Posts - CLL Support | HealthUnlocked

CLL Support

23,141 members • 39,748 posts

All posts for July 2018

Lillygeoff

Hi am watching and reading as much as I can as my husband has Cll, but is in the watch and wait section at the moment, but his brother is worse and is going on...

Hi am watching and reading as much as I can as my husband has Cll, but is in the...

Lillygeoff42

•6 years ago

1 Reply

New Heart problem

Good morning, I have been a wait & watch with my CLL for 4 years. Recently, I've been told I have skipped heart beats, which come & go. I'm seeing a...

Good morning, I have been a wait & watch with my CLL for 4 years. Recently, I've...

Winsey

•6 years ago

4 Replies

Miltion

Hello: I am a 64 year old male. I was diagnosed with Non-Hodgkin's Lymphoma cll in August of 2017. My doctor put me on Improvica. I had some pretty nasty side...

Hello: I am a 64 year old male. I was diagnosed with Non-Hodgkin's Lymphoma cll...

larry54

•6 years ago

7 Replies

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Complementary Medicine, Cancer and statistics (not CLL specific)

Not CLL specific, but something of an eye-opener. https://jamanetwork.com/journals/jamaoncology/fullarticle/2687972

Not CLL specific, but something of an eye-opener. https://jamanetwork.com/journ...

shoshanaz

•6 years ago

3 Replies

Follow up on haematologist appointment for sharp rise in lymphocytes.

Hello everybody hope you are all well, my visit to the haematologist today didn't go the way I was hoping, he says the sudden increase in my lymphocytes is...

Hello everybody hope you are all well, my visit to the haematologist today didn'...

JackieSA

•6 years ago

9 Replies

Help me please

I am 33 year old female had cin 3 4 years now the last 3 years I have had swelling at abdomen ,pain ,weight loss swollen nodes and excessive sweating .for the...

I am 33 year old female had cin 3 4 years now the last 3 years I have had swelli...

Liverpool2018

•6 years ago

35 Replies

WM hyper viscosity issue

Has anyone had a “plasma pherisis” proceedure done? Is it a painful or ok To deal with.

Has anyone had a “plasma pherisis” proceedure done? Is it a painful or ok To ...

cityslickers

•6 years ago

4 Replies

Natural born killers

https://www.patientpower.info/video/what-are-the-potential-side-effects-of-car-t-cell-therapy?autoplay=1&utm_source=health-topic-alert&utm_medium=email&utm_camp

https://www.patientpower.info/video/what-are-the-potential-side-effects-of-car-t...

zaax

•6 years ago

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Cold Sensitive Hands and Feet Symptoms

Hello: This is a follow posting to thank everyone who offered information and support to my previous post regarding "stinging, burning hands and feet when in...

Hello: This is a follow posting to thank everyone who offered information and su...

Catskillview

•6 years ago

4 Replies

Curious Kids: Why does my snot turn green when I have a cold?

Even if we are no longer kids, I hope we are still curious, particularly about matters that concern us - such as whether we need antibiotics when we have a...

Even if we are no longer kids, I hope we are still curious, particularly about m...

AussieNeil

Administrator•6 years ago

3 Replies

Am new member: have CLL/SLL since 2013

Am new to this website as of today. Am 66, male - diagnosed with CLL/SLL in March 2013. Am at stage 0-1. CD38 negative, ZAP-70 negative, mutated IgVH with...

Am new to this website as of today. Am 66, male - diagnosed with CLL/SLL in Mar...

markjeep51

•6 years ago

15 Replies

CT scan waiting game

Overcoming the dilemma of having to drink masses of water & getting caught short having to use a public convenience...only to find out that I have to drink...

Overcoming the dilemma of having to drink masses of water & getting caught short...

Sepsur

•6 years ago

17 Replies

Imbruvica to Venetoclax

I have been on Imbruvica for 4 yrs, all was going great until the beginning of this year. Now my blood work is out of wack. Today my dr told me to stop...

I have been on Imbruvica for 4 yrs, all was going great until the beginning of t...

MartiP2009

•6 years ago

24 Replies

Venetoclax/Ibrutinib update

Hi I wanted to follow up with everyone. I started the V&I clinical trial Oct 2017. When i started my cancer was at 30% infiltration in my bone marrow. I just...

Hi I wanted to follow up with everyone. I started the V&I clinical trial Oct 201...

BCTexas

•6 years ago

67 Replies

I have CLL and am on Leukeran. Has anyone else on Leukeran gained weight?

Weight gain on Leukeran. Anyone else?

msbissy10

•6 years ago

2 Replies

Recurrence of nodes in treatment of CML

I am on imatnib for last 4 months for treatment of CML. But for last few days am feeling lymph nodes are back in my neck.my recent cbc has no anomailies .I am...

I am on imatnib for last 4 months for treatment of CML. But for last few days am...

Prakash2512

•6 years ago

2 Replies

Deciding on CLL Therapy and When to Treat- ONCLive Video discussion Drs. Wierda, Lamanna, Ma, Davids, Coutre

This has been discussed often- when to start treatment. There are many exceptions and special conditions, but the only agreement is not to treat on White...

