Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for September 2022

more adversity

as I said my last post, I got really really sick yesterday lightheaded etc. I go through these quite often lately other than just not feeling well all the...

as I said my last post, I got really really sick yesterday lightheaded etc. I g...

Hidden

•2 years ago

3 Replies

sickly

it's really sick the other day they they haven't done labs in a while

Hidden

•2 years ago

3 Replies

Additional Shingrix Vaccination?

I have CLL and have been successfully treated with O&V earlier this year. I also had the recommended two doses of the Shingrix vaccination (against Shingles)...

I have CLL and have been successfully treated with O&V earlier this year. I als...

GerryPL

•2 years ago

19 Replies

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Acalabrutinib and water

I was wondering, since starting Acalabrutinib four days ago and with all the water, (8cups) you have to drink, I have lost two pounds. Since I have lost 10...

I was wondering, since starting Acalabrutinib four days ago and with all the wat...

Curling123

•2 years ago

31 Replies

what Medication can stop PHN pain without side effects if I am on Wait and see with diagnosed CLL?

PHN pain from shingles and CLL

ibriody

•2 years ago

1 Reply

Infection after treatment forCLL

I finished my treatment for CLL a few weeks ago but have ended up in hospital for 3 weeks with a lung infection and temperature spikes that’s keeping me here....

I finished my treatment for CLL a few weeks ago but have ended up in hospital fo...

Alma555

•2 years ago

11 Replies

crispr

have there been any developments with crispr ?

Hidden

•2 years ago

1 Reply

Time to say goodbye.

Today is Mum's funeral. It has been quite a long wait but I will be relieved to see her on her way and try to move forward. It has been quite a strain as her...

Today is Mum's funeral. It has been quite a long wait but I will be relieved to...

Jacksc06

•2 years ago

70 Replies

Son in Canada looks to Germany for treatment

Our 56 year old son started with colon cancer, which progressed to lung cancer and now a tumor has been discovered by his sciatica nerve. He has been...

Our 56 year old son started with colon cancer, which progressed to lung cancer a...

CCgroup

•2 years ago

23 Replies

CLL, New Omicron shot, Current Flu shot, and monthly IV IgHv infusion. Is it OK to have all three in one week? I am currently on Ibrutinib!

CLL, New Omicron shot, Current Flu shot, and monthly IV IgHv infusion. Is it OK ...

Tapps

•2 years ago

5 Replies

Follow up on low platelets and stopping Acalabrutinib

Hi to all my CLL friends , i was doing well after 9 months on calquence ... i had minimal side effects which were occasional stabbing pains in my joints and...

Hi to all my CLL friends , i was doing well after 9 months on calquence ... i ha...

craterlake

•2 years ago

43 Replies

Covid-19 Vaccines — Immunity, Variants, Boosters

A broad sweep of a review article, just published in NEJM https://www.nejm.org/doi/full/10.1056/NEJMra2206573 It covers the current Covid19 vaccines, how well...

A broad sweep of a review article, just published in NEJM https://www.nejm.org/d...

bennevisplace

•2 years ago

2 Replies

Monoclonal antibodies vs. Paxlovid

I recently recovered from Covid-19 after taking Paxlovid. I was diagnosed with CLL in 2009 and began treatment with Ibrutinib in early December 2020. I also...

I recently recovered from Covid-19 after taking Paxlovid. I was diagnosed with C...

AVD92449

•2 years ago

27 Replies

Ibrutinib and Venetoclax side effect

Hi Everyone, I have been on Ibrutinib since April this year and added Venetoclax 2 months ago. 3 weeks ago my face and chest areas developed many red spots...

Hi Everyone, I have been on Ibrutinib since April this year and added Venetocl...

dave20

•2 years ago

9 Replies

New Diagnosis :what does all this blood work mean?

I was recently diagnosed with CLL. My hematologist/oncologist ran the standard tests and this is some of the info I see: No Jak2 17 mutation detected, No 9...

I was recently diagnosed with CLL. My hematologist/oncologist ran the standard t...

Adante

•2 years ago

21 Replies

Evusheld and Vaccine : new information

Tomorrow I will get my second series of Evusheld. I finally got some official information about how long to wait for new vaccine. Home now; all good The...

Tomorrow I will get my second series of Evusheld. I finally got some official i...

ElMaga

•2 years ago

16 Replies

Evosheld

This is an interesting article about Evosheld and take up figures. Wouldn't have to ask me twice!!...

This is an interesting article about Evosheld and take up figures. Wouldn't h...

kitchengardener2

•2 years ago

19 Replies

iron deficiency - something to be worry about ?

Hello all, My mom has a pretty bad iron deficiency. she already received a special injection in a day hospital 4 months ago and it was fine, but here it is...

Hello all, My mom has a pretty bad iron deficiency. she already received a spe...

Noham027

•2 years ago

11 Replies

Neanderthal DNA on Chromosome 12 Protective against Covid 19

COVID-19 Protection and Geographic Distribution.We find that the index variant of the protective haplotype in the GenOMICC study (rs10735079, P = 1.7e-8)...

COVID-19 Protection and Geographic Distribution.We find that the index variant o...

Palmetto

•2 years ago

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Good News Train

Hello CLLers Due to my very aggressive ALC doubling every 3 months and massive abdominal lymph nodes, my H/O thought I might have large cell lymphoma on top...

Hello CLLers Due to my very aggressive ALC doubling every 3 months and massive ...

Big_Dee

•2 years ago

13 Replies

trisomy 12 dx with cll

cll and trisomy 12. Any information will help alleviate fears

Pokerplayer1

•2 years ago

21 Replies

COVID Vaccination and WBC

I am interested to know if anyone knows how a COVID vaccination or booster affects WBC. I have had 4 shots and COVID three times .It appears my WBC has...

I am interested to know if anyone knows how a COVID vaccination or booster affec...

DUKELAXDAD

•2 years ago

15 Replies

co-trimoxazole and anaemia/folate deficiency

I was wondering if anyone in the community has had any experience of taking Co-trimoxazole long term and anaemia/folate deficiency ? I have been prescribed...

I was wondering if anyone in the community has had any experience of taking Co-t...

fapumpkin

•2 years ago

8 Replies

Travel insurance

Just out of interest I have just come off the phone with a very nice man at Staysure insurance. He quoted me £1380.27 for an annual worldwide multi trip...

Just out of interest I have just come off the phone with a very nice man at Sta...

kitchengardener2

•2 years ago

18 Replies

World CLL Day / Blood Cancer Awareness Month

CLL Support is marking Blood Cancer Awareness Month in September with an initiative that underpins our “You Can Live Well with CLL” message. This is not simply...

CLL Support is marking Blood Cancer Awareness Month in September with an initiat...

Mild-Rover

•2 years ago

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sotrovimab

I am booked in for sotrovimab infusion later today as I have Covid not sure whether to have it. Anyone have any views

I am booked in for sotrovimab infusion later today as I have Covid not sure wh...

janloveslife

•2 years ago

9 Replies

World CLL Day Today

Have a good day everyone.

Jm954

Administrator•2 years ago

3 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2022

more adversity

sickly

Additional Shingrix Vaccination?

Acalabrutinib and water

what Medication can stop PHN pain without side effects if I am on Wait and see with diagnosed CLL?

Infection after treatment forCLL

crispr

Time to say goodbye.

Son in Canada looks to Germany for treatment

CLL, New Omicron shot, Current Flu shot, and monthly IV IgHv infusion. Is it OK to have all three in one week? I am currently on Ibrutinib!

Follow up on low platelets and stopping Acalabrutinib

Covid-19 Vaccines — Immunity, Variants, Boosters

Monoclonal antibodies vs. Paxlovid

Ibrutinib and Venetoclax side effect

New Diagnosis :what does all this blood work mean?

Evusheld and Vaccine : new information

Evosheld

iron deficiency - something to be worry about ?

Neanderthal DNA on Chromosome 12 Protective against Covid 19

Good News Train

trisomy 12 dx with cll

COVID Vaccination and WBC

co-trimoxazole and anaemia/folate deficiency

Travel insurance

World CLL Day / Blood Cancer Awareness Month

sotrovimab

World CLL Day Today

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Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2022

﻿more adversity

﻿sickly

Additional Shingrix Vaccination?

Acalabrutinib and water

what Medication can stop PHN pain without side effects if I am on Wait and see with diagnosed CLL?

Infection after treatment forCLL

﻿crispr

﻿Time to say goodbye.

Son in Canada looks to Germany for treatment

CLL, New Omicron shot, Current Flu shot, and monthly IV IgHv infusion. Is it OK to have all three in one week? I am currently on Ibrutinib!

Follow up on low platelets and stopping Acalabrutinib

Covid-19 Vaccines — Immunity, Variants, Boosters

Monoclonal antibodies vs. Paxlovid

Ibrutinib and Venetoclax side effect

New Diagnosis :what does all this blood work mean?

Evusheld and Vaccine : new information

﻿Evosheld

iron deficiency - something to be worry about ?

Neanderthal DNA on Chromosome 12 Protective against Covid 19

Good News Train

trisomy 12 dx with cll

COVID Vaccination and WBC

co-trimoxazole and anaemia/folate deficiency

﻿Travel insurance

World CLL Day / Blood Cancer Awareness Month

﻿sotrovimab

World CLL Day Today

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive

more adversity

sickly

crispr

Time to say goodbye.

Evosheld

Travel insurance

sotrovimab