Posts - CLL Support | HealthUnlocked

CLL Support

23,077 members • 39,636 posts

All posts for September 2024

NAD infusion therapy

Is it save to have a NAD (nicotinamide-adenine dinucleotide) infusion while taking acalabrutinib? My PA recommended I check with the pharmacist who was...

Is it save to have a NAD (nicotinamide-adenine dinucleotide) infusion while tak...

Sheepherder

•7 days ago

5 Replies

RSV vaccine

Hi all I asked my GP about the RSV vaccine for the immunosuppressed today. I was informed there is no plan to provide the vaccine for this group unless they...

Hi all I asked my GP about the RSV vaccine for the immunosuppressed today. I was...

annmcgowan

•7 days ago

44 Replies

need answer ASAP. Re infusions 😳😳😳

Is methotrexate similar to azacidine? Now the leukemia specialist is telling me that if they use the methotrexate INSTEAD of the azacitdine which I did so...

Is methotrexate similar to azacidine? Now the leukemia specialist is telling me...

JerrysGirl3

•7 days ago

43 Replies

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I’m still here :)

it’s been a while and my last post was not very positive . This is a quick update . I’m still unclear as to how I got here with my illness but I received...

it’s been a while and my last post was not very positive . This is a quick updat...

Hilo13

•8 days ago

24 Replies

Weight loss

I was diagnosed with sll and after biopsy was told stage 3a with swollen nodes above and below diaphragm. I have been taking acalabrutinib for little over 3...

I was diagnosed with sll and after biopsy was told stage 3a with swollen nodes a...

1reb

•8 days ago

7 Replies

"Accelerated" chronic lymphocytic leukemia/small lymphocytic lymphoma: unraveling CLL/SLL biological gray zone in the era of novel therapies

Encouraging news in this abstract from CLL/SLL researchers at the Northwestern Memorial Hospital, Northwestern University Feinberg School of Medicine, Chicago,...

Encouraging news in this abstract from CLL/SLL researchers at the Northwestern M...

AussieNeil

Administrator•8 days ago

9 Replies

ITP worse after CLL reactivated. 2,5 years after stopping Venetoclax/Rituximab with Umrd. Has anyone tried N-plate? Other options?

ITP (secondary to CLL) since 9 years. Treated with Prednisolone, Rituximab and trombopotein (Revolade). CLL treatment with Venetoclax 2021-2022. Stopped after...

ITP (secondary to CLL) since 9 years. Treated with Prednisolone, Rituximab and t...

Accordion

•8 days ago

3 Replies

WBC jumping around after surgery

Hello. I’m a 78 year old female in the U.S. who has been in W&W since 2017 when I was diagnosed with CLL. At my bi-annual checkup with my hematologist on...

Hello. I’m a 78 year old female in the U.S. who has been in W&W since 2017 when ...

Myfavoritecat

•9 days ago

9 Replies

Measurable residual disease (MRD) status predicts Progression Free Survival (PFS) for patients with Chronic Lymphocytic Leukemia (CLL)

Measurable residual disease (MRD) refers to the presence of disease at low levels not detected by conventional pathologic analysis. The association of MRD...

Measurable residual disease (MRD) refers to the presence of disease at low level...

AussieNeil

Administrator•9 days ago

24 Replies

Leukocytes found in urine - because of CLL?

I had a urine test which was part of my annual physical. It came back that I had leukocytes in my sample. The number mentioned was 70. I am in Canada so...

I had a urine test which was part of my annual physical. It came back that I ha...

Curling123

•9 days ago

5 Replies

Continued Journey

I’m at day +72 from my BMT. On day +70 on had labs and met with the medical team. Some of my concerns with weight loss and declining platelets were...

I’m at day +72 from my BMT. On day +70 on had labs and met with the medical tea...

FiArt12X

•9 days ago

12 Replies

Recent blood test results.

My husband received the flu shot a week ago and I'm wondering if the higher and lower numbers are the result of the shot or the shingles he had 3 months ago....

My husband received the flu shot a week ago and I'm wondering if the higher and...

Pinhead1

•9 days ago

4 Replies

Shingles Vaccine

I have now nearly reached 65 years of age! My GP surgery is offering me the shingles Vaccine. Has anyone had any side effects from it. I am worried...

I have now nearly reached 65 years of age! My GP surgery is offering me the...

Marisa

•9 days ago

30 Replies

Venetoclax

Hi everyone , I am so glad with this site. My name is Anja, 67 years old , and I live in the Netherlands. I was diagnosed with CLL in september 2010. In...

Hi everyone , I am so glad with this site. My name is Anja, 67 years old , a...

jroon08

•9 days ago

23 Replies

Hip Replacement and CLL

I have 17p deletion. Been on Ibrutinib since February 2019 and I am doing well! My numbers are all great and well within the “normal” range. I am scheduled...

I have 17p deletion. Been on Ibrutinib since February 2019 and I am doing well! ...

210savannah

•10 days ago

3 Replies

CLL along with hemolysis

i started OV treatment in April and have finished the cycles of Obinutuzumab. My Venetoclax dose has been changed a number of times due to counts. Last few...

i started OV treatment in April and have finished the cycles of Obinutuzumab. My...

