Posts - CLL Support | HealthUnlocked

CLL Support

23,340 members•40,049 posts

Richter's posts

Sort posts by:

UK Telegraph Newspaper report

Mike Peters from a Welsh music band The Alarm had CLL for 29 years but was diagnosed with a Richters transformation this year. He received treatment in the UK...

Mike Peters from a Welsh music band The Alarm had CLL for 29 years but was diagn...

Jm954

Administrator•2 months ago

7 Replies

Richter's and Novel Treatments/Combinations

We've had a few members post about Richter's recently so I thought it might be time for a bit of an update on new treatments. In these reports there is not a...

We've had a few members post about Richter's recently so I thought it might be t...

Jm954

Administrator•3 months ago

26 Replies

Transformation of Richter's Transformation Treatment to combination targeted therapy - tislelizumab +zanubrutinib (ASH 2023)

Richter's Transformation treatments are typically fixed term R-CHOP*, or modifications of that chemoimmunity therapy. So it's encouraging to hear that "In a...

Richter's Transformation treatments are typically fixed term R-CHOP*, or modific...

AussieNeil

Administrator•1 year ago

3 Replies

Want to take advantage of all our features? Just log in!

Side effects of both chemotherapy and radiation to treat CLL and lymphoma

I’m addressing seoul1949 here. First diagnosed with CLL in 2002 and then more recently with non-Hodgkin’s lymphoma. Over the last five years I’ve had two...

I’m addressing seoul1949 here. First diagnosed with CLL in 2002 and then mor...

leopardo

•1 year ago

1 Reply

Patient Power Presents – Dr. Matthew S Davids: Update on Treatment Studies in Richter’s

Click on the link to watch a short video of Dr. Matthews discussing recent data related to treatment studies for Richters Transformation -...

Click on the link to watch a short video of Dr. Matthews discussing recent data ...

Smakwater

•1 year ago

8 Replies

Research Evaluating Risk of Richter Syndrome

Apologies if this has been posted before, do feel free to delete and re-direct me if so. It is of particular interest to me because my recent experience...

Apologies if this has been posted before, do feel free to delete and re-direct m...

jonathan7176

•2 years ago

5 Replies

Treatment of Richter's syndrome - ASH 2022 Education Program

This year's American Society of Hematology (ASH) annual conference is now underway and the ASH Education Program, Volume 2022, Issue 1 booklet that was...

This year's American Society of Hematology (ASH) annual conference is now underw...

CLLerinOz

Administrator•2 years ago

4 Replies

Results from Phase 2 study of nivolumab plus ibrutinib in patients with diffuse large b-cell Richter Transformation of CLL

A research article that reports on "A Phase 2 Study of Nivolumab Combined with Ibrutinib in Patients with Diffuse Large B-cell Richter Transformation of...

A research article that reports on "A Phase 2 Study of Nivolumab Combined with I...

CLLerinOz

Administrator•2 years ago

1 Reply

Richter’s Transformation - Detection of early seeding of Richter transformation in chronic lymphocytic leukemia

Very interesting article on TR with Dr. Elias Campo among other doctors. Article published by the journal Nature. Posted on August 11. Read it because it gives...

Very interesting article on TR with Dr. Elias Campo among other doctors. Article...

Priss69

•2 years ago

29 Replies

Richter transformation of chronic lymphocytic leukaemia: a British Society for Haematology Good Practice Paper

Richter's - we all dread that word and try not to think about it but if the worst does happen then it's good to be well informed, preferably beforehand. This...

Richter's - we all dread that word and try not to think about it but if the wors...

Jm954

Administrator•2 years ago

6 Replies

Richter's syndrome - Update- Lecture by pathologist Elias Campo

Hello everyone Yesterday I had the pleasure of attending a conference given by the pathologist PR Elias Campo at the Oncopole hospital in Toulouse. The topic...

Hello everyone Yesterday I had the pleasure of attending a conference given by t...

Priss69

•2 years ago

11 Replies

Forward momentum in Richters/DLBCL?

A small bit of encouragement. VJHEMONC video - Graham Collins, MA, MBBS, MRCP, FRCPath, DPhil, Oxford University Hospitals NHS Foundation Trust, Oxford, UK,...

A small bit of encouragement. VJHEMONC video - Graham Collins, MA, MBBS, MRCP, F...

Smakwater

•3 years ago

9 Replies

Watch & Wait versus the risk of Richter’s

I am newly diagnosed. No “B symptoms”. I have probably had this for a few years already given that my lymphocytes have been sufficiently high to “qualify”. So...

I am newly diagnosed. No “B symptoms”. I have probably had this for a few years ...

Luap001

•4 years ago

15 Replies

First line treatment failure. Transformation.

My father has been on the combination obinutuzamb/venetoclax first line treatment for CLL with aggressive features since March 2020, and had his one year CT...

My father has been on the combination obinutuzamb/venetoclax first line treatmen...

Phs2385

•4 years ago

6 Replies

My "N of 1" trial with Ibrutinib + Idelalisib + Venetoclax that lead to remission of Richter's in three weeks.

I wanted to share an update as my “N of 1 trial” have so far been a success for me. I reached remission in a very unexpectedly and to me almost...

I wanted to share an update as my “N of 1 trial” have so far been a success fo...

