Posts - CLL Support | HealthUnlocked

CLL Support

22,769 members • 39,067 posts

All posts for September 2022

Anti virals

I have been on ibrutinib 5 . 5 years and still bloods are very good and I tolerate it very well ,I live a normal life and do all the things I done before ....

I have been on ibrutinib 5 . 5 years and still bloods are very good and I tolera...

cartwheels

•2 years ago

48 Replies

Husband's Ventoclax Ramp Up Goes Smoothly!

Here in California, the temperature reached 120 degrees on the first day of my husband's Ventoclax Ramp Up. Our power went out, and without AC, it was...

Here in California, the temperature reached 120 degrees on the first day of my h...

lisakc1

•2 years ago

4 Replies

Immunoglobulin substitution in patients with secondary antibody deficiency in chronic lymphocytic leukemia and multiple myeloma...

Please excuse me, but I believe that this study will be "lost" if I cite it in connection with the other topic I posted today. Therefore, I am posting it as a...

Please excuse me, but I believe that this study will be "lost" if I cite it in c...

Yalokin

•2 years ago

7 Replies

Want to take advantage of all our features? Just log in!

Its looking unattainable for the Evusheld petition to UK parliament...

My latest tweet - 18,260-18,322 signatures. A near useless 52 since my last post. Its looks as if even a superhuman effort to spread the word will not be...

My latest tweet - 18,260-18,322 signatures. A near useless 52 since my last pos...

JIDD

•2 years ago

6 Replies

Monoclonal gammopathy and serum immunoglobulin levels as prognostic factors in chronic lymphocytic leukaemia

"Immune dysregulation represents a dynamic process evolving during time, often towards hypogammaglobulineamia, especially therapy-related or during disease...

"Immune dysregulation represents a dynamic process evolving during time, often t...

Yalokin

•2 years ago

22 Replies

Bruising From CLL

I have been on Imbruvica for 29 months and also Vylocyclovir an anti viral. I often get bruising on my hands upper chest and stomach but they go away and...

I have been on Imbruvica for 29 months and also Vylocyclovir an anti viral. I ...

Gariva

•2 years ago

34 Replies

Sunburn very rapidly

3 years after diagnosis with CLL and I got to travel. But day 1, although probably no more than 10 minutes in the French sun and i'm bright red and borderline...

3 years after diagnosis with CLL and I got to travel. But day 1, although probab...

Research123

•2 years ago

27 Replies

Staged

Today I met with my Hematologist/oncologist after he ordered me a pet/ct scan. I was hesitant to take the test because I didn't think it was CLL protocol but I...

Today I met with my Hematologist/oncologist after he ordered me a pet/ct scan. I...

Adante

•2 years ago

9 Replies

Queen Elizabeth II 1926 - 2022

We are saddened at the death of our beloved Queen who has been a positive and enduring presence in our lives for 70 years. Our thoughts and condolences are...

We are saddened at the death of our beloved Queen who has been a positive and en...

Jm954

Administrator•2 years ago

16 Replies

5th COVID shot?

Hello! I'm writing with a small quandary - In Germany, they've just rolled out the B.1 booster, but it doesn't seem we'll have the B.4/5 one anytime soon. I've...

Hello! I'm writing with a small quandary - In Germany, they've just rolled out t...

jijic

•2 years ago

4 Replies

Wine! Priority Post. lol

Winding down on the V and O fun - and see an Italy trip in my horizon. To Wine or not to Wine, that is the question? Will be on 4 V pills per day but that's...

Winding down on the V and O fun - and see an Italy trip in my horizon. To Wine ...

Gardengirl44

•2 years ago

10 Replies

Pneumonia Vaccine PCV-20 single shot now recommended

The USA CDC has changed policy and now recommends a single pneumonia shot for Adults 65 years old and older & Adults 19 through 64 years old with certain...

The USA CDC has changed policy and now recommends a single pneumonia shot for Ad...

lankisterguy

Volunteer•2 years ago

17 Replies

STATIC Ibrutinib trial (FLAIR follow on) update for UK members

The STATIC team have released an update which is on the CLL Support website. In brief, there will be no patient choice arm so patients cannot elect to...

The STATIC team have released an update which is on the CLL Support website. In...

Jm954

Administrator•2 years ago

5 Replies

Venetoclax rampup

I read the other day that a doctor ramped up within one week. Does anyone know why? There was a study shortening rampup to 3 weeks by Dr. Davids but 1 week?...

I read the other day that a doctor ramped up within one week. Does anyone know w...

mickimauser11

•2 years ago

5 Replies

I need a CLL expert

Greetings, I am still so new to all of this and am an 'outside the box' thinker, as my body does not respond good to pharmaceuticals, so of course I always...

Greetings, I am still so new to all of this and am an 'outside the box' thinker...

Tirawa

•2 years ago

7 Replies

CLL and Fatigue - Patient Power Webinar Tuesday, September 20, 2022 at 12:00PM Eastern Time

CLL and Fatigue - Patient Power Webinar Tuesday, September 20, 2022 at 12:00PM Eastern Time Please join CLL patient and host, Michele Nadeem-Baker and...

CLL and Fatigue - Patient Power Webinar Tuesday, September 20, 2022 at 12:00PM ...

lankisterguy

Volunteer•2 years ago

Be the first to reply

Progressing Toward Optimal CLL Care Through Healthcare Professional and Patient Education

Three of my favorite doctors explaining detailed subjects in easier to comprehend language. These are best for medically trained or well read CLL patients....

