I am a 72 year-old lady first diagnosed at 60 years old in 2004 with CLL and ITP. I was on watch and wait until 2009. I started on chemo and had only one treatment and two more half treatments but had to stop because the chemo was destroying my immune system. I had to be given blood over 80 times and also numerous platelet infusions, along with other meds. It took two years for my CBCs to read close to normal, but CLL was in remission and stayed so until 2016. My iron was extremely high because of the blood I had to have. It took two more years to get iron down. Thank goodness I had a wonderful doctor or I don't know if I would be writing this. I am now in a clinical trial getting infusions of ublatuximab every 28 days for six months along with ibrutinib. Minor difficulties that we learn to live with like: easy bruising, nausea, fatigue, leg cramps, changes in appetite, vision changes, extreme hair loss. The hair loss has been upsetting because it has been so drastic. I have lost about 2/3 of my hair and it is still falling out. Reading some of these other posts gives me hope that it will eventually stop. But if not, then if given a choice of hair loss or breathing, it seems such an easy decision.
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