Forward momentum in Richters/DLBCL?: A small bit... - CLL Support

CLL Support

23,335 members40,039 posts

Forward momentum in Richters/DLBCL?

Smakwater profile image
9 Replies

A small bit of encouragement.

VJHEMONC video - Graham Collins, MA, MBBS, MRCP, FRCPath, DPhil, Oxford University Hospitals NHS Foundation Trust, Oxford, UK, discusses data from the Phase III POLARIX study (NCT03274492) which evaluated polatuzumab vedotin plus rituximab, cyclophosphamide, doxorubicin, and prednisone

vjhemonc.com/video/jnnfvh7f...

youtu.be/JNNfvH7FxHc

Written by
Smakwater profile image
Smakwater
To view profiles and participate in discussions please or .
Read more about...
9 Replies
AussieNeil profile image
AussieNeilPartnerAdministrator

Thanks JM, and thanks for assigning a topic. I've actually changed the topic to Richters, which was added to the topics list a while ago. :)

Priss69 , this will be of interest to you.

Neil

Smakwater profile image
Smakwater in reply toAussieNeil

Thanks Neil

Priss69 profile image
Priss69 in reply toAussieNeil

Thank you very much for keeping me informed. I have to update all my information about the Richter Transformation

Deserthope profile image
Deserthope

My husband was just diagnosed with NHL Richters. It's in his bone marrow. He just had first RCHOP treatment about 3 days ago. We are devastated and scared. He does have 17p deletion. His sister is a bone marrow match. Any hope?

AussieNeil profile image
AussieNeilPartnerAdministrator in reply toDeserthope

We do have members who have had their Richters Transformation cured. A stem cell transplant can also cure CLL.

Neil

Deserthope profile image
Deserthope in reply toAussieNeil

Thank you. This is some hope. We will take any. He's a strong guy but this is grim news.

Smakwater profile image
Smakwater in reply toDeserthope

Of course there is hope. Although Richters is often more aggressive than CLL, It can be cured. There are some on this forum who have overcome Richters.

RCHOP is still the standard therapy, however, there are other avenues in the event that you need another option including CAR-T.

youtube.com/watch?v=YUw2rFS...

cllsociety.org/2021/04/ash-...

Wishing You the best and speedy recovery.

JM

Deserthope profile image
Deserthope

Thank you very much. I am trying to be strong, it's so new and there's a lot to take in. We have 3 sons - all 3 will be in college this fall. 3rd son just graduated h.s. 25th wedding anniversary next March.

Smakwater profile image
Smakwater in reply toDeserthope

Cancer does not play fair. Through this forum we help each other in part by sharing resources and substantiating hope. I am encouraged that you have three sons to build strength with. I have three brothers, and it has been a great support to have them share in challenge I have brought by having CLL.

Not what you're looking for?

You may also like...

Triplet Regimen Shows Promise in CLL -Zanubrutinib, obinutuzumab, & venetoclax combo achieves rapid undetectable MRD -MedPageToday -07/07/20

Treatment triple-header news from the MedPage Today. From the article: At the American Society...
cujoe profile image

NIH visit and Richters discussion

As some of you have posted about previously, today I also entered the NIH natural history study for...
BigfootT profile image

Disease Flare During Temporary Interruption of Ibrutinib Therapy in Patients with Chronic Lymphocytic Leukemia ( CLL ) - Pseudo Richters

Several of us have reported our CLL symptoms have come roaring back after discontinuing...
AussieNeil profile image
Partner

Zanubrutinib vs. Ibrutinib Patient Power Video by Dr. Jennifer Brown MD PHD

In this Patient Power video - Dr. Brown is very clear about the advantages of Zanubrutinib over...
lankisterguy profile image
Volunteer

Richters transformation

What is the prognosis for a person with richters transformation?
Feeb7 profile image

Moderation team

See all
CLLerinOz profile image
CLLerinOzAdministrator
Newdawn profile image
NewdawnAdministrator
AussieNeil profile image
AussieNeilAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.