Finally I become of Imbruvica's family

[Cervus_dama]

My fifth day Imbruvica. What to expect and what to keep as a young patient ? Blood picture from today- chronic progressive Still on corticosteroids 2*4 mg Medrol!

I feel boringly normal...хахахахх

Best regards CLL friends!

Cervus_dama

[PlanetaryKim]

Good luck! I hope you will keep us posted on your progress.

[Cervus_dama in reply to PlanetaryKim]

Thank you, PoetKim! I will So far so good...

Best regards <3

[cartwheels]

4 weeks for me and after a achy painfull few weeks I like you now feel normal and you can drink beer wine etc I told my consultant in had stopped drinking after seeing posts that you shouldo not and he told me there is no interaction with ibrutinib so drink if I want too . Will still take it easy but great to know you can enjoy a beer if you want to. You might get bone pain etc at some point but it's normal and will pass as fast as it came all the best

[Cervus_dama in reply to cartwheels]

Thank you for you replay , Cartwheels

The photo is from my two-year waiting period (waiting for the right treatment).

I am taking easy too...Summer time only beer, winter time glass of wine! Beer for Platelets, red wine for Hemoglobin.

Best regards

[cartwheels in reply to Cervus_dama]

I lived and partied right up to the day I started taking ibrutinib looks you too carried on living and why not

[Cervus_dama in reply to cartwheels]

I'm 37 years old Still here still alive...7 years CLL patient.

[richutchens]

I feel boringly normal as well and I'm on my 9th month.

[Cervus_dama in reply to richutchens]

Thank you, Richutchens! I am still on my 6th day

[Hoffy]

I take mine at night before bed and it seems to keep my stomach issues to a minimum. It might help me sleep too! Overall it has been fine. My nodes went down in one week

[Cervus_dama in reply to Hoffy]

Cool!!! My nodes are already softened but still large. Thank you.