Ibrutinib & venetoclax

[Sepsur]

Only another 5yrs 363 days to go 😀

[Jm954 Administrator]

It will fly by because you'll be having so much fun!

Jackie

[Sepsur in reply to Jm954]

😀

[mrsjsmith]

Did you count leap years ?

As Jackie said it will fly by. Sadly the older I get time seems to vanish like sand through my fingers 🤔

Colette x

[Sepsur in reply to mrsjsmith]

Scary!!!!! Absolutely

[Newdawn Administrator]

So you didn’t develop 2 heads with the first pills? I kept waiting for something to happen.

Don’t worry about filling your time, just make friends with the phlebotomist because you’ll be seeing a lot of them from now on! 😄

Onwards with confidence!

Newdawn

[Sepsur in reply to Newdawn]

It was slightly anticlimatic - after all the fuss to get to this point 😂😂

[SimplyauburnUK in reply to Newdawn]

Sorry - missed previous info about this trial! Where is it taking place and criteria for entry?

[Sepsur in reply to SimplyauburnUK]

cancerresearchuk.org/about-...

[SimplyauburnUK in reply to Sepsur]

Many thanks.

[Newdawn Administrator in reply to SimplyauburnUK]

The criteria for this trial (which I believe stops recruiting in a few months), is that the patient must be previously untreated. As I understand you’ve previously had FCR, you unfortunately wouldn’t seem to be eligible I’m afraid.

Are you requiring treatment again?

Newdawn

[Hidden]

i didn't understand this?. i know your in a uk trial but is that the time they keep track of you or do you take both drugs the entire time?

[Newdawn Administrator in reply to Hidden]

It’s an overall 6 yr trial IVN but how long we take the meds is dependent on success. Minimum of 2 yrs usually however. Monitoring continues and actually lasts for our lifetime.

Newdawn

[PlanetaryKim]

Congratulations Sepsur! You are on the way!

[Sepsur in reply to PlanetaryKim]

Thank you

[cartwheels]

Think your very lucky and good luck with the trial nearly 3 years on mono ibrutinib for me and at the start I thought anything from 3/ 5 years will be good I'm doing great and feel confident so I'm going for 5

All the best

[Sepsur in reply to cartwheels]

Feeling very fortunate to be on this arm myself. My wife is thrilled. To be honest, I was so ready for treatment - anything was a great move forward.

[cartwheels]

Totally agree with ready to start treatment ,I didn't need the consultant to tell me I was going to start ,I knew myself and like you I was pleased to start treatment and get well again

[studebaker]

Very best 5 years 363 days to you Sepsur.

Dana

[Sepsur in reply to studebaker]

👍🤣🤣🤣

[Smakwater]

Hoping a Higher Quality of life Sepsur.

Maybe a little time out of the Damocles throne.

JM

[Sepsur in reply to Smakwater]

Yes🤣🤣