Cold agglutinin is a rare autioimmunine disease that is seem with people with a lymphoma or leukemia. My husband has SLL with is very similar to CLL but has secondary cold Agglutinin .I have not seen many people with this rare disease and need to get to talk to others.. Many seem to live in Norway with only about 1200 cases in the US.. If anyone has knowledge please respond, your help with many questions we have will be greatly appreciated. The two hospitals and doctors from both saratoga NY. And dana Farber in boston don't know much about it. He is in the hospital as we speak and having trouble trying to get his red blood count stable... Many thanks in advance for your help...
Last edited by Saratoga
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