First Easter greetings to you all, and many thanks for the great articles you all post.
I've been reading the site for a while, and thought it time to register.
Also joined the CLLSA:
First question I wanted to ask:
A long time ago I read patient profiles on:
I found that really useful being new to CLL as a patient (although I'm a familial case) given the variability of the condition (don't like to call it a disease, and everyone seems to have CLL/MBL albeit in very low concentrations).
Assume "Health Unlocked" has largely taken over, but guess the ukcllforum still contains lots of useful info on specific issues.
Wondered if there is any equivalent on the new "Health Unlocked" and/or any way to create ?
Also what do people think about this kind of info ?
e.g. If you take the case of Brian Koffman's excellent blog (thanks "Hairbear" for all the links to that):
I'd be interested to know how many rounds of Chemo Brian has done by now (it will take me some time to read all his great posts)
I think for several reasons this kind of profile info ideally needs to be maintained, or if not possible, explanation given, and that's tricky.
Lots more questions and thoughts, but it's Easter and time to get out and try and catch a little sunshine - wrap up against the cold !