Posts - CLL Support | HealthUnlocked

CLL Support

22,864 members • 39,227 posts

All posts for July 2024

Continued Journey

Day +14: I am presently unhooked from my medication pole. It is a great feeling to be able to be more mobile around my “suite”. Accommodations here quite...

Day +14: I am presently unhooked from my medication pole. It is a great feel...

FiArt12X

•11 days ago

4 Replies

“The Lowest Levels of CLL I’ve Ever Seen”Jul 8, 2024 By Kerry A. Rogers, MD. Ibrutinib, Gazyva plus venetoclax and Sonrotoclax and Zana,

Hello, I came across this great video. Ohio State Univeristy, FYI- REMISSION- 8 PLUS YEARS OUT ...

Hello, I came across this great video. Ohio State Univeristy, FYI- REMIS...

bagelstreet225

•12 days ago

2 Replies

Obinutuzumab infusion and

Hi All had my two first infusions on Tuesday and Wednesday no issues at all despite some posts I have seen. Steroids did cause sleeping issues later but I...

Hi All had my two first infusions on Tuesday and Wednesday no issues at all des...

TheFlyer

•12 days ago

9 Replies

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Thank you

To everyone who replied to my post ,thank you. I wish you all good luck with your treatments.

To everyone who replied to my post ,thank you. I wish you all good luck with yo...

manzelka

•12 days ago

Be the first to reply

CLL treatment

I have CLL. I be am 4 months into a 1 year targeted immunotherapy plan. I receive a monthly infusion of Obitinubinazab and 300mg venclexta daily. I am very...

I have CLL. I be am 4 months into a 1 year targeted immunotherapy plan. I receiv...

IhaveCLL1

•12 days ago

9 Replies

6 weeks after Rituximab platelets have dropped

Is it normal for platelets to drop a few weeks after Rituximab treatment? Is this concerning? Immediately after last Rituximab treatment platelets were 216 and...

Is it normal for platelets to drop a few weeks after Rituximab treatment? Is thi...

Redkatt

•12 days ago

7 Replies

Doxycycline long term use

Hi, I’m 11 months into my 15 month treatment for CLL. I’m on Ibrutinib with Venetoclax and it’s suited me well, and I’m really pleased that my bloods now...

Hi, I’m 11 months into my 15 month treatment for CLL. I’m on Ibrutinib with V...

Smiley60

•12 days ago

7 Replies

about tivdak 40 mg (tisotumab)

hello everyone, I want to buy Tivdak 40 mg from USA does anyone knows the process and where can i find ?

hello everyone, I want to buy Tivdak 40 mg from USA does anyone knows the proces...

omarhan45

•12 days ago

5 Replies

diets ? Supplements?

hello, l have literally just been diagnosed with SLL Feeling shocked, anxious and not sure how l am going to tell my family…..all the usual My question is...

hello, l have literally just been diagnosed with SLL Feeling shocked, anxious ...

Northseaswimmer

•12 days ago

27 Replies

Coming off Calquence after 3 Years. The reason is I had a pain in my chest like some one was stabing me in the chest

Coming off calquence after 3 Years every thing was good I was told I was in remison . The reason I came off was a pain in the middle of my chest felt like I...

Coming off calquence after 3 Years every thing was good I was told I was in remi...

Wgsljs

•12 days ago

13 Replies

What do I ask for to check diagnosis?

These are the details I have currently

13pinkzebras

•13 days ago

7 Replies

Side effect -Zanubrutinib

Hey y’all, I started taking Zanubrutinib yesterday. I have become pretty hoarse today. Anyone else experienced this? Thanks

Hey y’all, I started taking Zanubrutinib yesterday. I have become pretty hoarse...

Nana1961

•13 days ago

4 Replies

grateful

Husband isn't on any treatment for the CLL at the moment and hasn't been since stopping Veneteclax a year after having the treatment due to various side...

Husband isn't on any treatment for the CLL at the moment and hasn't been since s...

manzelka

•13 days ago

10 Replies

UTI experience with Imbruvica

hello, when I was on Imbruvica I had many UTI. This is side effects of Imbruvica. I asked my doctor to switch me for another medication and now they m on...

hello, when I was on Imbruvica I had many UTI. This is side effects of Imbruvica...

farber

•13 days ago

2 Replies

Looking for an integrative medicine oncologist in the U.S.

I would like to find an Integrative Medicine Oncologist for consultation for Cll in the U. S, The ones I have found so far are not in my network for...

I would like to find an Integrative Medicine Oncologist for consultation for Cll...

montieth

•13 days ago

21 Replies

Safety of undercooked food

My wife has CLL and is in wait and watch. She has a lot of concern always about whether food is cooked properly or not. She is worried if the food is...

My wife has CLL and is in wait and watch. She has a lot of concern always abou...

mwelch

•14 days ago

8 Replies

Thankyou and goodbye

I just wanted to say Thankyou to each and everyone of you who have replied encouraged and shared your knowledge with me over the years . I am leaving this...

