I just wanted to say Thankyou to each and everyone of you who have replied encouraged and shared your knowledge with me over the years . I am leaving this community now to continue my journey however long or short that might be .
May I wish each one of you good luck and God bless . Chris x
Ps could someone help with removing me from the site please . Thankyou
Written by
Hilo13
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I appreciate you have some great health challenges at the moment which makes me even more sorry that you want to leave the site. You obviously have your reasons but please know you don’t have to leave. You can simply remain as a non contributing member and switch off notifications.
This gives you future options should your circumstances change and you choose to remain.
Obviously the choice is entirely yours but I’m concerned as to the emotions driving your decision. We are keen to be there for you.
Hi Chris, I turned off notifications too. For my own piece of mind, sometimes I need to not think about CLL. I just want to give you a heads up that, if you want to pop back in, the site will ask if you'd like to receive notifications. I always just click the "No" button.
I'm so sorry to hear that you're leaving. If it's one thing or someone that's prompted this or something that the admins can help with please send a PM / Chat message and we would probably be able to sort it for you. I feel you would still benefit from a safe place to talk over your worries.
Sending peace, love and a hug, always here for you
Chris, I'm pleased you reconsidered and are just switching off notifications. As you've seen, you would have been missed; we'd like to be here for you.
Chris, I hope you will "pop in" occasionally. You would be missed if you decided to leave but it's entirely your choice and we would all respect it and support you with your decision. I hope your chemo is going OK and it isn't too harsh and too much to deal with. Sending you a hug 🫂 Petra ❤️ (fellow O+V) xxx
Wow oh wow, what an amazing group of caring human beings you all are. It warms my heart to see you surround Hilo13 (Chris) with such support. I am proud to be a new member of this group and hope I too can be of some support to folks in the future. Blessings to you all!
Dear Chris. You can see by the huge number of replies you are getting, how respected and valued you are in this community. Thank you for having shared difficult things about your journey with CLL. As you know, these help us all to know that we are not alone when we are facing challenges with our health.
We also appreciate that you don't want to be bombarded with messages just now. As you go through whatever is ahead for you, remember that you are wrapped in the care and appreciation of all here who only know you through this forum. I am sure you have trusted ones who are supporting you now in person and can be with you through whatever each day brings.
Like others, I am glad that you will still be here in the background, and will reconnect should you find that you need us. Eleanor
bless you on your journey, but I also agree to try to stay connected. This group has been an excellent resource of the latest treatments. There are still treatments out there, like Car T and stem cell transplants. A very dear young lady friend ended up with an aggressive form of ALL and is going through the process now, with treatments laid out . We are extremely hopeful one will work! Stay as positive as you can!
Find a way to stay in touch and drop a line or two. Everyone here understands that feeling of just wanting to get distance from CLL, but there is great comfort in knowing there are loving arms waiting when you return, especially when others don’t get it, and how could they? We get it. Sending you comfort from a listening heart! 💓
Adding my best wishes to you as well Hilo13. It appears you are going through a very rough patch and I hope that it passes quickly. May all of the spirit here lift you up.
hey hey ! I understand the need to withdraw! But please please at least keep someone close to talk to lean o and cry and yell with! You really do need that ! Prayers and hugs to you !! We are always here !! 🤗🤗🤗🤎🤎🤎🧡🧡🧡🧡🙏🏽🙏🏽🙏🏽🙏🏽
All the best wishes in your journey. Many of us know how difficult it can be, but whatever your decisions are you know our hearts our with you. Until a future time: May the road rise up to meet you and the wind be always at your back!!
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