Continued Journey : I’m at day +72 from my BMT... - CLL Support

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Continued Journey

FiArt12X profile image
12 Replies

I’m at day +72 from my BMT. On day +70 on had labs and met with the medical team. Some of my concerns with weight loss and declining platelets were considered.

I had finally regained some weight 3lbs. This was an indication the steroid budesonide was beginning to help food absorption of nutrients. There are still GI issues, bowel movements and some general discomfort. Yet, the medical team is confident these will resolve over time. They indicated a lot may happen between now and day 100. For example my blood will transition, change from O- to O+ which is my donors type. Then I will see hematocrit, hemoglobin and red cells climb into normal ranges.

The platelets they anticipate that have slowed in their decline 57 to 52 will reverse their trend. I was very concerned Sunday when I had a bloody nose for 20 minutes! I have not had a problem since.

Looking forward to continuing improvement!

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FiArt12X profile image
FiArt12X
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12 Replies
Justasheet1 profile image
Justasheet1

Outstanding progress!!! 🍻

Poodle2 profile image
Poodle2

Thank you for your regular updates. I bet you can't wait to reach day 100. Praying you continue progressing just the way they are predicting you will. You have gone a long way ❤️❤️❤️

Jm954 profile image
Jm954Administrator

It's not a straightforward recovery is it? Post alloSCT my Hb never recovered on it's own (from 0+ to A+) and I'm having monthly EPO injections to keep it at the bottom end of the normal range. Wishing you continuing improvement.

Jackie

FiArt12X profile image
FiArt12X in reply toJm954

Thank you, I should have known this would be a transition yet some information gets missed with all that’s happening.

Jm954 profile image
Jm954Administrator in reply toFiArt12X

I hope your GI issues resolve soon, I found they were some of the most limiting things I had to deal with. x

FiArt12X profile image
FiArt12X in reply toJm954

I appreciate the empathy!

CLLCalifornia-USA profile image
CLLCalifornia-USA

Hey, it’s the small things that keep us going. So happy to hear how well you’re doing. My prayers continue with you.🙏Sally

thompsonellen2 profile image
thompsonellen2

Thanks for posting. Looking forward to hearing about your improvements.

studebaker profile image
studebaker

🥂here is to continuous improvement for you 💐

Dana

DoriZett profile image
DoriZett

Great news FiArt12x! Keep going! 👍😀

Stamphappy profile image
Stamphappy

Nice to hear you are surging onward 💪 😊 ! Keep that positive attitude perking! Thank you for keeping us posted. Wishing you all the best and praying for your continuing success ❤️.

FiArt12X profile image
FiArt12X in reply toStamphappy

Thank you

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