Help! Tongue and lip ulcer : Started Ibrutinib... - CLL Support

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Help! Tongue and lip ulcer

Tovtovtov profile image
9 Replies

Started Ibrutinib 12 days ago. Receiving 3rd of 4 weekly Rituximab infusions this week.

Developed painful tongue ulcer about a week ago. Any ideas to reduce pain???

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Tovtovtov
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9 Replies
Center profile image
Center

Hey, tovtovtov......I am on ibrutinib 3rd week....will recieve retux...once a month...only a rash for me so far ,otherwise feel great. Is your ulcers from ibrutinib or retuximab? Or insure

Tovtovtov profile image
Tovtovtov in reply to Center

Don' t really since Iegan them concurrently. So glad your are feeling great. Stay strong!

Tovtovtov profile image
Tovtovtov in reply to Tovtovtov

Meant to say I began, not legan.sorry for typo...

Cllcanada profile image
CllcanadaTop Poster CURE Hero

Advise your doctor, it might be herpes simplex reactivation... you may need antiviral medication.

Tovtovtov profile image
Tovtovtov

Thank you

fieldmeadow profile image
fieldmeadow

Yes, check with doctor if you haven't already done so (I see you posted 4 days ago).

(The only thing I found that helped me for bog standard mouth ulcers was Anbesol gel or liquid. Pharmasist will tell you if it's okay for you to use or not)

Tovtovtov profile image
Tovtovtov in reply to fieldmeadow

Thank you. Doctor prescribed "Magic Mouthwash" and 5 days of Diflucan (anti-fungal drug) yesterday. Seeing improvement.

fieldmeadow profile image
fieldmeadow

So pleased you are seeing improvement and that you saw a doctor.. Mouth ulcers can be so painful and prevent you enjoying food and drink. Hope they soon heal completely.

Tovtovtov profile image
Tovtovtov in reply to fieldmeadow

Thank you so much. Wishing you good health.

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