UniversallyPersonal

•4 years ago

17 Replies

Richter's Syndrome! One pill, Triple Combination Therapy is in clinical trial for Richter’s Transformation & De Novo Large B-Cell Lymphoma

Richter's Syndrome! One pill, Triple Combination Therapy is in clinical trial for Richter’s Transformation and De Novo Large B-Cell Lymphoma with impressive...

Richter's Syndrome! One pill, Triple Combination Therapy is in clinical trial fo...

bkoffman

CLL CURE Hero•4 years ago

5 Replies

Richter’s Transformation

Hello family. I hope everybody is fine. I feel good, the only thing is the joints that are destroying me with the treatments. My knees hurt a lot. On the other...

Hello family. I hope everybody is fine. I feel good, the only thing is the joint...

Priss69

•4 years ago

21 Replies

Richter’s Transformation: When a Slow-Growing Cancer Turns Aggressive

Here is an interesting article. Greetings Family. https://www.survivornet.com/articles/richters-transformation-when-a-slow-growing-cancer-turns-aggressive/

Here is an interesting article. Greetings Family. https://www.survivornet.com/a...

Priss69

•4 years ago

6 Replies

Richter Transformation - Update

Hi everybody how are you? I'd like to put you all in my current state, after full remission. As you know, they treated me with R-CHOP and did not transplant...

Hi everybody how are you? I'd like to put you all in my current state, after ful...

Priss69

•4 years ago

10 Replies

Results of my first Scanner. Richter’s Transformation

Hello family. I put the results of my first scan that I did yesterday. Tomorrow I have a consultation with my hematologist. What is your opinion?. A hug....

Hello family. I put the results of my first scan that I did yesterday. Tomorrow ...

Priss69

•4 years ago

13 Replies

An investigation into the fake Richters is about to open

Hi all. Yesterday an investigator contacted me. He has proposed an extensive study to know how RT behaves once Ibrutinib is withdrawn. Patients with RT are...

Hi all. Yesterday an investigator contacted me. He has proposed an extensive stu...

Priss69

•4 years ago

48 Replies

Richter transformation after quitting ibrutinib: a diagnostic error

Hi all. The topic of the connection between Ibrutinib and the Richter transformation is getting very interesting. In the group that I have on Facebook every...

Hi all. The topic of the connection between Ibrutinib and the Richter transforma...

Priss69

•4 years ago

27 Replies

Can Ibrutinib give false Richter?

Hi all. I hope that you are well. As you know I made a Facebook group to bring all the Richter cases together. We are a few and these last weeks people with...

Hi all. I hope that you are well. As you know I made a Facebook group to bring a...

Priss69

•4 years ago

19 Replies

Richter's Syndrome - Possible relapse

Hello friends. I noticed a lump under the right jaw the size of an olive. Start noticing it two weeks ago. It is hard and painful to the touch. My neck hurts...

Hello friends. I noticed a lump under the right jaw the size of an olive. Start ...

Priss69

•5 years ago

39 Replies

Leukaemia Care Updated Patient Information - Richter's Syndrome in Chronic Lymphocytic Leukaemia

Leukaemia Care is a UK charity so the support information is UK based. However the information about Richter's is useful, up to date and well laid out....

Leukaemia Care is a UK charity so the support information is UK based. However ...

Jm954

Administrator•5 years ago

23 Replies

Write a post or ask a question

Posts - CLL Support | HealthUnlocked

CLL Support

Richter's posts

UK Telegraph Newspaper report

Richter's and Novel Treatments/Combinations

Transformation of Richter's Transformation Treatment to combination targeted therapy - tislelizumab +zanubrutinib (ASH 2023)

Side effects of both chemotherapy and radiation to treat CLL and lymphoma

Patient Power Presents – Dr. Matthew S Davids: Update on Treatment Studies in Richter’s

Research Evaluating Risk of Richter Syndrome

Treatment of Richter's syndrome - ASH 2022 Education Program

Results from Phase 2 study of nivolumab plus ibrutinib in patients with diffuse large b-cell Richter Transformation of CLL

Richter’s Transformation - Detection of early seeding of Richter transformation in chronic lymphocytic leukemia

Richter transformation of chronic lymphocytic leukaemia: a British Society for Haematology Good Practice Paper

Richter's syndrome - Update- Lecture by pathologist Elias Campo

Forward momentum in Richters/DLBCL?

Watch & Wait versus the risk of Richter’s

First line treatment failure. Transformation.

My "N of 1" trial with Ibrutinib + Idelalisib + Venetoclax that lead to remission of Richter's in three weeks.

Richter's Syndrome! One pill, Triple Combination Therapy is in clinical trial for Richter’s Transformation & De Novo Large B-Cell Lymphoma

Richter’s Transformation

Richter’s Transformation: When a Slow-Growing Cancer Turns Aggressive

Richter Transformation - Update

Results of my first Scanner. Richter’s Transformation

An investigation into the fake Richters is about to open

Richter transformation after quitting ibrutinib: a diagnostic error

Can Ibrutinib give false Richter?

Richter's Syndrome - Possible relapse

Leukaemia Care Updated Patient Information - Richter's Syndrome in Chronic Lymphocytic Leukaemia

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive