Ibrutinib and Venetoclax side effect - CLL Support

CLL Support

22,512 members38,670 posts

Ibrutinib and Venetoclax side effect

dave20 profile image
9 Replies

Hi Everyone,

I have been on Ibrutinib since April this year and added Venetoclax 2 months ago.

3 weeks ago my face and chest areas developed many red spots like acneiform, my hematologists

not quite sure how to deal my condition, he just prescribed some antibiotic for me and I

don't see any improvement yet.

Wonder if anyone has similar experience ? Appreciate your advise.

Thanks

Dave.

.

Written by
dave20 profile image
dave20
To view profiles and participate in discussions please or .
Read more about...
9 Replies
Yalokin profile image
Yalokin

Read this:

jag.journalagent.com/tjh/pd...

Yalokin profile image
Yalokin

There are also quite a few in our forum, for example these:

healthunlocked.com/cllsuppo...

healthunlocked.com/cllsuppo...

healthunlocked.com/cllsuppo...

healthunlocked.com/cllsuppo...

healthunlocked.com/cllsuppo...

dave20 profile image
dave20 in reply to Yalokin

Thanks so much for links.There are very information.

Spr-ing24 profile image
Spr-ing24

Hi I also suffered with red spots all over my face taking ibrutinib and Venetoclax. I saw a dermatologist and was prescribed Eumovate cream and Dermol face wash which helped. Once I finished taking ibrutinib my face cleared up instantly overnight and I've never had this rash since. I finished my treatment after 4 years and am now in remission. Hope this is of some help for you.

dave20 profile image
dave20 in reply to Spr-ing24

Thank you for your reply .I will consult my dermatologist tomorrow.

Sepsur profile image
Sepsur

I always believed mine was petechiae

my.clevelandclinic.org/heal....

dave20 profile image
dave20 in reply to Sepsur

I don't my condition is petechiae.My rash are slightly inflamed and stinging pain, some spots look acne like bumps to form.

I hope my Dermatologist can give me the answer. Thanks your input.

waer88 profile image
waer88

I didn’t have those symptoms but was on a clinical trial with both meds with 820mg total of each per day. It was stopped last April when four of 45 participants had serious heart issues and two died. The trial was run by dana farber and I believe an alert was issued.

dave20 profile image
dave20

My Hematology did inform me such incident. He warded me 5 days in hospital for observation when I started Venetoclax .

You may also like...

Side Effects of Ibrutinib/Venetoclax

Started Ibrutinib 9 months ago and Ventetoclax 6months ago on the Ibrutinib/Venetoclax Trial. I...

2 Issues: Ibrutinib side effects + Ibrutinib plus Venetoclax Treatment

My mom started the treatment with ibrutinib 10 days ago, the full dosis 420mg per day. She is...

Side Effects of Long Term use of acyclovir when on Ibrutinib+venetoclax

on a clinical trial of ibrutinib (for two months) and then adding venetoclax until I achieve MRD...

Venetoclax Side Effects

I've been on Venetoclax monotherapy for 15 months now and bloods are good. But I have developed a...

Ibrutinib side effects

I should be starting Ibrutinib (3x140g/dy) ASAP and I am afraid of the side effects.. After how much