Female, 45 living in the UK.
For a few years I’ve been having painful bruises on my hand specially on my fingers.
They come up when I clap my hands too hard or slap hard surfaces. They hurt initially and then just look dark.
My question is: do any one of you have the same? If so did ur specialist tell you it was related to CLL? Mine told me it has nothing to do with it.
Thanks.
Flabel,
Your post made me think of something that happened to me last week....sort of embarrassing to admit....I noticed a huge bruise on my hand...almost half the palm was covered in a horrible bruise....it didn't hurt until I noticed it...then it hurt a lot...I went into the bathroom and looked at it under the light....and wow, one of the worst bruises I ever had....except when I washed my hands it came right off...just dirt and grease from changing a flat tire....then it stopped hurting too....
Scott
You’re silly. 😛
😄
😂 As we used to say in the south - darlin’ you’re a mess.
Pam
' Bout sums it up I think 
I love your sense of humour Scott. It doesn’t always have to be doom and gloom.
Indie
Bruising is very common in Cll especially when your nearing treatment as your platelets count will be knocked out of sink.
Definitely need to change your routine to whistling rather than clapping for the foreseeable future 😉
Stuart
Whistling it is. But what bugs me is that I asked my consultants and they said nothing like this was related to CLL.
And I’ve had it for years. More than five for sure.
It’s one of the most common problems all over the world! people can see a consultant or Haematologist and they know what Cll is and may have read of or been told by some patients about some side effects and they seem to make their own minds up without factual evidence how to answer.
Cll is a very complicated blood disorder and only a true specialist who focuses in that field will be aware of and have an understanding of all issues involved.
Bruising is one of the most common side effects of Cll and for your consultant to dismiss that can only lead to one conclusion that he’s either not patient focused and doesn’t care or has absolutely no idea what he’s doing.
Definitely time for change
Hi I just saw you post as it came up being related to my issue. My doc is the same-it doesn't seem like anything I am experiencing is related to the cll. I have pain in my hand bones as well as the areas of my cartilage-nose and ears when hit. What's your status now and have you found out anything? Thanks
And stop slapping hard surfaces ! Assume by accident ?
Would taking Arnica help ? Worth showing to your GP.
Regards
Colette x
I did. I took pics. But he also said he had no idea.
And sometimes I mean to slap hard surfaces.... 😂
Haha ! Must be an easier way of getting rid of, I assume, your frustration! Perhaps shout after you whistle ?
Colette x
Yes. Definitely need to change my ways. No more slapping and clapping. Whistling and shouting here I come. Xx
But not at the same time !!
C x
Or maybe at the same time! 😜
Hootin and Hollering might work well for you too
I want video of doing both at the same time. Pillows are good to pound on when you need to let out your frustrations, but make sure that they are on a bed or other soft surface.
Add that to the video of Scott as BOO kemia, and that could keep us amused for ages ! Simple pleasures!
Colette x
I have terrible bruises from my fingers to my elbows. They did not start until I was diagnosed. They have been worse on Ibrutinib.
Pam
Pam,
I can't say I have noticed a huge increase in any bruising...but over the last year I have noticed a couple, on my fore arms, that I can't really place where they came from. They don't hurt, really and I am surprised when I see them...
Hi, about five months ago a lump appeared next to my middle finger knuckle. It wasnt painful but it was easily seen. It appeared after struggling to open a tin of something. I have just looked at it and it has mysteriously disappeared! This must have been cll related as i have just finished round 2.
My point is, i think it can affect our hands. Just an observation x
Maybe a ganglion cyst? Common on the hands, especially. I had one for a few years, then it was gone.
Aren’t you supposed to bang with the family bible ?
C x
Ha! My doctor at the time told me that he could either bang on it or I could just leave it alone. I opted for the later. It was there for a few years, but wasn't bothersome. I'm not even sure at what point it disappeared.
That’s good it stopped bothering you. Was you doctor offering his family bible ?....
C x
It was when I was in high school, so I don't remember exactly, but I think he did say a book. Didn't mention a specific one.
Last year then.... !
C x
Yep! LOL!
Hi Flabal just read your post. I've not had bruising on my hands but with CLL they say you can bruise easily so I suppose it could be on your hands or anywhere? If you're still getting it and it's bothering you can you see another doctor? I've had a bit of cramp on my right hand, thumb area. I'm very right sided and my work as a jeweller might not help. (I've tried using my left a bit more but that's hilarious!)
Hi huni. Thanks for your reply. I’ve had these bruises for years. Even before I found out about CLL. I asked zillions of doctors and none of them seem to know so I just avoid hitting anything with my hands witch is quite hard. 😂
update on my lymphoma 
Finished the 10k on Sunday
Cll and painful joints, muscles 
ITCHY EYES SORES ON MY FACE.
Swollen hands since starting Acalabrutinib