I just wanted to say Thankyou to each and everyone of you who have replied encou...

Hilo13

•14 days ago

42 Replies

raised AST (SGOT) levels and your history with CLL

when i was DX 7 years ago, my AST levels were at around 30. my oncologist hasn't said much about the fluctuations, which have gone up to 50 on occasion. so...

when i was DX 7 years ago, my AST levels were at around 30. my oncologist hasn't...

ninap

•14 days ago

5 Replies

Bug bite

I recently visited my dermatologist with a rash that was popping up all over my body especially on my upper chest. I was diagnosed with CLL/SLL about 5 years...

I recently visited my dermatologist with a rash that was popping up all over my ...

Willowbug

•15 days ago

16 Replies

21Bedlam21

I have had CLL for a couple of years now. I am on watch and wait. I have posted on this sight before. I had reconstruction from my breast cancer a number of...

I have had CLL for a couple of years now. I am on watch and wait. I have posted ...

21Bedlam21

•15 days ago

27 Replies

Influenza A

So I contracted Influenza A and was pretty ill for 4 days but still not so good despite 6 days on Tamiflu. Wondering if anyone has 1 had influenza and how...

So I contracted Influenza A and was pretty ill for 4 days but still not so good ...

skipro

•16 days ago

14 Replies

Dermatology biopsy results consistent with diagnosis of CLL. Unclear what this means?

After a long wait, I had a dermatology appointment. The dermatologist examined all my skin and found a very small 'mole' on my back that she thought was...

After a long wait, I had a dermatology appointment. The dermatologist examined...

JEEA

•16 days ago

18 Replies

venclexta nausea?

I've been on fanatics for 6 months without any issues whatsoever. I stopped obin to do some insurance issues. I know I have severe nausea and lots of appetite...

I've been on fanatics for 6 months without any issues whatsoever. I stopped obin...

Swissnology

•16 days ago

9 Replies

Continued Journey

First thank you to those that have sent the supporting messages. Encouragement and prayers are always helpful. I am in day plus 7. Happy 4 th to the US A...

First thank you to those that have sent the supporting messages. Encouragement a...

FiArt12X

•18 days ago

8 Replies

First Post

Been lurking a while thank you for this forum it helps so much From UK husband has had CLL 15 years diagnosed at just gone 48 Been through a lot he didn't...

Been lurking a while thank you for this forum it helps so much From UK husband h...

Supersurfer1

•18 days ago

12 Replies

Pregnancy and treatment

A young friend (age 29) has just been hospitalised with breathing difficulties which they discover is being caused by a mass around her heart. They first...

A young friend (age 29) has just been hospitalised with breathing difficulties w...

Dawson21

•18 days ago

4 Replies

Update on Acaalabrutinib and Headaches

I started Acalabrutinib in December 2022. After being on the drug I was able to switch to Zanibrutinib. During my time on Acalabrutinib I had daily headaches....

I started Acalabrutinib in December 2022. After being on the drug I was able to ...

Katie-LMHC-Artist

•19 days ago

5 Replies

A.I. & Cancer treatment

AI Predicts Cancer Treatment Responses from Tumor Images...

Rando21

•19 days ago

14 Replies

Not officially diagnosed...in watch and wait

As the title says, I'm in the WW stage. I saw a hematologist 5 years ago about my lymphocytosis and he felt he could not give a definitive diagnosis. In March...

As the title says, I'm in the WW stage. I saw a hematologist 5 years ago about m...

Purplecat1919

•19 days ago

9 Replies

Pemgarda

I will be receiving Pemgarda on July 8th. From what I've read about others who have received it, there hasn't been any reactions (which is good to hear). One...

I will be receiving Pemgarda on July 8th. From what I've read about others who ...

OaktownN

•20 days ago

7 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2024

Continued Journey

“The Lowest Levels of CLL I’ve Ever Seen”Jul 8, 2024 By Kerry A. Rogers, MD. Ibrutinib, Gazyva plus venetoclax and Sonrotoclax and Zana,

Obinutuzumab infusion and

Thank you

CLL treatment

6 weeks after Rituximab platelets have dropped

Doxycycline long term use

about tivdak 40 mg (tisotumab)

diets ? Supplements?

Coming off Calquence after 3 Years. The reason is I had a pain in my chest like some one was stabing me in the chest

What do I ask for to check diagnosis?

Side effect -Zanubrutinib

grateful

UTI experience with Imbruvica

Looking for an integrative medicine oncologist in the U.S.

Safety of undercooked food

Thankyou and goodbye

raised AST (SGOT) levels and your history with CLL

Bug bite

21Bedlam21

Influenza A

Dermatology biopsy results consistent with diagnosis of CLL. Unclear what this means?

venclexta nausea?

Continued Journey

First Post

Pregnancy and treatment

Update on Acaalabrutinib and Headaches

A.I. & Cancer treatment

Not officially diagnosed...in watch and wait

Pemgarda

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