advice

Ibrutinib & venetoclax

‘The ‘Killer’ cells treatment by Welsh scientist ... ’

Heart Attack

Me again.

6 month check up

Ibuprofen and Imbruvica

A Patient’s Guide to Shingles - Prompt treatment is crucial to avoid severe neurological complications.

CLL Updates From the 2019 ASH Annual Meeting

Ibrutinib

Imbruvica

Anyone on Gazyva and Venetaklax combo?

Need some info please.

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