Hello everyone. I have been reading posts daily since joining and find the community a good resource. Thank you.
I have been on W/W since September 2012 and have remained stable since then. However, last February I had bowel, sacrum and sciatic nerve pain. My GP did several tests but they all came back with good results.
I contacted my consultant and he arranged a CT scan and I expected those results at my next appointment on 28 April 2014. The results were not available at that appointment but my blood test results that day showed that I had become neutropenic with neutrophils at 0.63. A bone marrow biopsy was arranged and an appointment for 27 May 2014 for both the CT and Bone marrow test results.
On the 27th May, I was told that the test showed that everything was the same as two years ago but I remained neutropenic. I was prescribed 10 nightly injections of G-CSF and told to come back in 8 weeks. During that time the hip, bowel and nerve discomfort went.
I had an appointment yesterday and my neutrophils were still low. I have been prescribed another 8, G-CSF twice weekly and was told that if these didn't work then my next step would be FCR.
I have remained stable for two years and feel that FCR is an extreme step to take when other options may be available to correct my neutrophils.
I would welcome any opinions.