New diagnosis : My Dr originally called me last... - CLL Support

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New diagnosis

Jbuckner-75 profile image
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My Dr originally called me last week and said test showed cll. Had appointment today and he said it was pre cll. B cell monoclonal lymphocytoses. He said my lymphocytes were 5000 so he could have classified it either way. I am having severe fatigue. He said it could be a symptom of it but doesn’t want to treat it yet which I am glad. Any thoughts on this diagnosis?

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Jbuckner-75
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Cllcanada profile image
CllcanadaTop Poster CURE Hero

Welcome...

Good side of the mark... only 1-2% of Monoclonal B Lymphocytosis (MBL) becomes CLL per year and it can take years to occur.

If nodes start expanding and the B lymphocytes remain below 5000 then it might possible be SLL, but again it can take years.

Fatigue was my primary symptom in CLL at diagnosis, but I wasn't treated for 14 years, so go on with your life... 😁

~chris

Jbuckner-75 profile image
Jbuckner-75 in reply toCllcanada

Thank you! My lymphocytes are right at 5000 so praying they stay that way.

ap64 profile image
ap64

cllsupport.org.uk/cll-sll/s...

This is informatvie for MBL.

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