This is a wonderful community and I thank everyone who responded to my previos post with an opinion or just a message of support.
I have the opportunity to participate in a trial that combines ibrutinib with FCR for 6 months and after that ends i would continue to take the ibrutinib for 2 years. I’m a good candidate for FCR aline so could either do that at the excellent small hospital near my home and with my hemotologist or go for the trial at the famous cancer research hospital in the city. I feel fine - have no symptoms that affect my life but the tests show my bone marrow is intensely infiltrated. The trial sounds like a no-brainer in terms of the potential to lengthen remission and it also seems that blood counts dont go as low on the i + FCR as they do on just the FCR. However I love my local hospital and its small enough to be very efficient and personal as well as excellent for medical care. At the famous cancer research center I went today and although it is extremely impressive and nice, there were just a huge number of people being served in all areas I was in. It runs like a well-oiled machine but I’m worried I’ll just be a number there. Also although I know inbrutinub is a great drug, I worry that taking 4 drugs rather than 3 increases the possible effects and that because it is fairly new and the trial is small and only underway a couple years, stuff that happens wont be as easily diagnosible and treated as the plain old FCR, which has been around gor a while. Would love to hear people’s thoughts as I have to make this decision within the week!