Three of my favorite doctors explaining detailed subjects in easier to compreh...

lankisterguy

Volunteer•2 years ago

Be the first to reply

Tetanus shot?? Any interactions with Imbruvica?

My husband got a tetanus shot because he was cut with something rusty and hadn't had one in at least 10 years. I haven't had one either, but if I do get cut,...

My husband got a tetanus shot because he was cut with something rusty and hadn't...

DawnRedwood

•2 years ago

3 Replies

CLL, Ibrutinib and Yersinia Enterocolitica Infection

This is my first post for information. I have been reading and learning a lot from the wonderful people on this support site since my CLL diagnostic back in...

This is my first post for information. I have been reading and learning a lot fr...

Sanflore

•2 years ago

8 Replies

Newest Vaccine and BTKi

Wondering if the following is worthwhile: Knowing my Oncologist will probably advise against it, in the past he has told me better to deal with covid...

Wondering if the following is worthwhile: Knowing my Oncologist will probably a...

Davidcara

•2 years ago

14 Replies

Sauna. Cognitive functions

Hi!! Does anyone know if the sauna is good for CLL, bad or neutral? Also, has anyone seen their cognitive functions altered in any way? memory, confusion,...

Hi!! Does anyone know if the sauna is good for CLL, bad or neutral? Also, has ...

Denisguay

•2 years ago

29 Replies

Evosheld

I joined the Evosheld UK Facebook page where there is a strong campaign for the government to authorise Evusheld. We were asked to write to our MPs and ask...

I joined the Evosheld UK Facebook page where there is a strong campaign for the ...

kitchengardener2

•2 years ago

4 Replies

The Path to Recovery

Just a little bit of encouragement to fellow O+V people. In the months up to treatment I lost all my muscle strength (lost 10 kg) and couldn’t get up the...

Just a little bit of encouragement to fellow O+V people. In the months up to tr...

carolly

•2 years ago

5 Replies

CLL highly correlated to other cancers?

My husband has MBL - I understand this as stage 0 CLL. He is asymptomatic and well. His iron/ ferritin suddenly dropped and a small bowel malignant tumour was...

My husband has MBL - I understand this as stage 0 CLL. He is asymptomatic and we...

NixRose

•2 years ago

9 Replies

Work and CLL

I was diagnosed with CLL in 2020. I’m stage 1 watch & wait my markers are mutated trisomy 12 with 18&19. I’ve been a flight attendant for the last 32 years....

I was diagnosed with CLL in 2020. I’m stage 1 watch & wait my markers are mutate...

Arts116

•2 years ago

14 Replies

Relapse Worries? Help, Please!

Hi everyone, I started treatment (V + O) in January 2020; a year later, I was done, and had a flow blood result of "no detectable abnormalities" or whatever....

Hi everyone, I started treatment (V + O) in January 2020; a year later, I was d...

DRM18

•2 years ago

34 Replies

Long and Winding Road

At the start of my CLL treatment some eight years ago HealthUnlocked was an invaluable resource. I knew nothing of the disease, of the new generations of...

At the start of my CLL treatment some eight years ago HealthUnlocked was an inva...

Hidden

•2 years ago

42 Replies

a post by Curling

tryin g to find post by Curling reference to water consumption

Missmuffinandme

•2 years ago

21 Replies

Amazing Travel Insurance deal for all Public Sector/ Civil Service workers or retirees

CSSC: this is the civil and public service organization (Google it ) You can join this for 4.50 a month and have access to a NO questions asked world wide...

CSSC: this is the civil and public service organization (Google it ) You can j...

Lainie2875

•2 years ago

9 Replies

weight loss/gain

like you I lost weight after a couple of months on Acalabrutinib then got back to my normal weight after 6 months. 14 months in I’m still at my normal weight....

like you I lost weight after a couple of months on Acalabrutinib then got back t...

julianlydes

•2 years ago

5 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2022

Anti virals

Husband's Ventoclax Ramp Up Goes Smoothly!

Immunoglobulin substitution in patients with secondary antibody deficiency in chronic lymphocytic leukemia and multiple myeloma...

Its looking unattainable for the Evusheld petition to UK parliament...

Monoclonal gammopathy and serum immunoglobulin levels as prognostic factors in chronic lymphocytic leukaemia

Bruising From CLL

Sunburn very rapidly

Staged

Queen Elizabeth II 1926 - 2022

5th COVID shot?

Wine! Priority Post. lol

Pneumonia Vaccine PCV-20 single shot now recommended

STATIC Ibrutinib trial (FLAIR follow on) update for UK members

Venetoclax rampup

I need a CLL expert

CLL and Fatigue - Patient Power Webinar Tuesday, September 20, 2022 at 12:00PM Eastern Time

Progressing Toward Optimal CLL Care Through Healthcare Professional and Patient Education

Tetanus shot?? Any interactions with Imbruvica?

CLL, Ibrutinib and Yersinia Enterocolitica Infection

Newest Vaccine and BTKi

Sauna. Cognitive functions

Evosheld

The Path to Recovery

CLL highly correlated to other cancers?

Work and CLL

Relapse Worries? Help, Please!

Long and Winding Road

a post by Curling

Amazing Travel Insurance deal for all Public Sector/ Civil Service workers or retirees

weight loss/gain

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