Posts - CLL Support | HealthUnlocked

I did it ,all the way ,through the hard paved streets of London in my CLLSA T shirt with the sound of faster runners feet pounding in my ears. So the first one...

•10 years ago

4 Replies

Finished the 10k on Sunday

I did it ,all the way ,through the hard paved streets of London in my CLLSA T sh...

william1945

CLLSA•10 years ago

9 Replies

Smelling Hydrogen Sulfide Gas Might Be Good For Your Health

I thought this was an interesting (if slightly humorous) look at some new research on the possible benefits of hydrogen sulfide gas which all of us emit...

I thought this was an interesting (if slightly humorous) look at some new resear...

zevkalman

•10 years ago

6 Replies

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HCL patient seminar London September 20th

The Royal Marsden in Partnership with the Hairy Cell Leukaemia Foundation is hosting the first hairy cell leukaemia (HCL) patient seminar in Europe. September...

The Royal Marsden in Partnership with the Hairy Cell Leukaemia Foundation is hos...

HAIRBEAR_UK

Founder Admin•10 years ago

One of the features introduced with the new HU interface, is the ability to personalise your profile by adding a banner image that will appear across the top...

Add a background banner to your profile

One of the features introduced with the new HU interface, is the ability to pers...

Hi friends, I just posted on my blog the last of my ASH 2013 video interviews namely ASH 2013: Dr. Byrd on the New Data on Ibrutinib and Obinutuzumub in CLL....

Administrator•10 years ago

11 Replies

ASH 2013: Dr. Byrd on the New Data on Ibrutinib and Obinutuzumub in CLL.

Hi friends, I just posted on my blog the last of my ASH 2013 video interviews n...

bkoffman

CLL CURE Hero•10 years ago

Interesting brief article about nano...

Might Nano-oncology Resurrect Old Anticancer Drugs?

•10 years ago

This very US centric article by Rebecca Bechhold, MD on the Cancer Network (free membership) expands on recent topics in the news and here on a study that...

News flash—the way most oncologists create income is by giving chemotherapy

This very US centric article by Rebecca Bechhold, MD on the Cancer Network (free...

Administrator•10 years ago

My oncologist has telephoned me today giving me an option of either FCR or BR. As I am 11q del I thought I had only one option! She told me that the FLAIR...

Help, FCR OR BR?

My oncologist has telephoned me today giving me an option of either FCR or BR. A...

flutterbye

•10 years ago

21 Replies

From the sweet taste of urine to MRI: how doctors lost their senses

James Bradley, Lecturer in History of Medicine/Life Science at University of Melbourne, Australia, writes an entertaining piece on how the process of patient...

James Bradley, Lecturer in History of Medicine/Life Science at University of Me...

I am overwhelmed by the response to my post this morning regarding the London 10k. Thank you all so much for your kind words and very generous donations- I...

Administrator•10 years ago

1 Reply

Thank you all

I am overwhelmed by the response to my post this morning regarding the London 10...

william1945

CLLSA•10 years ago

Finally got a copy of last blood work results Lympho count in units 10^9/L was 6.06 ,WBC 10^9/L was 10.90 RBC 10^12/L was 4.15 ,does that look reasonable ??...

Blood Work Results

Finally got a copy of last blood work results Lympho count in units 10^9/L was ...

DSMITCH

•10 years ago

This sunday,13th July , I am taking part in the London 10k to raise funds for CLLSA. I have been on watch and wait for almost 20 years and at almost 70 years...

I'm up for it

This sunday,13th July , I am taking part in the London 10k to raise funds for CL...

william1945

CLLSA•10 years ago

9 Replies

Afib continues

Now wearing a heart monitor. Cardiologist adjusting metoprolol Up to 100 mg now. On "Vacation" from Ibrutinib. See My oncologist on the 22nd. Wondering...

Now wearing a heart monitor. Cardiologist adjusting metoprolol Up to 100 mg n...

Ragsgolf

•10 years ago

I have been seeing two different CLL people because I couldn't decide between the two, overall they both have agreed for the past ~18 months Watch & Wait....