This has been discussed often- when to start treatment. There are many exceptio...

lankisterguy

Volunteer•6 years ago

11 Replies

Painful bruises on my hands

Female, 45 living in the UK. For a few years I’ve been having painful bruises on my hand specially on my fingers. They come up when I clap my hands too...

Female, 45 living in the UK. For a few years I’ve been having painful bruises...

Flabal

•6 years ago

33 Replies

Sharp increase in my lymphocyte count.

Hello, I live in Port Elizabeth South Africa and was diagnosed with CLL in 2010, after a fish blood test I was found to have 13q and a good prognosis. My ALC...

Hello, I live in Port Elizabeth South Africa and was diagnosed with CLL in 2010,...

JackieSA

•6 years ago

12 Replies

Night sweats after FCR

Hi All, Completed first round of FCR 4 days ago pulled up reasonably well went back to work on Monday so happy so far. One thing I am soaked at night with...

Hi All, Completed first round of FCR 4 days ago pulled up reasonably well went b...

Shirty78

•6 years ago

4 Replies

New Here

Hi. I was diagnosed two years ago. On watch and wait. Some platelet changes but WBC and RBC holding pretty steady. I feel solid with my oncologist. I struggle...

Hi. I was diagnosed two years ago. On watch and wait. Some platelet changes but ...

SunandMoon

•6 years ago

15 Replies

First line

Started imbruvica 11 day ago , had my first CBC today and my wbc was 330 hemoglobin was 9.5 and platelets 66. I know they say it gets worse before it gets...

Started imbruvica 11 day ago , had my first CBC today and my wbc was 330 hemoglo...

Blallen

•6 years ago

8 Replies

Lymph node pain

First time posting, so not sure if I am posting in the correct spot. I have one swollen (approx 2cm) lymph node under my jaw. I have had it a few months and...

First time posting, so not sure if I am posting in the correct spot. I have one...

batnat12

•6 years ago

8 Replies

CLL in the lungs?

Has anyone out there had their CLL progress into their lungs? I have this and am curious of what I can expect with Imbruvica. I will start on that next week.

Has anyone out there had their CLL progress into their lungs? I have this and am...

willyoder

•6 years ago

7 Replies

I fell yesterday....again!

This is the second fall in three days. I was not dizzy, just clumsier than usual. The first one was a bruise to my shin which killed, bruised but didn’t bleed...

This is the second fall in three days. I was not dizzy, just clumsier than usua...

Loweez

•6 years ago

18 Replies

Ibrutinib and NHSE current position.

Dear all As you know I am fighting for the right to be prescribed the drug my consultant thinks is the best treatment for me which is Ibrutinib. However...

Dear all As you know I am fighting for the right to be prescribed the drug my co...

Mick491

•6 years ago

10 Replies

FCR Treatment, 4 cycles or 6, follow up

About a month ago, I posted that I was considering stopping FCR treatment after 4 cycles pending a Bone Marrow Biopsy and PET scan. The results are in and the...

About a month ago, I posted that I was considering stopping FCR treatment after ...

severdon

•6 years ago

16 Replies

Third FCR dose

After the third dose of the treatment, I think my body got over the treatment more quickly. I felt very nauseous for 5 days, but then much better and more like...

After the third dose of the treatment, I think my body got over the treatment mo...

Mandy56

•6 years ago

21 Replies

Update

Hi everyone and thank you for your information and words of wisdom. My brother is now out of hospital and seems in good form. He has not been given any extra...

Hi everyone and thank you for your information and words of wisdom. My brother i...

Hidden

•6 years ago

3 Replies

11 Q deletion? Mutated or unmutated?

I asked our CLL doctor if my husband with 11 q deletion was unmutated which is what I had assumed, but he said he was mutated. I am confused. He also tested...

I asked our CLL doctor if my husband with 11 q deletion was unmutated which is w...

kathymac52

•6 years ago

12 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2018

Lillygeoff

New Heart problem

Miltion

Complementary Medicine, Cancer and statistics (not CLL specific)

Follow up on haematologist appointment for sharp rise in lymphocytes.

Help me please

WM hyper viscosity issue

Natural born killers

Cold Sensitive Hands and Feet Symptoms

Curious Kids: Why does my snot turn green when I have a cold?

Am new member: have CLL/SLL since 2013

CT scan waiting game

Imbruvica to Venetoclax

Venetoclax/Ibrutinib update

I have CLL and am on Leukeran. Has anyone else on Leukeran gained weight?

Recurrence of nodes in treatment of CML

Deciding on CLL Therapy and When to Treat- ONCLive Video discussion Drs. Wierda, Lamanna, Ma, Davids, Coutre

Painful bruises on my hands

Sharp increase in my lymphocyte count.

Night sweats after FCR

New Here

First line

Lymph node pain

CLL in the lungs?

I fell yesterday....again!

Ibrutinib and NHSE current position.

FCR Treatment, 4 cycles or 6, follow up

Third FCR dose

Update

11 Q deletion? Mutated or unmutated?

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