Swanseacity

•10 days ago

6 Replies

Lymphocyte count going down slightly

I've been diagnosed with CLL once, then had it confirmed by a second specialist in the past few days. I was interetested to see my lymphocyte count has gone...

I've been diagnosed with CLL once, then had it confirmed by a second specialist ...

Fred_Green

•12 days ago

12 Replies

Update

Hi peeps and peepesses😀! Just an update. Last post I wrote my haemo wanted to treat at the next consultation because of doubling . But no. He will wait till...

Hi peeps and peepesses😀! Just an update. Last post I wrote my haemo wanted to t...

Guffy

•12 days ago

6 Replies

Covid and a Second Round of Paxlovid

I have CLL that became active along with Autoimmune Hemolytic Anemia (AIHA) in 2020. I was treated and went into remission. This spring I again had AIHA and...

I have CLL that became active along with Autoimmune Hemolytic Anemia (AIHA) in ...

Dodger47

•12 days ago

10 Replies

HUCT/Stem Cells for Joint Repair

I assist my brother with his 4 Regenerative Joint Repair Clinics. At the clinics, they inject joints (knees, hips, shoulders, ankles, etc) with Human...

I assist my brother with his 4 Regenerative Joint Repair Clinics. At the clinic...

Deach

•13 days ago

4 Replies

Novavax vs Pfizer/Moderna 2024

Novavax has recently been approved in the US for distribution this fall. I have received a total of 8 Covid vaccines-3 were Pfizer, 5 were Moderna. I...

Novavax has recently been approved in the US for distribution this fall. I have ...

MiloG

•13 days ago

10 Replies

CLL & skin infection

I was diagnosed with CLL in 2002 & been on wait & watch until recently. Treatment with FCR is imminent but only after a severe skin infection has cleared up....

I was diagnosed with CLL in 2002 & been on wait & watch until recently. Treatm...

Happy-Daze

•14 days ago

10 Replies

thirst

imbruvica thirst, have you ever experience while taking IMBCA?

Superviktor

•14 days ago

1 Reply

Continued Journey

This is day +67 for me since by Bone Marrow Transplant. Happy Labor Day here in the USA. I had been cruising along with a few seemingly minor issues. GI tract...

This is day +67 for me since by Bone Marrow Transplant. Happy Labor Day here in ...

FiArt12X

•14 days ago

10 Replies

What questions should I ask my doctor at my first follow-up?

I was diagnosed with CLL a couple weeks ago and the results of my initial blood tests are in. I probably know enough to be dangerous at this point but, from...

I was diagnosed with CLL a couple weeks ago and the results of my initial blood ...

goyo457

•15 days ago

6 Replies

aspirin when withholding ibrutinib

I took a daily low dose aspirin before I started ibrutinib in 2019, as I had had a TIA in 2013. Once I started ibrutinib, it sufficed. I am withholding...

I took a daily low dose aspirin before I started ibrutinib in 2019, as I had had...

ElMaga

•15 days ago

2 Replies

Acute myeloid

My mother was diagnosed with AML on Valentine's day in 2017 she died 6 months later . I know it says CLL doesn't transform to AML but I can't help but worry it...

My mother was diagnosed with AML on Valentine's day in 2017 she died 6 months la...

CountryHarbour

•15 days ago

4 Replies

Nanobots, Scroll down to see Video- Thank you

Rehttps://www.msn.com/en-us/health/other/combo-immunotherapy-produces-distinct-waves-of-cancer-fighting-t-cells-with-each-dose/ar-AA1pEDpY?ocid=msedgntp&pc=DCTS

Rehttps://www.msn.com/en-us/health/other/combo-immunotherapy-produces-distinct-w...

bagelstreet225

•15 days ago

5 Replies

cll and diarrhea

any suggestions how to mitigate the diarrhea. I’ve been on Venteclaxta 400 mg for 2/12 months and I cannot get a handle on this . All suggestions welcome

any suggestions how to mitigate the diarrhea. I’ve been on Venteclaxta 400 mg f...

Cll12

•15 days ago

27 Replies

best time to take imbruvica with food or withou?

Superviktor

•16 days ago

3 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2024

NAD infusion therapy

RSV vaccine

need answer ASAP. Re infusions 😳😳😳

I’m still here :)

Weight loss

"Accelerated" chronic lymphocytic leukemia/small lymphocytic lymphoma: unraveling CLL/SLL biological gray zone in the era of novel therapies

ITP worse after CLL reactivated. 2,5 years after stopping Venetoclax/Rituximab with Umrd. Has anyone tried N-plate? Other options?

WBC jumping around after surgery

Measurable residual disease (MRD) status predicts Progression Free Survival (PFS) for patients with Chronic Lymphocytic Leukemia (CLL)

Leukocytes found in urine - because of CLL?

Continued Journey

Recent blood test results.

Shingles Vaccine

Venetoclax

Hip Replacement and CLL

CLL along with hemolysis

Lymphocyte count going down slightly

Update

Covid and a Second Round of Paxlovid

HUCT/Stem Cells for Joint Repair

Novavax vs Pfizer/Moderna 2024

CLL & skin infection

thirst

Continued Journey

What questions should I ask my doctor at my first follow-up?

aspirin when withholding ibrutinib

Acute myeloid

Nanobots, Scroll down to see Video- Thank you

cll and diarrhea

best time to take imbruvica with food or withou?

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