New to this board: My name is Gabrielle and I'm... - CLL Support

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Gabrielle823 profile image
19 Replies

My name is Gabrielle and I'm new to this site. I have CLL and am currently on Imbruvica. So far, so good with a few little side issues and that's what brought me here.

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Gabrielle823 profile image
Gabrielle823
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19 Replies
JR1964 profile image
JR1964

Gabrielle you have come to a wonderful site. You will find a ton of information as well as unending support. A New journey has started for you but you are not ALONE. We are all in this TOGETHER . Keep the FAITH and BELIEVE. STAY STRONG AND REMEMBER THAT A CURE IS COMING SOONER THAN LATER J.R.

Gabrielle823 profile image
Gabrielle823 in reply toJR1964

Thank you so much for your kind words.

Marie-54 profile image
Marie-54

Welcome to the club Gabrielle. There are many people here to support each and every one of us.

Gabrielle823 profile image
Gabrielle823 in reply toMarie-54

Thank for the warm welcome 😊

Dom57 profile image
Dom57

Welcome here. I also have cll and have been on imbruvica for 18 months with only a few side affects.

Gabrielle823 profile image
Gabrielle823 in reply toDom57

Thank you so much♥️ I kinda stumbled over this site but I think I've landed in the right place😄

lankisterguy profile image
lankisterguyVolunteer

Hi Gabrielle823,

Welcome to our group. We want to help each of our peers anyway we can. You mention " So far, so good with a few little side issues and that's what brought me here."

I would suggest you use the oval search box (far upper right corner of your computer screen in the top white section that says "Search CLL Support Association") and insert one word for your problem or symptom. That will give you a list of previous postings and replies that use the same word.

Also there are two boxes - one labeled "Related Posts" and another "Pinned Posts" that are worth reading and will help you get familiar with the resources available here.

Let us know how we can help you.

Len

Gabrielle823 profile image
Gabrielle823 in reply tolankisterguy

Thanks so much

migirlusa profile image
migirlusa

Welcome Gabrielle - the people on this site have made my journey so much better. The wisdom and humor have kept me going. Keep us updated on your journey.

Pam

Gabrielle823 profile image
Gabrielle823 in reply tomigirlusa

Thank you. I think I’m doing good Results overall are good. Platelet count is down a little but not to be concerned.

GMa27 profile image
GMa27

Welcome!

Ohannie236 profile image
Ohannie236

Hi, Gabrielle! Sorry for the reason you find yourself needing to be here, but glad you've found us. There's great information here on just about any subject relating to CLL, and advice and experiences of real warriors and warriorettes in every stage of the fight. And maybe most important of all is the sharing: of fear and difficulty and all the ups and downs, yes, but also of the rejoicing for one another's good news however it comes. I'm glad your treatment is going well overall and wish you the best going forward. Prayers and love from Ohio.

Gabrielle823 profile image
Gabrielle823 in reply toOhannie236

Thank you for the warm welcome and the prayers. I’m keeping this group of people in prayers as well

Joelcarver profile image
Joelcarver

Hi Gabrielle, I started Imbruvica on 6/27/18, just over a week ago. I’ve had little to no side effects. Had my first visit with Oncology Hematologist today. Counts are on the rebound just as they’re supposed to be. Doing well and I’m assuming you will too! My wife always warns me about reading and waiting for side effects to happen. Instead, continue to live your life feeling thankful for targeted drugs like Imbruvica. I was on watch n wait for almost 9 yrs before needing treatment. For most of those years, I forgot I had cancer.

Keep on keepin on, Gabrielle

Gabrielle823 profile image
Gabrielle823 in reply toJoelcarver

Hi Joel, I thought u replied but not sure...thanks for your kind reply. So far, so good. Had some issues with break outs on my face but looking much better these days. Bruising easily but using Arnika helps. Cramps at any given moment...I usually take a tablespoon of mustard followed by a large glass of water. I don’t know if anyone does that but it works😁

Ellieoak profile image
Ellieoak

hi Gabrielle, Welcome! I have been on Imbruvica for 5 1/2 yrs. Still doing fine. Good Luck! Anna

Gabrielle823 profile image
Gabrielle823 in reply toEllieoak

That’s really good to know. Thanks♥️

livinglifewell profile image
livinglifewell

Welcome, I've had CLL/SLL since 2005 and have been in Imbruvica for 5 years.

Gabrielle823 profile image
Gabrielle823 in reply tolivinglifewell

Thanks for sharing♥️

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