I have been seeing two different CLL people because I couldn't decide between the two, overall they both have agreed for the past ~18 months Watch & Wait. Well things have progressed a lot this past year for me. The fatigue has gotten really bad, many drs. have commented on the glands in my neck being really swollen (I have no spleen, it was removed 22 years ago), I have had a really hard time recovering when I get sick or when I get a cut or infection, I am getting night sweats, and I just feel sick often. I saw Dr. #1 who is farther away & posted about him wanting to do treatment in the form of a trial- got great advice- he'd want me to be down there basically every 2 weeks which would be very hard for me. So he did give me a choice to see Dr. #2 and so I did today, he was VERY egotistical today (not usually this bad) and said he didn't really know that the fatigued was from the CLL and that he ddi NOT recommend Chemo pretty much because of my age (40) and because he didn't feel my glands were that bad. I was so shocked. I don't know what to do.
I know my #'s aren't nearly as high as many others who are being treated (WBC 34.1; Platelet 523;Abs Lymphs26.6; The Abs. Lymphs has NOT doubled in the year, it's gone up only 50%) but the way I feel is why Dr. #1 was thinking it was time for treatment but Dr. #2 basically blew off how I felt.
I've tried exercising a little more to help with energy, that hasn't helped at all, I'm taking all these vitamins, doing everything everyone suggests etc.
What now??? THANK YOU!