Continued Journey: Day +14: I am presently... - CLL Support

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Continued Journey

FiArt12X profile image
4 Replies

Day +14:

I am presently unhooked from my medication pole. It is a great feeling to be able to be more mobile around my “suite”. Accommodations here quite nice considering what most hospital rooms are like. it has been a rough go with a certain amount of nausea, lack of energy, and G.I. situations.

However, change in medication‘s, taking me off of any other things like steroids. Have me feeling a lot better. Still, all of the changes were due to concerns with kidney function and liver.

To be well enough to leave here I need to reach certain benchmarks. For example, ANC I was at1100 on day+1 by day +4 it was at zero and still is ( I need to be at 500 to be discharged) ; my platelets were at 1:34 and they got to two and day +12(infused platelets are helping that situation), up to a 6 as of today.

This will give you an idea of how far I have to go before I get discharged. And even then there’ll be a lot of medication’s in specific care necessary at home. However, all the doctors say, I’m doing great and these things are to be expected. So, onward and upward, we keep chugging forward. I have every confidence this BMT is going to work out.

Thank you to everyone for your comments, support and care.

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FiArt12X profile image
FiArt12X
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4 Replies
lankisterguy profile image
lankisterguyVolunteer

Hi FiArt12X,

It's great to read your progress after a bone marrow transplant June 27, we hope you keep improving and can get home soon. We appreciate getting an up close diary of the complex steps.

I have 2 suggestions to help all of us- first- please modify your postings to restrict (lock) them to this community - see item 12b on this pinned post healthunlocked.com/cllsuppo...

And please update your profile healthunlocked.com/user/FiA... with a summary of your last 30 days experiences, so we understand postings like todays

see #3 on healthunlocked.com/cllsuppo...

Len

Jm954 profile image
Jm954Administrator

Good to hear that all is going to plan. I think left hospital on Day +24 post transplant, hopefully you'll be able to get out soon. My bed never felt so good!

Jackie

Danie50 profile image
Danie50

yay! I hope you enjoyed your break and did alittle dance! Continue the healing journey!🧡🤗🤎

Justasheet1 profile image
Justasheet1

Keep it up. 🍻

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