Two complete opposite opinions

I have been seeing two different CLL people because I couldn't decide between th...

rlyndecker

•10 years ago

14 Replies

Agent Orange ingredient 2,4-D could soon be sprayed on thousands of fields near U.S. schools

Another scary article in naturalnews about increase usage of Agent Orange...

•10 years ago

WBC 118 RBC 3.34 HGb 110 (11) HCT 0.34 MCV 101.3 MCH 32.9 MCHC 325 RDW 15.4 PLT 15.4 Neut percent 0.9 Lymph percent 79.6 Absolute Nuets 1.02 Absolute Lmphs...

That's it then FCR here we come

WBC 118 RBC 3.34 HGb 110 (11) HCT 0.34 MCV 101.3 MCH 32.9 MCHC 325 RDW 15.4 PLT ...

Cammie

•10 years ago

16 Replies

What can cause some with extremely high ALC/WBC counts to continue on 'watch and wait' while others with relatively low #s need treatment?

I've read a few posts describing how one's 'watch and wait' status may continue even as lymphocyte and white blood cell counts climb into the hundreds (i.e.,...

I've read a few posts describing how one's 'watch and wait' status may continue ...

gemit2000

•10 years ago

Read this important article if you live in US. Dangers of using the most popular herbicide (Roundup) in US. It is brought to you by the same company MONSANTO...

Roundup Herbicide Linked to Tumors, Organ Damage

Read this important article if you live in US. Dangers of using the most popular...

•10 years ago

This article, by Chris Forbes-Ewan, Senior Nutritionist at Australia's Defence Science and Technology Organisation, commences with a critique of Turmeric's...

Health Check: eat food, not (blockbuster) nutrients like Turmeric

This article, by Chris Forbes-Ewan, Senior Nutritionist at Australia's Defence ...

Administrator•10 years ago

Cold agglutinin is a rare autioimmunine disease that is seem with people with a lymphoma or leukemia. My husband has SLL with is very similar to CLL but has...

Does anyone have Cold agglutinin disease that has CLL/SLL

Cold agglutinin is a rare autioimmunine disease that is seem with people with a ...

Saratoga

•10 years ago

13 Replies

Hi all, has anybody had experience of ibrutinib ? Side effects etc ?

norahmaria

•10 years ago

11 Replies

Take a plane to Seattle to meet and learn more

Ok I know there are many in the UK here, but aren't you due for a vacation in Seattle where it will be sunny and war, but not hot? Volcanoes, mountains,...

Ok I know there are many in the UK here, but aren't you due for a vacation in Se...

andrewschorr

•10 years ago

5 Replies

A Guide To Using Herbs When You Cook (Infographic)

This is for those of us who enjoy cooking. Happy cooking this 4th of July....

•10 years ago

Does she have to live, I don't believe she can live another year

My aunt 88 as been diagnosed with leukima, she as blood transfusions every other week and platelet. Her platelets are below 10, how long?

Hidden

•10 years ago

hi all,just had my 4 month check with consultant and everything ok but he said platelets were a bit low,he didnt tell me what they were but wants to keep an...

platelets low

hi all,just had my 4 month check with consultant and everything ok but he said p...

welshlady52

•10 years ago

30 Replies

Top 2 Food Additives that are Stealing Years from Your Life

Another informative article for any cancer patient published in thealternativedaily.com...

Another informative article for any cancer patient published in thealternativeda...

•10 years ago

See if this blog resonates with you! http://blog.patientpower.info/2014/07/02/holding-an-estate-sale-while-you-are-still-alive/

My latest blog on an estate sale while still alive

See if this blog resonates with you! http://blog.patientpower.info/2014/07/02/ho...

andrewschorr

•10 years ago

7 Replies

Will your next smart phone app check if your pills are counterfeit?

With Ibrutinib pills working out at about US$90 each, it is no wonder that counterfeit drugs are a serious and growing problem. One company is making...

With Ibrutinib pills working out at about US$90 each, it is no wonder that count...

Administrator•10 years ago

A new article in Foodmatters.tv...

7 TIPS FOR FUN IN THE SUN