Posts - CLL Support | HealthUnlocked

CLL Support

23,140 members • 39,744 posts

All posts for July 2018

Best cll specialists

Best Dr. For cll in northern Colorado or Denver CO area?

Txnocally

•6 years ago

10 Replies

My lymphocytes 3.79 abs count!

My lymphocytes have gone down to 3.79 abs count. Should I be happy? Sounds like I am doing something right. Is it time to get excited?

My lymphocytes have gone down to 3.79 abs count. Should I be happy? Sounds lik...

JJRCVRCPBSO

•6 years ago

16 Replies

unmutated cll patient treatment with fcr

hi there. i would like pls to know if unmutated cll patients as i am have complete remision for several years after FCR treatment or they all relaps after 2 to...

hi there. i would like pls to know if unmutated cll patients as i am have comple...

Neoklis

•6 years ago

23 Replies

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Rituxan, taken alone

I was on Imbruvica for 6 months but had to stop it because of afib and flutter, a common side effect of the drug. I have heart issues, including fast...

I was on Imbruvica for 6 months but had to stop it because of afib and flutter, ...

umpireman

•6 years ago

12 Replies

Ibrutinib shelf life

I’ve recently started taking Ibrutinib. I have tried to find out the shelf life. My pill bottle is labeled manufactured 09/16,

I’ve recently started taking Ibrutinib. I have tried to find out the shelf life....

Brassy

•6 years ago

6 Replies

Blood work

I have just had my lab work done and my platelets are 90. RBC is high too. Hemoglobin and hematocrit is high also. Is something critical

I have just had my lab work done and my platelets are 90. RBC is high too. Hemog...

Hidden

•6 years ago

2 Replies

Thrombocytopenia on ventoclax

Anyone have to deal with thrombocytopenia while on Venetoclax?if so how was dosage handled?

Anyone have to deal with thrombocytopenia while on Venetoclax?if so how was dosa...

ontheblock

•6 years ago

4 Replies

Get a free one-on-one consultation with a registered dietitian.

Get a free one-on-one consultation with a registered dietitian. http://www.lls.org/managing-your-cancer/food-and-nutrition Eating well helps people with...

Get a free one-on-one consultation with a registered dietitian. http://www.lls...

lankisterguy

Volunteer•6 years ago

1 Reply

How are people dealing with the cost of ibruvica?

cost of drugs

aberk

•6 years ago

53 Replies

Knee replacement with CLL?

Any Cll'ers have knee replacement? Particularly anyone being treated with Imbruvica? I finally healed almost completely with no pain, only some stiffness, to...

Any Cll'ers have knee replacement? Particularly anyone being treated with Imbruv...

tthomp436

•6 years ago

3 Replies

Watch and wait with CLL

Hi I was told last august that I had Cll and that I was a watch and wait patient. Since then I have chronic tiredness, pains in my joints and muscles. I get...

Hi I was told last august that I had Cll and that I was a watch and wait patient...

EPPL

•6 years ago

24 Replies

Start FCR next week advice please

Hi All! Im 40 was diagnosed with CLL 3 and half years ago.. Starting FCR next week, any words of advice would be much appreciated! I plan to work during...

Hi All! Im 40 was diagnosed with CLL 3 and half years ago.. Starting FCR next w...

Shirty78

•6 years ago

14 Replies

A little news to share ....

Two years ago today I began FCR. It was a challenge at times and it was this group that dragged me through it ...sometimes kicking and screaming! Today I've...

Two years ago today I began FCR. It was a challenge at times and it was this gro...

Bethan49

•6 years ago

37 Replies

Pain

Does any one get stinging pain in u wrists

Mobilehome

•6 years ago

6 Replies

Blood Test Results

Hello,all. Just a quick question. What does it mean when you have a Neucleated RBC of 0? I looked up on my portal and saw it. Wont see the dr for a week,and I...

Hello,all. Just a quick question. What does it mean when you have a Neucleated R...

punky15127

•6 years ago

4 Replies

Anxious and Nervous

HI I recently had a blood test performed by my primary and came back with the possibility of cll. I am beside myself. Went to see a Oncologist /Hematologist...

HI I recently had a blood test performed by my primary and came back with the ...

scrapbook

•6 years ago

29 Replies

Cll diagnosis for my dad

Hi my dad who is going to be 78 this November was told yesterday that he has cll stage 4 - so I believe that means it’s in his bone marrow ( he had a biopsy to...

Hi my dad who is going to be 78 this November was told yesterday that he has cll...

Suskime

•6 years ago

15 Replies

Science or Snake Oil: does EASEaCOLD really help to shorten your cold?

"There is very little evidence the herbal and vitamin supplements in EASEaCOLD Cold and Flu, Day and Night help to treat the common cold, or the symptoms...

"There is very little evidence the herbal and vitamin supplements in EASEaCOLD C...

