Good News Train

[Big_Dee]

Hello CLLers

Due to my very aggressive ALC doubling every 3 months and massive abdominal lymph nodes, my H/O thought I might have large cell lymphoma on top of my relapsing CLL. I was scheduled for abdominal lymph node biopsy on Sept 7th, but as luck would have, it saw my CLL Specialist on August 24th. After rounds of consults, it was suggested that I get a PET scan first before moving on to biopsy. Did PET scan on August 31st. Took some fast juggling on H/O's part to get scheduled in less than a week as my last CLL Specialist had retired and replacement was not taking appointments yet.

Did PET scan on August 31st and saw H/O on Sept 1st (National CLL Day for good luck.) H/O said does not think I have large cell lymphoma (Richter's Transformation). PET showed no tumor burden in all major organs, I have lymphadenopathy above and below diaphragm. I do have some fluid buildup in abdomen which is suspected lymph fluid, but I suspect they want to see CLL treatment will clear that up without having a drain port put through abdomen wall.

Al in all, I would rather deal with uncurable CLL than curable RT. Get chest port in the morning, then on to V+O CLL treatment on Sept 7th. Blessings to all as I have been blessed and hope this encourages my fellow CLLers.

[HopeME]

Awesome news Big Dee! I’m very glad for you. Have a wonderful Labor Day weekend!

[CycleWonder]

That is wonderful news! I hope the V&O works well for you.

[cajunjeff]

Big Dee, thanks for the update. Good luck with your new treatment plan. 👍

[Panz]

All the very very best as you take on this new venture! You know our community is behind you all the way…we are very much in your corner. Please stay in touch!

Panz👍🙂💕🙏☘️🌈

[Ballyhoo777]

Praying that this new treatment is successful for you. 🙏🙏🙏

[cllady01 Former Volunteer]

A deep sigh of relief that the solution is O+V and not the strenuous cocktail. Best wishes!

[Justasheet1]

Wonderful news.

[SofiaDeo]

Yess!!!

[BobbyFour]

That is great news! I had a similar scare when my local oncologist misidentified a bladder diverticulum as a giant node. It is a long weekend here and the weather is great, so I am signing off with your happy news in my head 😀

[Yalokin]

And we are happy with the good news. Good luck with your treatment and keep us posted!🍀🍀🍀

[Ghounds]

Good news indeed and best wishes for your treatment

[Wroxham]

Hope treatment goes very good for youSue

[studebaker]

Great news ! Good luck with treatment 🤗