AussieNeil

Administrator•6 years ago

7 Replies

Concernef

i had yearly mammogram June 11 was about a month late because of wreck , recalled July 2 with concerns of finding lymph node they said 4 inches but think they...

i had yearly mammogram June 11 was about a month late because of wreck , recall...

Rjbp1950

•6 years ago

7 Replies

New to this board

My name is Gabrielle and I'm new to this site. I have CLL and am currently on Imbruvica. So far, so good with a few little side issues and that's what brought...

My name is Gabrielle and I'm new to this site. I have CLL and am currently on Im...

Gabrielle823

•6 years ago

19 Replies

CLLSA and Leukaemia Care Joint Response to NHS England regarding Ibrutinib Prescribing as per NICE TA

This is the letter sent to Professor Peter Clarke on 2nd July 2018 for the review of Ibrutinib prescribing. Professor Peter Clark Chair NHS England...

This is the letter sent to Professor Peter Clarke on 2nd July 2018 for the revie...

Jm954

Administrator•6 years ago

35 Replies

Duvelisib or not?

Duvelisib is the new upcoming PI3K inhibitor and I was wondering if any of my CLL fellows had experience with the drug. I am on the CAPTIVATE trial combining...

Duvelisib is the new upcoming PI3K inhibitor and I was wondering if any of my CL...

lamboman

•6 years ago

3 Replies

Treatment Started

Hello All I've been reading the forum for sometime but this is my first post. I was diagnosed with CLL 3 years ago in August. And apart for being hospitalised...

Hello All I've been reading the forum for sometime but this is my first post. I ...

Jollyboyjohn

•6 years ago

15 Replies

FDA approves venetoclax for CLL or SLL, with or without 17 p deletion, after one prior therapy

https://www.fda.gov/Drugs/InformationOnDrugs/ApprovedDrugs/ucm610308 Hello All, I wanted to share this link with you, I apologize if it’s already been posted....

https://www.fda.gov/Drugs/InformationOnDrugs/ApprovedDrugs/ucm610308 Hello All, ...

Lo-la

•6 years ago

2 Replies

Ibrutinib petition

Hi again all and firstly an apology for the repeat plea for help. Its about the petition to get NHSE to follow the original guidelines laid down by NICE so...

Hi again all and firstly an apology for the repeat plea for help. Its about the ...

Mick491

•6 years ago

4 Replies

What is a FISH blood test?

I have just been diagnosed last week with CLL. My doctor ordered a FISH blood test. What is this for?

I have just been diagnosed last week with CLL. My doctor ordered a FISH blood te...

mphillif

•6 years ago

5 Replies

10 years ago today I received my allogeneic hematopoietic stem cell transplant (HSCT) for my CLL

Hi, I just posted a very brief blog update on my 10 year anniversary of my first radical move to save my life. You can read it about here:...

Hi, I just posted a very brief blog update on my 10 year anniversary of my first...

bkoffman

CLL CURE Hero•6 years ago

3 Replies

Personal Update and Dr. Byrd on What We Don't Know

Hi, I have been negligent in posting but I have an excuse or actually several. Been working hard to get back to my baseline with my knee arthritis and pain...

Hi, I have been negligent in posting but I have an excuse or actually several. B...

bkoffman

CLL CURE Hero•6 years ago

21 Replies

F.C.R.

How long after each treatment do you feel reasonable?

Bamboon62

•6 years ago

27 Replies

Nose bleed

3d day on Imbruvica. Have a little nosebleed a while ago. I've been to the gym. Does exertion contribute to bleeding?

3d day on Imbruvica. Have a little nosebleed a while ago. I've been to the gym...

Warriordad

•6 years ago

8 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2018

Best cll specialists

My lymphocytes 3.79 abs count!

unmutated cll patient treatment with fcr

Rituxan, taken alone

Ibrutinib shelf life

Blood work

Thrombocytopenia on ventoclax

Get a free one-on-one consultation with a registered dietitian.

How are people dealing with the cost of ibruvica?

Knee replacement with CLL?

Watch and wait with CLL

Start FCR next week advice please

A little news to share ....

Pain

Blood Test Results

Anxious and Nervous

Cll diagnosis for my dad

Science or Snake Oil: does EASEaCOLD really help to shorten your cold?

Concernef

New to this board

CLLSA and Leukaemia Care Joint Response to NHS England regarding Ibrutinib Prescribing as per NICE TA

Duvelisib or not?

Treatment Started

FDA approves venetoclax for CLL or SLL, with or without 17 p deletion, after one prior therapy

Ibrutinib petition

What is a FISH blood test?

10 years ago today I received my allogeneic hematopoietic stem cell transplant (HSCT) for my CLL

Personal Update and Dr. Byrd on What We Don't Know

F.C.R.

Nose bleed

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